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6,247 Results Found

  • Article
  • Open Access
32 Citations
5,717 Views
17 Pages

The Supportive Care Needs of Regional and Remote Cancer Caregivers

  • Anna Stiller,
  • Belinda C. Goodwin,
  • Fiona Crawford-Williams,
  • Sonja March and ,
  • Michael Ireland,
  • Joanne F. Aitken,
  • Jeff Dunn and
  • Suzanne K. Chambers
  • + 3 authors+ 0 author

9 August 2021

Objective: As cancer survival rates continue to increase, so will the demand for care from family and friends, particularly in more isolated settings. This study aims to examine the needs of cancer caregivers in regional and remote Australia. Methods...

(This article belongs to the Special Issue Supportive Care Needs of Cancer Patients and Caregivers)
  • Article
  • Open Access
9 Citations
3,570 Views
12 Pages

Supportive Care and Unmet Needs in Upper Gastrointestinal Cancer Patients: Screening and Related Factors

  • Ya-Ting Tseng,
  • Chia-Hsun Hsieh,
  • Chien-Wei Hung,
  • Chia-Chia Chen and ,
  • Shu-Hui Lee,
  • Li-Yun Lee and
  • Shu-Ching Chen
  • + 2 authors+ 0 author

Upper gastrointestinal (UGI) cancer treatment can cause physical and psychological distress and may result in unmet needs. The purposes of this study were to (1) examine the levels of gastrointestinal (GI) symptom distress, social support, and suppor...

  • Article
  • Open Access
7 Citations
4,921 Views
8 Pages

Supportive Care Needs of Newly Diagnosed Cancer Patients in a Comprehensive Cancer Center: Identifying Care Profiles and Future Perspectives

  • Loula Papageorgiou,
  • Jean-Bernard Le Provost,
  • Mario Di Palma,
  • Marc Langlois and ,
  • Israa Salma,
  • Manuella Lopes,
  • Etienne Minvielle,
  • Maya Abbas and
  • Florian Scotté
  • + 4 authors+ 0 author

29 February 2024

The prompt introduction of supportive care for patients with cancer leads to a better quality of life, potential survival benefits, and improvements in treatment safety. Considering that patients’ needs vary, descriptive assessments could serve...

(This article belongs to the Section Cancer Survivorship and Quality of Life)
  • Review
  • Open Access
1,919 Views
24 Pages

Supportive Care Needs of Patients with Breast Cancer Who Self-Identify as Black: An Integrative Review

  • Etienne Oshinowo,
  • Emily Peterson,
  • Michelle Audoin,
  • Jennifer Ryan and ,
  • June Buckle,
  • Clare Cruickshank,
  • Jennifer Jones,
  • Lisa Malinowski Kamran,
  • Aisha Lofters and
  • Melanie Powis
  • + 10 authors+ 5 authors

18 October 2025

Black-identifying patients face many barriers to the receipt of equitable breast cancer care; however, little is currently known about the unique needs of this patient population, particularly in Canada. To address this gap, we identified and themati...

  • Article
  • Open Access
6 Citations
3,274 Views
12 Pages

Quality of Life vs. Supportive Care Needs for Oral Cancer Caregivers: Are They Related?

  • Aira Syazleen Ahmad,
  • Jennifer Geraldine Doss,
  • Siti Mazlipah Ismail,
  • Shim Chen Kiong and ,
  • Md Arad Jelon,
  • Logesvari Thangavalu and
  • Ch’ng Lay Ling
  • + 2 authors+ 0 author

1 February 2023

Caregivers providing care for their family members with oral cancer usually endure the caregiving burden in silence, which affects their quality of life and necessitates the need for supportive care. The aim of this study is to determine the relation...

(This article belongs to the Section Oncology Nursing)
  • Review
  • Open Access
40 Citations
5,838 Views
17 Pages

Early-Onset Cancers in Adults: A Review of Epidemiology, Supportive Care Needs and Future Research Priorities

  • Ashleigh C. Hamilton,
  • David W. Donnelly,
  • Deirdre Fitzpatrick and
  • Helen G. Coleman

20 August 2022

Rising incidence of specific types of early-age onset cancers in adults aged 18–49 years has been reported in high-income countries. In this review, we summarise the epidemiology of early-onset cancers using exemplar data from a high-income UK...

(This article belongs to the Section Cancer Epidemiology and Prevention)
  • Article
  • Open Access
6 Citations
2,764 Views
12 Pages

After discharge from neonatal intensive care units (NICUs), the parents of pre-term newborns have to provide developmentally supportive care (DSC) to their children; thus, educational support for parents is essential. This study aimed to explore the...

(This article belongs to the Special Issue Promoting Women's and Children's Health: Strengthening High-Quality Midwifery Care)
  • Article
  • Open Access
30 Citations
7,369 Views
19 Pages

Supportive Care Needs Assessment for Cancer Survivors at a Comprehensive Cancer Center in the Middle East: Mending the Gap

  • Amal Al-Omari,
  • Nedal Al-Rawashdeh,
  • Rana Damsees,
  • Khawlah Ammar and ,
  • Ibrahim Alananzeh,
  • Bayan Inserat,
  • Dalia Al-Rimawi,
  • Shrouq Tbayshat,
  • Hazim Ababneh and
  • Hikmat Abdel-Razeq
  • + 8 authors+ 3 authors

16 February 2022

Background: Cancer survivors are often underprepared for what to expect post-treatment, and there are knowledge gaps regarding cancer survivors’ supportive care needs in Jordan and neighboring Arab countries. This study aimed to identify gaps i...

(This article belongs to the Section Cancer Survivorship and Quality of Life)
  • Article
  • Open Access
3 Citations
2,559 Views
12 Pages

The Relationship between Supportive Care Needs and Health-Related Quality of Life in Cancer Patients

  • Andreas Hinz,
  • Antje Lehmann-Laue,
  • Diana Richter,
  • Michael Hinz and ,
  • Thomas Schulte,
  • Evelyn Görz and
  • Anja Mehnert-Theuerkauf
  • + 2 authors+ 0 author

The aim of this study was to analyze the relationship between quality of life (QoL) and supportive care needs (SCNs) in cancer patients. It is difficult to relate SCNs to detriments in QoL since SCNs and QoL assessment tools generally comprise differ...

  • Article
  • Open Access
9 Citations
3,408 Views
21 Pages

30 October 2024

Background: Breast cancer (BC) is the most common cancer among women in Palestine, where the need for supportive care frequently goes unmet. Therefore, this study aims to assess the supportive care services provided at the governmental hospitals in t...

(This article belongs to the Special Issue Health Services Research in Cancer Care)
  • Article
  • Open Access
4 Citations
3,527 Views
15 Pages

Psychological Distress and Concerns of In-Home Older People Living with Cancer and Their Impact on Supportive Care Needs: An Observational Survey

  • Christos Kleisiaris,
  • Maria Maniou,
  • Savvato Karavasileiadou,
  • Constantinos Togas and ,
  • Theocharis Konstantinidis,
  • Ioanna V. Papathanasiou,
  • Konstantinos Tsaras,
  • Wafa Hamad Almegewly,
  • Emmanouil Androulakis and
  • Hanan Hamdan Alshehri
  • + 5 authors+ 0 author

31 October 2023

(1) Background: Cancer patients are experiencing psychological problems after diagnosis, such as emotional distress and social anxiety, which may increase their demands for emotional and supportive care. This study aimed to assess the influence of bo...

(This article belongs to the Topic Life of Cancer Survivor)
  • Study Protocol
  • Open Access
5 Citations
2,987 Views
10 Pages

Effect of Telenursing on Supportive Care Needs in Patients with Melanoma and Lung Cancer on Targeted Therapies: A Randomised Controlled Trial Study Protocol

  • Aurora De Leo,
  • Gloria Liquori,
  • Alessandro Spano,
  • Nicolò Panattoni and ,
  • Sara Dionisi,
  • Laura Iacorossi,
  • Noemi Giannetta,
  • Irene Terrenato,
  • Emanuele Di Simone and
  • Fabrizio Petrone
  • + 6 authors+ 1 author

Background: Telenursing comprises a set of tools and interventions enabling nurses to provide remote care. This study aims to assess the impact of telenursing interventions on the supportive care needs of patients with melanoma and lung cancer who ar...

(This article belongs to the Section Public Health Research)
  • Article
  • Open Access
688 Views
17 Pages

18 August 2026

Background: Family caregivers play a central role in supporting people with colorectal cancer (CRC) and often manage complex physical, emotional, and practical demands. However, evidence regarding their experiences and supportive care needs in Kazakh...

(This article belongs to the Section Nursing Care for Older People)
  • Article
  • Open Access
2 Citations
1,831 Views
19 Pages

19 September 2025

Objective: This multicentre study investigates unmet supportive care needs (SCNs) among cancer survivors in Spain and analyses sociodemographic and cancer-related risk factors. Methods: A cross-sectional design was used with 1862 cancer survivors age...

(This article belongs to the Section Psychosocial Oncology)
  • Article
  • Open Access
2 Citations
2,933 Views
17 Pages

Young Adult German Breast Cancer Patients Participating in a Three-Week Inpatient Mother–Child Rehab Program Have High Needs for Supportive Care

  • Friederike Hammersen,
  • Dorothea Fischer,
  • Telja Pursche,
  • Angelika M. Strobel and ,
  • Alexander Katalinic,
  • Louisa Labohm and
  • Annika Waldmann
  • + 2 authors+ 0 author

15 March 2023

A known cut-off problem hampers the interpretation of quality of life (QOL) scores. The purpose of this study was to apply a novel approach for the EORTC QLQ-C30 instrument to identify the proportion of breast cancer (BC) patients in need of supporti...

(This article belongs to the Section Cancer Epidemiology and Prevention)
  • Article
  • Open Access
4 Citations
3,306 Views
14 Pages

Psychometric Properties of the Italian Version of the Short-Form Supportive Care Needs Survey Questionnaire (SCNS-SF34-It): A Multicenter Validation Study

  • Anita Zeneli,
  • Paolo Leombruni,
  • Marco Miniotti,
  • Emanuela Scarpi and ,
  • Marco Maltoni,
  • Sara Cavalieri,
  • Valentina Legni,
  • Cristina Nanni,
  • Mihaiela Tarca and
  • Sandra Montalti
  • + 6 authors+ 1 author

27 January 2024

This study aimed to evaluate psychometric properties of the Italian version of the Short-Form Supportive Care Needs Survey Questionnaire (SCNS-SF34) in a cancer population. A multicenter prospective observational study was carried out in outpatient a...

  • Review
  • Open Access
27 Citations
8,205 Views
16 Pages

The growing amount of evidence about the role of supportive care in enhancing cancer patients’ outcomes has made healthcare providers more sensitive to the need for support that they experience during cancer’s trajectory. However, the lac...

(This article belongs to the Section Nursing)
  • Article
  • Open Access
8 Citations
2,363 Views
9 Pages

Relationship between Oral Function and Support/Care-Need Certification in Japanese Older People Aged ≥ 75 Years: A Three-Year Cohort Study

  • Komei Iwai,
  • Tetsuji Azuma,
  • Takatoshi Yonenaga,
  • Taketsugu Nomura and ,
  • Iwane Sugiura,
  • Yujo Inagawa,
  • Yusuke Matsumoto,
  • Seiji Nakashima,
  • Yoshikazu Abe and
  • Takaaki Tomofuji
  • + 5 authors+ 0 author

The aim was to examine the relationships between oral functions and support/care-need certification in older people aged ≥ 75 years using the National Health Insurance (NHI) database system and data from Kani City, Gifu, Japan. In total, 732 older...

(This article belongs to the Special Issue Feature Paper: Advance in Global Health)
  • Article
  • Open Access
12 Citations
4,270 Views
13 Pages

Unmet Supportive Care Needs of Survival Patients with Nasopharyngeal Carcinoma

  • Ya-Ling Lin,
  • Chun-Yi Chuang,
  • Vivian Chia-Rong Hsieh,
  • Ming-Shou Tsai and ,
  • Yen-Fang Liu,
  • Xian-Xiu Chen and
  • Shwn-Huey Shieh
  • + 2 authors+ 0 author

This study examined unmet supportive care needs for nasopharyngeal carcinoma (NPC) patients by cancer stage and treatment phase, as well as the factors associated with these unmet needs. At a cancer center in central Taiwan, information on consultati...

(This article belongs to the Collection Nursing Research)
  • Article
  • Open Access
68 Citations
2,402 Views
8 Pages

The Prevalence and Nature of Supportive Care Needs in Lung Cancer Patients

  • M.E. Giuliani,
  • R.A. Milne,
  • M. Puts,
  • L.R. Sampson and ,
  • J.Y.Y. Kwan,
  • L.W. Le,
  • S.M.H. Alibhai,
  • D. Howell,
  • N. Abdelmutti and
  • J. Jones
  • + 8 authors+ 3 authors

1 August 2016

Purpose: In the present work, we set out to comprehensively describe the unmet supportive care and information needs of lung cancer patients. Methods: This cross-sectional study used the Supportive Care Needs Survey Short Form 34 (34 items) and an in...

  • Article
  • Open Access
28 Citations
6,108 Views
18 Pages

Many informal caregivers of older adults combine their caregiving tasks with a paid job. Adequate support is important to enable them to combine paid work with caregiving, while maintaining their health and wellbeing. To date, however, knowledge abou...

(This article belongs to the Special Issue Caregivers Supporting the Health and Quality of Life of Aging Adults: Needs and Opportunities at the Personal, Community, and Societal Levels)
  • Article
  • Open Access
12 Citations
5,241 Views
13 Pages

Psychometric Properties of the 34-Item Short-Form Supportive Care Need Survey (SCNS-SF34) Scale in the Malaysian Cancer Healthcare Context

  • Nizuwan Azman,
  • Lei Mee Thien,
  • Mohammad Farris Iman Leong Abdullah and
  • Noorsuzana Mohd Shariff

(1) Background: This study aimed to assess the psychometric properties of the Malay version of SCNS-SF34 among Malaysian cancer patients. (2) Methods: This cross-sectional study involved 171 cancer patients. Data were collected using the structured f...

  • Article
  • Open Access
9 Citations
3,359 Views
14 Pages

Biopsychosocial Factors Associated with Supportive Care Needs in Canadian Adolescent and Young Adult Cancer Survivors

  • Steven Guirguis,
  • Margaret Fitch,
  • Manjula Maganti,
  • Abha A. Gupta and ,
  • Norma D’Agostino,
  • Chana Korenblum and
  • Jennifer M. Jones
  • + 2 authors+ 0 author

15 June 2021

Adolescents and young adults (AYAs) represent an overlooked population in cancer survivorship care. Identifying the needs of AYAs can guide the development of tailored programs for this population. We conducted a cross-sectional descriptive analysis...

(This article belongs to the Section Oncology)
  • Review
  • Open Access
19 Citations
4,115 Views
11 Pages

Burden and Needs of Patients with Severe GvHD from the Supportive and Palliative Care Perspective—A Literature Review

  • Freya Wenzel,
  • Anne Pralong,
  • Udo Holtick,
  • Christoph Scheid and ,
  • Marco Herling and
  • Steffen T Simon
  • + 1 author+ 0 author

30 May 2021

Graft-versus-host disease (GvHD) is a frequent, and often life-threatening, complication after an allogeneic, hematopoietic stem cell transplantation (allo-SCT). It can appear in an acute or a chronic form and presents different grades of severity. P...

(This article belongs to the Special Issue Supportive and Palliative Care in Oncology)
  • Article
  • Open Access
3,177 Views
18 Pages

20 August 2025

Background/Objectives: Advances in cancer diagnosis and treatment improved survivorship rates, but survivors’ long-term quality of life remains a critical concern. Survivors of esophageal and gastric cancer often undergo extensive curative surg...

(This article belongs to the Special Issue Updates on Oncology Rehabilitation)
  • Article
  • Open Access
1,038 Views
17 Pages

Background: Adolescents and young adults (AYAs; aged 15–39) diagnosed with cancer face distinct challenges that are poorly addressed within traditional cancer care models. This qualitative study explored AYAs’ unmet supportive cancer care...

(This article belongs to the Section Psychosocial Oncology)
  • Review
  • Open Access
3 Citations
3,120 Views
20 Pages

‘Low-Level’ Social Care Needs of Adults in Prison (LOSCIP): A Scoping Review of the UK Literature

  • Deborah Buck,
  • Akash Ali,
  • Noor Butt,
  • Helen Chadwick and ,
  • Lee D. Mulligan,
  • Adam O’Neill,
  • Catherine Robinson,
  • Jenny J. Shaw,
  • Andrew Shepherd and
  • Katrina Forsyth
  • + 7 authors+ 2 authors

17 February 2025

In England, local authorities are responsible for providing social care in prison in accordance with the Care Act (implemented in 2015), but little is known about ‘low-level’ needs that do not meet eligibility criteria. These ‘low-l...

(This article belongs to the Special Issue Social Care, Older People and Imprisonment)
  • Article
  • Open Access
24 Citations
3,848 Views
14 Pages

Describing Unmet Supportive Care Needs among Young Adults with Cancer (25–39 Years) and the Relationship with Health-Related Quality of Life, Psychological Distress, and Illness Cognitions

  • Emma Lidington,
  • Anne-Sophie Darlington,
  • Amy Din,
  • Susannah Stanway and ,
  • Susana Banerjee,
  • Zoltan Szucs,
  • Michael Gonzalez,
  • Anand Sharma,
  • Bhawna Sirohi and
  • Olga Husson
  • + 6 authors+ 1 author

28 September 2021

Few studies describe supportive care needs among young adults (YAs) with cancer ages 25 to 39 using validated questionnaires. Previous findings identified the need for psychological and information support and suggest that gender, age, psychological...

(This article belongs to the Section Oncology)
  • Systematic Review
  • Open Access
1 Citations
2,511 Views
29 Pages

Postpartum Health in Mothers of Preterm Infants in the NICU: Needs, Service Utilization, and Care Gaps—A Systematic Review

  • Tabea Mina Stein,
  • Marie-Jeannine Riefert,
  • Harald Abele,
  • Cornelia Wiechers and
  • Claudia F. Plappert

Background/Objectives: Mothers of preterm infants face complex postpartum challenges, yet their needs are often overlooked in neonatal care. This review synthesizes evidence on maternal health needs, service utilization, perceived adequacy, and barri...

(This article belongs to the Special Issue Midwifery-Led Care and Practice: Promoting Maternal and Child Health)
  • Article
  • Open Access
20 Citations
1,970 Views
9 Pages

Personalizing Post-Treatment Cancer Care: A Cross-Sectional Survey of the Needs and Preferences of Well Survivors of Breast Cancer

  • J. Y. Y. Kwan,
  • J. Croke,
  • T. Panzarella,
  • K. Ubhi and ,
  • A. Fyles,
  • A. Koch,
  • R. Dinniwell,
  • W. Levin,
  • D. McCready and
  • Jacqueline L. Bender
  • + 7 authors+ 2 authors

1 April 2019

Background: Improved treatments resulting in a rising number of survivors of breast cancer (bca) calls for optimization of current specialist-based follow-up care. In the present study, we evaluated well survivors of bca with respect to their support...

  • Article
  • Open Access
2 Citations
1,653 Views
16 Pages

Integrating Structured Peer Support Pathways for Patients Undergoing Cellular Therapies: Insights from a Participatory Study

  • Karine Bilodeau,
  • Pegah Torabi,
  • Ludovic Tamaro,
  • Sandie Oberoi and ,
  • Deborah Pascale,
  • Kelley Kilpatrick,
  • David Ogez,
  • Marie-Pascale Pomey,
  • Katia Dumont and
  • Imran Ahmad
  • + 8 authors+ 3 authors

21 October 2025

Individuals diagnosed with hematological cancer often face an emotionally demanding journey, frequently reporting high levels of distress and unmet needs, including a lack of personalized and emotional support. Our research team co-developed structur...

(This article belongs to the Section Cell Therapy)
  • Article
  • Open Access
12 Citations
4,030 Views
20 Pages

Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study

  • Sara Santini,
  • Barbara D’Amen,
  • Marco Socci,
  • Mirko Di Rosa and ,
  • Elizabeth Hanson and
  • Valentina Hlebec
  • + 1 author+ 0 author

Many adolescent young caregivers (AYCs) care for a grandparent (GrP) with chronic disease, especially in countries with no or low developed long-term care systems and/or level of awareness of and policy responses to young caregivers. This mixed-metho...

(This article belongs to the Special Issue New Advances in Aging)
  • Article
  • Open Access
6 Citations
1,771 Views
28 Pages

13 February 2026

Background/Objectives: Palliative care (PC) has traditionally focused on patients with cancer and their families. However, individuals living with advanced non-malignant chronic diseases and their caregivers face comparable challenges that significan...

(This article belongs to the Special Issue Promoting the Health of Caregivers: Addressing Physical, Psychosocial, and Spiritual Well-Being Across Acute and Chronic Care Settings)
  • Systematic Review
  • Open Access
25 Citations
9,575 Views
17 Pages

Spiritual Needs of Older Adults Living with Dementia: An Integrative Review

  • Katherine Carroll Britt,
  • Augustine C. O. Boateng,
  • Hui Zhao,
  • Francesca C. Ezeokonkwo and ,
  • Chad Federwitz and
  • Fayron Epps
  • + 1 author+ 0 author

Older adults living with dementia experience progressive decline, prompting reliance on others for spiritual care and support. Despite a growing interest in studying persons living with dementia (PLwDs), empirical evidence on the spiritual needs of P...

(This article belongs to the Special Issue Dementia and Care)
  • Article
  • Open Access
8 Citations
5,822 Views
26 Pages

9 November 2022

Using 68,930 observations selected from 16,535 adults in the Korea Health Panel survey (2014–2018), this study explored healthcare barriers that prevent people from meeting their healthcare needs most severely during adulthood, and the characte...

(This article belongs to the Section Health Policy)
  • Article
  • Open Access
4 Citations
4,044 Views
26 Pages

Scientific knowledge on the impact of a gender-affirming transition on intimate partners of transgender and gender diverse (TGD) individuals is limited. It is unclear which care needs partners have and which role health care professionals can play du...

(This article belongs to the Special Issue LGBTQI+ Health)
  • Article
  • Open Access
8 Citations
3,198 Views
10 Pages

Retrospective Analysis of Emotional Burden and the Need for Support of Patients and Their Informal Caregivers after Palliative Radiation Treatment for Brain Metastases

  • Jamie Lütscher,
  • Christa Hauswirth Siegenthaler,
  • Caroline Hertler,
  • David Blum and ,
  • Paul Windisch,
  • Renate Grathwohl Shaker,
  • Christina Schröder and
  • Daniel Rudolf Zwahlen
  • + 3 authors+ 0 author

11 June 2022

Cancer burdens not only the patients themselves but also their personal environment. A few studies have already focused on the mental health and personal needs of caregivers of patients. The purpose of this retrospective analysis was to further asses...

  • Article
  • Open Access
11 Citations
5,020 Views
12 Pages

The Unmet Needs of Pancreatic Cancer Carers Are Associated with Anxiety and Depression in Patients and Carers

  • Thi N. T. Huynh,
  • Gunter Hartel,
  • Monika Janda,
  • David Wyld and ,
  • Neil Merrett,
  • Helen Gooden,
  • Rachel E. Neale and
  • Vanessa L. Beesley
  • + 3 authors+ 0 author

7 November 2023

Pancreatic cancer has one of the lowest survival rates, and patients experience debilitating symptoms. Family carers provide essential daily care. This study determined the prevalence of and risk factors for unmet supportive care needs among carers f...

(This article belongs to the Special Issue Management of Pancreatic Cancer)
  • Article
  • Open Access
7 Citations
3,915 Views
17 Pages

Because of societal changes, family caregivers are becoming vital in long-term care provision for geriatric patients after discharge from hospital. Hospital-based geriatric care teams need tools to prepare and support family caregivers for their futu...

(This article belongs to the Section Health Care Sciences & Services)
  • Article
  • Open Access
366 Views
20 Pages

Cross-Cultural Adaptation and Psychometric Validation of the Cancer Survivors’ Unmet Needs Measure (CaSUN) in Russian- and Kazakh-Speaking Cancer Survivors in Kazakhstan

  • Gulnar Karabasova,
  • Kerbez Kimatova,
  • Nurgul Abenova,
  • Anar Tulyayeva and ,
  • Zalika Klemenc-Ketiš and
  • Perizat Aitmaganbet
  • + 1 author+ 0 author

14 September 2026

Background/Objectives: The growing population of cancer survivors has increased the need for reliable, culturally appropriate instruments to identify unmet supportive care needs. The Cancer Survivors’ Unmet Needs Measure (CaSUN) is a survivorsh...

(This article belongs to the Section Public Health and Preventive Medicine)
  • Article
  • Open Access
1,305 Views
11 Pages

30 April 2026

Background/Objectives: Siblings of children with the life-limiting disease Metachromatic Leukodystrophy (MLD) are growing up witnessing rapid disease progression and death, affecting development and psychological wellbeing. Family-centred palliative...

(This article belongs to the Section Pediatric Mental Health)
  • Article
  • Open Access
1,087 Views
21 Pages

Patients with end-stage liver disease (ESLD) and their caregivers experience extensive physical, psychological, and social burdens and needs for resources. However, empirical evidence on patients’ and caregivers’ specific reported use of...

  • Article
  • Open Access
8 Citations
3,023 Views
19 Pages

Understanding the Parental Caregiving of Children with Cerebral Palsy in Saudi Arabia: Discovering the Untold Story

  • Ashwaq Alqahtani,
  • Ahmad Sahely,
  • Heather M. Aldersey,
  • Marcia Finlayson and ,
  • Danielle Macdonald and
  • Afolasade Fakolade
  • + 1 author+ 0 author

Parents provide most of the support needed for children with cerebral palsy (CP) to increase the child’s participation and independence. Understanding the experiences of parents caring for children with CP is essential for developing effective...

  • Article
  • Open Access
6 Citations
1,028 Views
4 Pages

1 June 2013

With improved average longevity, the issue of polypathology in the cancer population is of growing importance, because it will increasingly affect more people. The present study piloted two self-report surveys aiming to provide preliminary data on th...

  • Article
  • Open Access
16 Citations
5,628 Views
19 Pages

Impact of the COVID-19 Pandemic on Family Carers of Older People Living with Dementia in Italy and Hungary

  • László Árpád Kostyál,
  • Zsuzsa Széman,
  • Virág Erzsébet Almási,
  • Paolo Fabbietti and ,
  • Sabrina Quattrini,
  • Marco Socci,
  • Giovanni Lamura and
  • Cristina Gagliardi
  • + 3 authors+ 0 author

24 June 2021

The COVID-19 pandemic has had a major effect on both older people with dementia and families caring for them. This paper presents the results of an online survey carried out among Italian and Hungarian family carers of people with dementia during the...

(This article belongs to the Special Issue Sustainable Care: Facing Global Ageing More Effectively)
  • Article
  • Open Access
5 Citations
4,542 Views
14 Pages

Autism spectrum disorder (ASD) is a complex neurodevelopmental disability that negatively affects children’s learning, motor behavior, social communication, and interaction. It was estimated that, in 2020, 1 in 36 children aged 8 years in the U...

  • Systematic Review
  • Open Access
504 Views
40 Pages

Negotiating Mortality: A Qualitative Systematic Review and Thematic Synthesis of the Psychosocial Experiences of Pancreatic Cancer Across the Illness Trajectory

  • Lana Cook,
  • Gillian Prue,
  • Caitlin McShane,
  • Mei Krishnasamy and ,
  • Kate Furness,
  • Susan McLaughlin and
  • Gary Mitchell
  • + 2 authors+ 0 author

1 October 2026

Background/Objectives: Pancreatic cancer is associated with poor survival and substantial psychosocial burden, yet little is known about the psychological, emotional, and social dimensions of patients’ experiences across the illness trajectory....

(This article belongs to the Special Issue Supportive Care in Cancer)
  • Article
  • Open Access
1 Citations
1,259 Views
18 Pages

Patient Navigation Needs and Quality of Life Among Women with Gynecological Cancer in Indonesia: A Cross-Sectional Study

  • Hartiah Haroen,
  • Tuti Pahria,
  • Hana Rizmadewi Agustina,
  • Gatot Nyarumentang Adhipurnawan Winarno and ,
  • Citra Windani Mambang Sari,
  • Windy Natasya and
  • Jerico Franciscus Pardosi
  • + 2 authors+ 0 author

Background: Patient navigation has been recognized as a promising strategy to address fragmented cancer care; however, evidence from low- and middle-income countries (LMICs) remains limited, particularly regarding how navigation-related needs are ass...

(This article belongs to the Section Women’s and Children’s Health)
  • Review
  • Open Access
5 Citations
3,387 Views
19 Pages

Domains and Categories of Needs in Long-Term Follow-Up of Adult Cancer Survivors: A Scoping Review of Systematic Reviews

  • Nicolas Sperisen,
  • Dimitri Kohler,
  • Nicole Steck,
  • Pierre-Yves Dietrich and
  • Elisabetta Rapiti

The number of long-term cancer survivors increases continually. Understanding their needs is crucial to ensure an adequate follow-up. The aim of our study was to summarize the current literature concerning needs and what influences these needs. A sco...

(This article belongs to the Topic Life of Cancer Survivor)
  • Article
  • Open Access
9 Citations
4,338 Views
16 Pages

Understanding Elderly Chinese Cancer Patients in a Multicultural Clinical Setting: Embracing Mortality and Addressing Misperceptions of Vulnerability

  • Yvonne W. Leung,
  • Enid W. Y. Kwong,
  • Karen Lok Yi Wong,
  • Jeremiah So and ,
  • Frankie Poon,
  • Terry Cheng,
  • Eric Chen,
  • Alex Molasiotis and
  • Doris Howell
  • + 4 authors+ 0 author

5 May 2024

Chinese patients face higher risks of gastrointestinal (GI) cancers and greater cancer-related deaths than Canadian-born patients. The older population encounters barriers to quality healthcare, impacting their well-being and survival. Previous studi...

(This article belongs to the Topic From Basic Research to a Clinical Perspective in Oncology)

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