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31 Results Found

  • Article
  • Open Access
822 Views
12 Pages

From Willingness to Readiness: Caregiver Activation for Cancer Care in Singapore

  • Safora Johansen,
  • Melissa Gaik Ming Ooi and
  • Alice F. S. Chua

Background: Family caregivers are essential partners in the outpatient care of older adults with cancer, yet the knowledge, skills, and confidence, collectively, of caregiver activation are not well characterized in Asian settings. Understanding acti...

(This article belongs to the Section Health Care Sciences)
  • Article
  • Open Access
11 Citations
6,593 Views
25 Pages

28 January 2019

Unpaid caregivers (CG) provide most of the assistance to persons with dementias (PWD) living in the community. This study explores the current state of knowledge regarding the concept of sense of coherence (SOC) and CG of PWD via a concept analysis....

  • Article
  • Open Access
12 Citations
3,823 Views
14 Pages

Assessing the Comprehensive Training Needs of Informal Caregivers of Cancer Patients: A Qualitative Study

  • Janet Papadakos,
  • Mohamed Ugas,
  • Naa Kwarley Quartey,
  • Christine (Tina) Papadakos and
  • Meredith Elana Giuliani

29 March 2023

Introduction: The increasing demand for cancer services is projected to overwhelm the cancer care system, leading to a potential shortfall in human resource capacity. Informal caregivers (unpaid family/friend caregivers of cancer patients) provide a...

(This article belongs to the Special Issue Optimizing Integrated Cancer Care from Diagnosis to Survivorship)
  • Article
  • Open Access
58 Citations
9,186 Views
30 Pages

Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers’ Lives

  • Pavel Schischlevskij,
  • Isabell Cordts,
  • René Günther,
  • Benjamin Stolte and ,
  • Daniel Zeller,
  • Carsten Schröter,
  • Ute Weyen,
  • Martin Regensburger,
  • Joachim Wolf and
  • Olivia Schreiber-Katz
  • + 23 authors+ 18 authors

Amyotrophic lateral sclerosis (ALS) is a fatal neurodegenerative disease that causes progressive autonomy loss and need for care. This does not only affect patients themselves, but also the patients’ informal caregivers (CGs) in their health, persona...

(This article belongs to the Special Issue Caregiver Burden in Movement Disorders and Neurodegenerative Diseases)
  • Article
  • Open Access
3 Citations
3,039 Views
24 Pages

11 November 2022

Background: Driving cessation is difficult for persons living with cognitive decline (PLWCD) and their caregivers (CG). Physicians are often required to notify authorities of driving risks, and typically base decisions on paper-based cognitive assess...

  • Article
  • Open Access
8 Citations
2,967 Views
17 Pages

Promoting Physical Activity in a Primary Care Practice in People Living with Dementia and Their Family Caregivers

  • Elena de Dios-Rodríguez,
  • Carmen Patino-Alonso,
  • Susana González-Sánchez,
  • Olaya Tamayo-Morales and ,
  • Joana Ripoll,
  • Sara Mora-Simón,
  • Jaime Unzueta-Arce,
  • Manuel A Gómez-Marcos,
  • Luis García-Ortiz and
  • Emiliano Rodríguez-Sánchez
  • + 5 authors+ 0 author

People living with dementia (PLWD) and their family caregivers report higher rates of having a sedentary lifestyle than their non-disabled peers do. This study analyzed the effectiveness of an intervention designed to increase physical activity among...

  • Article
  • Open Access
1,523 Views
13 Pages

Background: Parents of children with cancer often experience significant stressors that can heighten distress and impact overall well-being. Despite recommendations supporting distress screening for adult and pediatric patients with cancer, systemati...

(This article belongs to the Special Issue Quality of Life and Management of Pediatric Cancer)
  • Article
  • Open Access
11 Citations
4,266 Views
15 Pages

The role of informal caregiver of cancer patients is considered a situation of chronic stress that could have impact on cognitive functioning. Our aim was to evaluate differences in perceived stress, subjective memory complaints, self-esteem, and res...

(This article belongs to the Special Issue Wellness and Health Promotion)
  • Article
  • Open Access
14 Citations
4,260 Views
18 Pages

Analysis of the Components of a Cognitive-Behavioral Intervention for the prevention of Depression Administered via Conference Call to Nonprofessional Caregivers: A Randomized Controlled Trial

  • Fernando L. Vázquez,
  • Lara López,
  • Ángela J. Torres,
  • Patricia Otero and ,
  • Vanessa Blanco,
  • Olga Díaz and
  • Mario Páramo
  • + 2 authors+ 0 author

Effective and accessible interventions for indicated prevention of depression are necessary and lacking, especially for informal caregivers. Although telephone-based interventions could increase the accessibility for caregivers, randomized controlled...

  • Article
  • Open Access
8 Citations
3,776 Views
13 Pages

Neurophysiological and Psychometric Outcomes in Minimal Consciousness State after Advanced Audio–Video Emotional Stimulation: A Retrospective Study

  • Rosaria De Luca,
  • Paola Lauria,
  • Mirjam Bonanno,
  • Francesco Corallo and ,
  • Carmela Rifici,
  • Milva Veronica Castorina,
  • Simona Trifirò,
  • Antonio Gangemi,
  • Carmela Lombardo and
  • Rocco Salvatore Calabrò
  • + 7 authors+ 2 authors

22 November 2023

In the last ten years, technological innovations have led to the development of new, advanced sensory stimulation (SS) tools, such as PC-based rehabilitative programs or virtual reality training. These are meant to stimulate residual cognitive abilit...

(This article belongs to the Special Issue State of the Art in Disorders of Consciousness)
  • Article
  • Open Access
5 Citations
4,614 Views
41 Pages

17 January 2025

Society’s aging is a worldwide crisis that affects many countries, as the Older Adult (OA) population is growing faster than younger populations. With this, there are fewer caregivers (CGs), and more care receivers (CRs) exist. It is vital to u...

(This article belongs to the Special Issue Emerging Technologies for Assistive Robotics)
  • Article
  • Open Access
5 Citations
4,491 Views
17 Pages

Telepresence Robots in the Context of Dementia Caregiving: Caregivers’ and Care Recipients’ Perspectives

  • Shabnam FakhrHosseini,
  • Lauren Cerino,
  • Lisa D’Ambrosio,
  • Lexi Balmuth and ,
  • Chaiwoo Lee,
  • Mengke Wu and
  • Joseph Coughlin
  • + 2 authors+ 0 author

30 October 2024

As a result of a rapidly aging population and the increasing prevalence of dementia among older adults, technological solutions are increasingly being considered to facilitate caregiving. This research investigates the perspectives of 20 caregiving d...

(This article belongs to the Special Issue Social Robots for the Human Well-Being)
  • Article
  • Open Access
16 Citations
8,336 Views
9 Pages

Effect of a Music Therapy Intervention Using Gerdner and Colleagues’ Protocol for Caregivers and Elderly Patients with Dementia: A Single-Blind Randomized Controlled Study

  • Guido Edoardo D’Aniello,
  • Davide Maria Cammisuli,
  • Alice Cattaneo,
  • Gian Mauro Manzoni and ,
  • Enrico Molinari and
  • Gianluca Castelnuovo
  • + 1 author+ 0 author

Music therapy (MT) is considered one of the complementary strategies to pharmacological treatment for behavioral and psychological symptoms (BPSD) of dementia. However, studies adopting MT protocols tailored for institutionalized people with dementia...

(This article belongs to the Special Issue Personalized Nursing and Health Care)
  • Article
  • Open Access
15 Citations
3,896 Views
9 Pages

Effects of Phone-Based Psychological Intervention on Caregivers of Patients with Early-Onset Alzheimer’s Disease: A Six-Months Study during the COVID-19 Emergency in Italy

  • Manuela De Stefano,
  • Sabrina Esposito,
  • Alessandro Iavarone,
  • Michele Carpinelli Mazzi and ,
  • Mattia Siciliano,
  • Daniela Buonanno,
  • Danilo Atripaldi,
  • Francesca Trojsi and
  • Gioacchino Tedeschi
  • + 4 authors+ 0 author

24 February 2022

Caregivers of patients with early-onset Alzheimer’s disease (EOAD) experience higher level of burden, stress, and depression, due to premature role changes and social isolation. Moreover, the SARS-CoV-2 pandemic compelled restrictions regarding...

(This article belongs to the Special Issue COVID-19, Parkinson’s Disease and Other Neurodegenerative Disorders)
  • Article
  • Open Access
22 Citations
5,780 Views
24 Pages

Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers—A Prospective, Cross-Sectional, Multi-Center Analysis

  • Camilla Wohnrade,
  • Ann-Kathrin Velling,
  • Lucas Mix,
  • Claudia D. Wurster and ,
  • Isabell Cordts,
  • Benjamin Stolte,
  • Daniel Zeller,
  • Zeljko Uzelac,
  • Sophia Platen and
  • Olivia Schreiber-Katz
  • + 12 authors+ 7 authors

7 January 2023

Spinal muscular atrophy (SMA) is a disabling disease that affects not only the patient’s health-related quality of life (HRQoL), but also causes a high caregiver burden (CGB). The aim of this study was to evaluate HRQoL, CGB, and their predicto...

(This article belongs to the Section Sensory and Motor Neuroscience)
  • Article
  • Open Access
9 Citations
3,425 Views
24 Pages

Long-Term Effects of a Cognitive Behavioral Conference Call Intervention on Depression in Non-Professional Caregivers

  • Lara Lopez,
  • Fernando L. Vázquez,
  • Ángela J. Torres,
  • Patricia Otero and ,
  • Vanessa Blanco,
  • Olga Díaz and
  • Mario Páramo
  • + 2 authors+ 0 author

Recent evidence supports the efficacy of conference call cognitive–behavioral interventions in preventing depression in caregivers at post-intervention, but we do not know whether the results are sustained long term. The main objective of this...

(This article belongs to the Section Mental Health)
  • Article
  • Open Access
9 Citations
4,516 Views
15 Pages

Reduction in Epigenetic Age Acceleration Is Related to Empathy in Mothers with Neglectful Caregiving

  • Silvia Herrero-Roldán,
  • María José Rodrigo,
  • Juan A. Hernández-Cabrera,
  • Colter Mitchell and ,
  • Maykel López,
  • Julia Alcoba-Florez,
  • Jonah Fisher,
  • Fernanda Espinosa and
  • Inmaculada León
  • + 4 authors+ 0 author

21 October 2021

DNA methylation clocks are used as molecular estimators of epigenetic age, but with little evidence in mothers and none in neglectful mothering. We investigated differences in epigenetic age acceleration (EAA) and the role of empathy using the PhenoA...

(This article belongs to the Special Issue Neural and Epigenetic Factors in Parenting: Individual Differences and Dyadic Processes)
  • Review
  • Open Access
11 Citations
6,692 Views
26 Pages

Childhood obesity is considered a major public health problem. To help prevention and intervention programs targeting families with obese children, this paper is aimed at synthesizing multifactorial and transactional data resulting from studies and r...

(This article belongs to the Special Issue Attachment across the Lifespan: Challenges in the New Century)
  • Article
  • Open Access
20 Citations
3,735 Views
11 Pages

Nature-Based Virtual Reality Feasibility and Acceptability Pilot for Caregiver Respite

  • Mohammed Owayrif Alanazi,
  • Arienne Patano,
  • Gary Bente,
  • Andrew Mason and ,
  • Dawn Goldstein,
  • Sina Parsnejad,
  • Gwen Wyatt and
  • Rebecca Lehto
  • + 3 authors+ 0 author

22 June 2023

Home-based informal caregivers (CGs), such as the family members and friends of cancer patients, often suffer averse emotional symptoms, such as anxiety and depression, due to the burden associated with providing care. The natural environment has bee...

(This article belongs to the Special Issue Palliative Care and Supportive Medicine in Cancer)
  • Article
  • Open Access
4 Citations
4,036 Views
16 Pages

The aim of this study was to longitudinally examine mean length of utterance in words (MLU-w) and number of different words (NDW) and their association in children speaking Cypriot Greek (CG), a dialect for which such measures of language development...

  • Article
  • Open Access
7 Citations
3,709 Views
15 Pages

A Mobile Application for Enhancing Caregiver Support and Resource Management for Long-Term Dependent Individuals in Rural Areas

  • Niruwan Turnbull,
  • Chanaphol Sriruecha,
  • Ruchakron Kongmant,
  • Le Ke Nghiep and
  • Kukiat Tudpor

The “SmartCaregivers” 1.0 mobile application is a beacon of hope for caregivers (CG) in rural areas, often facing limited access to facilities and support. This study, conducted from February to August 2021, aimed to comprehensively analy...

(This article belongs to the Special Issue Mobile Technology-Based Interventions in Healthcare)
  • Article
  • Open Access
7 Citations
3,648 Views
14 Pages

Distinctive Frontal and Occipitotemporal Surface Features in Neglectful Parenting

  • Inmaculada León,
  • María José Rodrigo,
  • Ileana Quiñones,
  • Juan Andrés Hernández-Cabrera and
  • Lorna García-Pentón

Although the brain signatures of adaptive human parenting are well documented, the cortical features associated with maladaptive caregiving are underexplored. We investigated whether cortical thickness and surface area vary in a small group of mother...

(This article belongs to the Special Issue Neural and Epigenetic Factors in Parenting: Individual Differences and Dyadic Processes)
  • Article
  • Open Access
6 Citations
4,546 Views
17 Pages

Female caregivers of people with disabilities are burdened physically and mentally. To improve these symptoms, an intervention that is easy to apply and has fewer side effects, such as natural healing, has been proposed, but the effect of healing usi...

(This article belongs to the Section Sport and Health)
  • Article
  • Open Access
9 Citations
4,320 Views
12 Pages

Comparison of Physical Activity and Sedentary Behaviour between Schoolchildren with Cystic Fibrosis and Healthy Controls: A Gender Analysis

  • Alexandra Valencia-Peris,
  • Jorge Lizandra,
  • Irene Moya-Mata,
  • Fernando Gómez-Gonzalvo and ,
  • Silvia Castillo-Corullón and
  • Amparo Escribano
  • + 1 author+ 0 author

The purpose of this study was to examine differences in sports participation and the levels of physical activity (PA) and sedentary behaviour (SB) between schoolchildren with cystic fibrosis (CF) and a healthy control group (CG) taking into account t...

(This article belongs to the Special Issue Physical Activity and Socioenvironmental Factors in Students)
  • Article
  • Open Access
5 Citations
4,300 Views
11 Pages

A Pilot Study of the Effects of Individualized Home Dual Task Training by Mobile Health Technology in People with Dementia

  • Eduardo Villamil-Cabello,
  • Mercedes Meneses-Domínguez,
  • Ángela Fernández-Rodríguez,
  • Patricia Ontoria-Álvarez and ,
  • Alfonso Jiménez-Gutiérrez and
  • Miguel Fernández-del-Olmo
  • + 1 author+ 0 author

The objective of this pilot study was to evaluate the effects of dual-task training implemented by mobile health technology on performance on motor and dual-task tests in subjects with dementia. Nineteen subjects with a medical diagnosis of dementia...

(This article belongs to the Special Issue Health and Well-Being in Diverse Populations)
  • Article
  • Open Access
5 Citations
2,665 Views
11 Pages

Variations and Patterns in Sleep: A Feasibility Study of Young Carers in Families with ALS

  • Melinda S. Kavanaugh,
  • Kayla T. Johnson and
  • Matthew J. Zawadzki

29 September 2021

Introduction: Children and youth under the age of 19 provide daily care for family members living with illness, including Amyotrophic Lateral Sclerosis (ALS). Caregiving affects school performance, social support, stress, and anxiety. Yet, little is...

(This article belongs to the Section Clinical Neurology)
  • Article
  • Open Access
4 Citations
3,326 Views
14 Pages

Assessing Regional Weather’s Impact on Spinal Cord Injury Survivors, Caregivers, and General Public in Miami, Florida

  • Danielle Hildegard Bass,
  • Pardis Ghamasaee,
  • Gregory E. Bigford,
  • Mandeville Wakefield and ,
  • Lunthita M. Duthely and
  • Daniel Samano
  • + 1 author+ 0 author

(1) Background: Climate change is increasing the already frequent diverse extreme weather events (EWE) across geographic locations, directly and indirectly impacting human health. However, current ongoing research fails to address the magnitude of th...

(This article belongs to the Special Issue Spinal Cord Injury Rehabilitation, Treatment, and Health Related Quality of Life)
  • Article
  • Open Access
13 Citations
5,786 Views
24 Pages

A Patient-Centred Medical Home Care Model for Community-Dwelling Older Adults in Singapore: A Mixed-Method Study on Patient’s Care Experience

  • Mimaika Luluina Ginting,
  • Chek Hooi Wong,
  • Zoe Zon Be Lim,
  • Robin Wai Munn Choo and ,
  • Sheena Camilla Hirose Carlsen,
  • Grace Sum and
  • Hubertus Johannes Maria Vrijhoef
  • + 2 authors+ 0 author

Patient-Centred Medical Home (PCMH) is a strategy to enhance patient-centredness to improve care experience. We aimed to understand patient experience of an integrated PCMH model for complex community-dwelling older adults in Singapore. We used a mix...

(This article belongs to the Section Health Care Sciences & Services)
  • Article
  • Open Access
11 Citations
4,533 Views
13 Pages

Improving Early Diagnosis of Child Neglect for a Better Response in Healthcare Settings

  • Silvia Herrero-Roldán,
  • Inmaculada León,
  • Juan Andrés Hernández-Cabrera and
  • María José Rodrigo

27 September 2021

Early diagnosis of child neglect is an ongoing challenge with consequences of the child’s safety, health, and effective referral for intervention. This study aims to obtain a selected set of family, maternal, and dyadic variables of the immediate car...

(This article belongs to the Special Issue Adverse Childhood Experiences: Prevention, Intervention, and Access to Care)
  • Article
  • Open Access
5 Citations
4,974 Views
27 Pages

Background: Person-centered care (PCC) requires knowledge about patient preferences. This formative qualitative study aimed to identify (sub)criteria of PCC for the design of a quantitative, choice-based instrument to elicit patient preferences for p...

(This article belongs to the Special Issue Advances in Integrated Care Models)
  • Article
  • Open Access
2 Citations
4,224 Views
14 Pages

Background: Early rehabilitation is crucial for predicting post-stroke outcomes. In rural Thailand, previous works identified limited access to prompt rehabilitation services, discontinuity of home visits, and a lack of interdisciplinary management,...

(This article belongs to the Special Issue Rehabilitation Program for Orthopedic and Neurological Patients)