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854 Results Found

  • Article
  • Open Access
11 Citations
4,190 Views
14 Pages

6 October 2023

An estimated 6% of the world population has serious mental illness, with one in four families having a member with some form of psychiatric disorder, who is mostly cared for by their relatives within a family setting. Although care-giving in a home s...

  • Article
  • Open Access
23 Citations
4,953 Views
11 Pages

“I Am the Home Care Agency”: The Dementia Family Caregiver Experience Managing Paid Care in the Home

  • Jennifer M. Reckrey,
  • Deborah Watman,
  • Emma K. Tsui,
  • Emily Franzosa,
  • Sasha Perez,
  • Chanee D. Fabius and
  • Katherine A. Ornstein

As the locus of long-term care in the United States shifts from institutions to the community, paid caregivers (i.e., home health aides, personal care attendants) are providing more hands-on care to persons with dementia living at home. Yet, little i...

  • Article
  • Open Access
15 Citations
10,218 Views
16 Pages

Meanings and Experiences of End-of-Life Patients and Their Family Caregivers in Hospital-to-Home Transitions: A Constructivist Grounded Theory Study

  • Eleandro Prado,
  • Sonia Marcon,
  • Luciana Kalinke,
  • Marcelle da Silva,
  • Mayckel Barreto,
  • Angelica Takemoto,
  • Marcela Birolim and
  • Carlos Laranjeira

This study explored the meanings and experiences of patients with terminal chronic diseases and their caregivers, who face the imminence of death in the home environment after hospital discharge. The qualitative study used constructivist grounded the...

  • Article
  • Open Access
14 Citations
4,446 Views
16 Pages

Population aging has increased the demand for elderly care worldwide. The home-based elderly care system plays an important role in meeting this demand in developing countries. The quality of home-based elderly care is associated with the job satisfa...

  • Article
  • Open Access
2,824 Views
12 Pages

Home Caregivers of Elderly People: Perceptions and Quality of Life

  • Luís Eduardo Genaro,
  • José Victor Marconato,
  • Aylton Valsecki Júnior,
  • Tânia Adas Saliba and
  • Fernanda Lopez Rosell

Objective: In this study, we aimed to identify the main factors that influence the quality of life of caregivers in the context of home care for the elderly. Methodology: This is a mixed-methods study with a qualitative–quantitative approach, c...

  • Article
  • Open Access
1,109 Views
12 Pages

29 March 2025

Background: Children with medical complexity (CMC), a subset of children with special healthcare needs, have chronic conditions affecting multiple organ systems, require medical technology, and account for a significant share of pediatric healthcare...

  • Article
  • Open Access
8 Citations
4,136 Views
15 Pages

Evaluation of Reablement Home Care: Effects on Care Attendants, Care Recipients, and Family Caregivers

  • Yu-Hsien Chiang,
  • Hui-Chuan Hsu,
  • Chiung-Ling Chen,
  • Chen-Fen Chen,
  • Shu-Nu Chang-Lee,
  • Ya-Mei Chen and
  • Shang-Wei Hsu

Background: The traditional home care model entails caring “for” people with disabilities, not “with” them. Reablement care has been applied to long-term care, but the evidence for care attendants, home care recipients, and fa...

  • Article
  • Open Access
6 Citations
2,754 Views
15 Pages

Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy

  • Ciro De Vincenzo,
  • Ilenia Marian,
  • Silvia Piol,
  • Shoshi Keisari and
  • Ines Testoni

8 June 2023

Older adults and their family caregivers experience nursing home placement as a particularly critical time of life. The present study explored the experiences of family caregivers of nursing home residents taking part in a self-help group for caregiv...

  • Article
  • Open Access
9 Citations
5,741 Views
20 Pages

The quadruple burden of diseases, early discharge from hospital and hospital at home have resulted in home-based care services becoming a requirement in South Africa. These home-based care services generate a significant amount of health care risk wa...

  • Article
  • Open Access
744 Views
18 Pages

1 October 2025

Background/Objectives: In view of demographic change and the increase in chronic illnesses, home care poses a considerable challenge. Telemedical technologies offer considerable potential for improving the quality of care and relieving the burden on...

  • Article
  • Open Access
9 Citations
3,061 Views
18 Pages

25 September 2024

Background/Objectives: Given the increasing occurrence of long-term illnesses, it is imperative to focus on adequately preparing and assisting those who assume the responsibility of caregiving. Our study aims to explore whether caregivers feel prepar...

  • Review
  • Open Access
1,190 Views
18 Pages

5 September 2025

Background/Objectives: Home mechanical ventilation (HMV) is a therapeutic approach that enables individuals with chronic respiratory failure to be cared for in home settings, thereby improving their quality of life. However, it also imposes a substan...

  • Article
  • Open Access
20 Citations
4,419 Views
13 Pages

Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study

  • Isabella Capodanno,
  • Mirta Rocchi,
  • Rossella Prandi,
  • Cristina Pedroni,
  • Enrica Tamagnini,
  • Pierluigi Alfieri,
  • Francesco Merli and
  • Luca Ghirotto

The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies....

  • Article
  • Open Access
3 Citations
2,101 Views
11 Pages

Objective: This study explored the perspectives of being in a youth group home during the COVID-19 pandemic from youth residents, staff, and caregivers. Methods: We conducted semi-structured interviews with 9 youth residents, 8 group home staff membe...

  • Review
  • Open Access
164 Views
19 Pages

8 January 2026

Background/Objectives: Family members are the principal providers of home-based care for migrant older adults. Linguistic, cultural, and structural barriers within health systems exacerbate the caregiver burden across emotional, physical and financia...

  • Article
  • Open Access
2 Citations
1,268 Views
11 Pages

Background/Objectives: As a result of demographic change in Germany, the number of people in need of care is steadily increasing, with a correspondingly larger proportion of care being provided by family members at home. Family caregivers face signif...

  • Article
  • Open Access
4 Citations
3,281 Views
18 Pages

15 April 2024

The development of children’s digital literacy is essential in the 21st century. Digital technologies have been adopted by both parents and grandparents to enhance children’s quality of education, in accordance with the Sustainable Develo...

  • Article
  • Open Access
3 Citations
3,155 Views
25 Pages

17 December 2024

Informal dementia home caregiving is viewed negatively by society and can result in caregiver depression and anxiety from burnout, potentially compromising caregiving. Caregiver creation of a graphic memoir may help to mitigate the negative dementia...

  • Protocol
  • Open Access
7 Citations
6,454 Views
16 Pages

Previous research has proposed a range of support interventions to mitigate the adverse impact of caregiving on the daily life of caregivers of relatives with dementia. However, the effectiveness of these interventions shows a high variability. Infor...

  • Article
  • Open Access
4 Citations
2,133 Views
14 Pages

Caregivers’ Mastery in Handling Gastrostomy at Home after Educational Intervention: Qualitative Descriptive Study

  • Jeferson Moreira dos Santos,
  • Larissa Chaves Pedreira,
  • Roberta Pereira Góes,
  • Maria Antônia Alves de Souza,
  • Cristina Rosa Soares Lavareda Baixinho,
  • Johis Ortega,
  • Rosseirys Noelia De La Rosa,
  • Anderson Reis Sousa,
  • Valdenir Almeida da Silva and
  • Lélia Mendes Sobrinho de Oliveira
  • + 2 authors

29 October 2024

Background: Effective hospital discharge planning is crucial, particularly in educating caregivers on handling medical devices. This education helps manage the patient’s signs and symptoms, prevents post-discharge complications, and reduces ear...

  • Article
  • Open Access
263 Views
16 Pages

24 December 2025

Background: Malnutrition is common among older adults with cognitive impairment and contributes to frailty and poorer health outcomes. Many individuals with dementia require mealtime assistance, yet differences in caregiving practices across hospital...

  • Article
  • Open Access
8 Citations
4,863 Views
14 Pages

A Comprehensive Assessment of Informal Caregivers of Patients in a Primary Healthcare Home-Care Program

  • Virginia Rodrigo-Baños,
  • Marta del Moral-Pairada and
  • Luis González-de Paz

Studies of the characteristics of informal caregivers and associated factors have focused on care-receiver disease or caregiver social and psychological traits; however, an integral description may provide better understanding of informal caregivers’...

  • Article
  • Open Access
4 Citations
2,218 Views
13 Pages

Background: Information on how residents and their informal caregivers are involved in the medicines’ pathway in nursing homes is scarce. Likewise, it is not known how they would prefer to be involved therein. Methods: A generic qualitative stu...

  • Article
  • Open Access
2 Citations
1,838 Views
17 Pages

27 June 2024

This study utilized nationally approved data from the 2022 Long-Term Care Survey of Korea to examine the factors associated with career disruptions and employment status among family caregivers of home-based care recipients. Descriptive statistics, c...

  • Article
  • Open Access
2 Citations
2,584 Views
9 Pages

17 November 2024

Background/Objectives: Family members, often informal caregivers, play a crucial role in providing home care for stroke survivors. The period following discharge to home after receiving acute stroke management in a hospital includes the subacute phas...

  • Article
  • Open Access
10 Citations
5,353 Views
14 Pages

Patients’ and Caregivers’ Conceptualisations of Pressure Ulcers and the Process of Decision-Making in the Context of Home Care

  • Francisco José García-Sánchez,
  • Vicente Martínez-Vizcaíno and
  • Beatriz Rodríguez-Martín

Background: Although the addition of patients in the process of shared decision-making can improve their recovery, there is a lack of knowledge about patients’ and caregivers’ perceptions on the management of pressure ulcers at home. Obje...

  • Article
  • Open Access
2 Citations
2,772 Views
16 Pages

On 28 September 2022, Hurricane Ian pummeled parts of south Florida. Disaster and climate change research has shown that disasters exacerbate inequalities, especially amongst older and physically vulnerable people. Florida has a large population of V...

  • Study Protocol
  • Open Access
4 Citations
2,692 Views
7 Pages

23 December 2022

The WHO has been promoting the paradigm shift in health care towards person-centered care, considering this strategy as fundamental for the personalization of care, but globally, the implementation of person-centered health intervention programs is s...

  • Article
  • Open Access
8 Citations
3,170 Views
22 Pages

Background: Self-efficacy (SE) can be used to explain informal caregivers’ ability to cope with the challenges of caregiving. Although SE impacts informal caregivers’ subjective well-being, its effects have not yet been studied from the p...

  • Review
  • Open Access
258 Views
25 Pages

Home Visiting Interventions and Their Impact on Mental Health, Psychosocial, and Parenting Practice Outcomes of Vulnerable Caregivers: A Systematic Review and Meta-Analysis

  • Sara Cibralic,
  • Wengtong Wu,
  • Bright Opoku Ahinkorah,
  • Christa Lam-Cassettari,
  • Susan Woolfenden,
  • Jane Kohlhoff,
  • Rebekah Grace,
  • Lynn Kemp,
  • Patrice Johnson and
  • Valsamma Eapen
  • + 2 authors

Past reviews have found home visiting interventions to be successful at improving caregiver outcomes. Though, no review has looked specifically at the effect of home visiting interventions on caregivers with high vulnerability and complex needs. This...

  • Article
  • Open Access
9 Citations
4,534 Views
18 Pages

Beliefs about Polypharmacy among Home-Dwelling Older Adults Living with Multiple Chronic Conditions, Informal Caregivers and Healthcare Professionals: A Qualitative Study

  • Marion Bieri,
  • María del Río Carral,
  • Marie Santiago-Delefosse,
  • Giorgia Miano,
  • Fanny Rosset,
  • Henk Verloo and
  • Filipa Pereira

13 September 2021

Although home-dwelling older adults are frequently assisted with polypharmacy management by their informal caregivers, they can still face medication-related problems. Identifying older adults’ and their informal caregivers’ beliefs about medication...

  • Article
  • Open Access
13 Citations
4,707 Views
15 Pages

Effects of a Home-Based Exercise Program on Health-Related Quality of Life and Physical Fitness in Dementia Caregivers: A Randomized Controlled Trial

  • Josué Prieto-Prieto,
  • Miguel Madruga,
  • José Carmelo Adsuar,
  • José Luis González-Guerrero and
  • Narcís Gusi

Regular exercise can be an effective health-promotion strategy to improve the physical and mental health of informal caregivers. A randomized controlled trial study was designed to evaluate the effects of a 9-month home-based exercise intervention on...

  • Article
  • Open Access
9 Citations
4,115 Views
21 Pages

31 May 2022

Safe medication management is particularly challenging among polymedicated home-dwelling older adults after hospital discharge. This study aimed to identify and categorise the stressors experienced and reconstitution strategies adopted by older adult...

  • Article
  • Open Access
7 Citations
4,890 Views
16 Pages

Personal support workers (PSW) are caregivers for children and adults with intellectual and developmental disabilities (IDDs) or adults experiencing mental illness or other behavioral health conditions. The work can be very meaningful, but many PSWs...

  • Article
  • Open Access
14 Citations
4,189 Views
18 Pages

Challenges Experienced by Italian Nursing Home Staff in End-of-Life Conversations with Family Caregivers during COVID-19 Pandemic: A Qualitative Descriptive Study

  • Silvia Gonella,
  • Paola Di Giulio,
  • Alexandra Antal,
  • Nicola Cornally,
  • Peter Martin,
  • Sara Campagna and
  • Valerio Dimonte

End-of-life conversations are among the most challenging of all communication scenarios and on the agenda of several healthcare settings, including nursing homes (NHs). They may be also difficult for experienced healthcare professionals (HCPs). This...

  • Article
  • Open Access
24 Citations
4,915 Views
19 Pages

We surveyed 604 family caregivers residing in the province of Alberta to better understand the impact of the COVID-19 pandemic on anxiety, loneliness, and care work. We assessed anxiety with the Six-Item State Anxiety Scale and loneliness with the De...

  • Article
  • Open Access
2 Citations
4,364 Views
19 Pages

Regarding long-term home care needs, nurses need to communicate effectively and reasonably when teaching home caregivers. Designers can assist medical staff and develop pictorial tools to enhance communication. The purpose of this study is to explore...

  • Article
  • Open Access
12 Citations
4,188 Views
14 Pages

Factors Related to Family Caregivers’ Readiness for the Hospital Discharge of Advanced Cancer Patients

  • Ru-Yu Huang,
  • Ting-Ting Lee,
  • Yi-Hsien Lin,
  • Chieh-Yu Liu,
  • Hsiu-Chun Wu and
  • Shu-He Huang

Background: Many family caregivers of advanced cancer patients worry about being unable to provide in-home care and delay the discharge. Little is known about the influencing factors of discharge readiness. Methods: This study aimed to investigate th...

  • Article
  • Open Access
15 Citations
3,835 Views
10 Pages

Effect of Self-Chosen Music in Alleviating the Burden on Family Caregivers of Patients with Advanced Cancer: A Randomised Controlled Trial

  • Inmaculada Valero-Cantero,
  • Cristina Casals,
  • Milagrosa Espinar-Toledo,
  • Francisco Javier Barón-López,
  • Francisco Javier Martínez-Valero,
  • Nuria García-Agua Soler and
  • María Ángeles Vázquez-Sánchez

The experience of caregiver burden among family members of patients with advanced cancer is a common problem. The aim of this study was to determine whether the burden may be alleviated by means of a therapeutic approach based on self-chosen music. T...

  • Article
  • Open Access
6 Citations
3,745 Views
11 Pages

Communication on Safe Caregiving between Community Nurse Case Managers and Family Caregivers

  • María Eulalia Macías-Colorado,
  • Margarita Rodríguez-Pérez,
  • María Jesús Rojas-Ocaña and
  • Cristina Teresa-Morales

14 February 2021

Dependent elderly individuals are usually cared for at home by untrained family members who are unaware of the risks involved. In this setting, communication on safe caregiving is key. The aim of this study is to describe the factors influencing the...

  • Review
  • Open Access
1,709 Views
15 Pages

Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review

  • Ana Rita Bento,
  • Ana Rita Duque,
  • Nelson Gonçalves,
  • Paulo Vaz,
  • Susana Calção,
  • Vanessa Benedito,
  • Rogério Ferreira,
  • César Fonseca and
  • Celso Silva

Background: The aging population is increasing, leading to a greater need for home care for older adults, often provided by informal caregivers (ICs). These caregivers face numerous challenges, requiring adequate training and support. Objectives: Thi...

  • Feature Paper
  • Article
  • Open Access
3 Citations
4,381 Views
11 Pages

Stress in Caregivers and Children with a Developmental Disorder Who Receive Rehabilitation

  • Sung Hyun Kim,
  • In Young Sung,
  • Eun Jae Ko,
  • Jieun Park and
  • Nayoung Heo

15 September 2020

This study aimed to evaluate the stress levels of caregivers and children with developmental disorders who were receiving rehabilitation treatment. The relationships between stress levels and factors such as early rehabilitation and home rehabilitati...

  • Article
  • Open Access
6 Citations
5,626 Views
19 Pages

21 July 2017

Informal caregivers provide the majority of care for older adults residing in their own homes. Caregivinghood, a new evidence-based concept, describes a time of life when relatives provide care at home. These caregivers need knowledge regarding resou...

  • Article
  • Open Access
2 Citations
5,130 Views
19 Pages

There are many children with disabilities who need specialised devices to communicate and to be understood, which poses an added challenge for their caregivers. This study aims to diagnose the training needs of informal caregivers concerning high-tec...

  • Review
  • Open Access
8 Citations
9,684 Views
13 Pages

Occupational Therapy Interventions for Dementia Caregivers: Scoping Review

  • Alberto Martínez-Campos,
  • Laura-María Compañ-Gabucio,
  • Laura Torres-Collado and
  • Manuela Garcia-de la Hera

14 September 2022

Background and purpose: caregivers of people with dementia (PwD) often experience a significant caregiver burden. Occupational Therapy (OT) is a helpful discipline for improving quality of life and other health factors for these caregivers. We conduc...

  • Article
  • Open Access
1 Citations
3,196 Views
16 Pages

Background/Objectives: Lower-limb amputation profoundly affects individuals and their family caregivers, particularly during home transition after hospital discharge. Understanding the needs, challenges, and emotions during this period is essential f...

  • Article
  • Open Access
2,853 Views
11 Pages

The Revised Memory and Behavior Problems Checklist for Nursing Homes: Validation among Different Spanish Territories

  • Cristina Velasco,
  • Javier López,
  • Gema Pérez-Rojo,
  • Cristina Noriega and
  • José Ángel Martínez-Huertas

8 February 2022

Memory and behavioral difficulties among older people living in nursing homes can cause burden and other consequences in professional caregivers. There is a lack of instruments that evaluate these behaviors and their influence in formal caregivers. T...

  • Article
  • Open Access
9 Citations
8,531 Views
15 Pages

Caregivers’ Role in the Effectiveness of Two Dutch School-Based Nutrition Education Programmes for Children Aged 7–12 Years Old

  • Angeliek Verdonschot,
  • Emely de Vet,
  • Natalie van Seeters,
  • Jolieke Warmer,
  • Clare E. Collins,
  • Tamara Bucher and
  • Annemien Haveman-Nies

1 January 2021

Childhood eating behaviours can track into adulthood. Therefore, programmes that support early healthy eating, including school-based nutrition education programmes, are important. Although school-based programmes may be beneficial in improving nutri...

  • Article
  • Open Access
2 Citations
1,938 Views
13 Pages

What Self-Management Skills Do Turkish Caregivers Have in Caring for People with Dementia? Results of a Qualitative Survey

  • Yüce Yilmaz-Aslan,
  • Kübra Annac,
  • Tugba Aksakal,
  • Hüriyet Yilmaz,
  • Sibille Merz,
  • Diana Wahidie,
  • Oliver Razum,
  • Patrick Brzoska and
  • Hürrem Tezcan-Güntekin

Family caregivers can be overwhelmed by the care they provide within the family without external support. The development of self-management skills and the associated ability to actively and responsibly manage one’s own health or illness situat...

  • Brief Report
  • Open Access
1 Citations
3,227 Views
9 Pages

Hospice Caregivers’ Perception of Family and Non-Family Social Support and Stress over Time: Associations with Reports of General Support

  • Maija Reblin,
  • Djin L. Tay,
  • Eli Iacob,
  • Kristin G. Cloyes,
  • Megan C. Thomas Hebdon and
  • Lee Ellington

Social support has been identified as a key factor to protect wellbeing for home hospice cancer caregivers. However, few studies have assessed social support over time in this context, and measures of support are often limited to general assessments...

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