Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. Inclusion and Exclusion Criteria
2.3. Search Strategy
2.4. Study Selection Process
2.5. Quality Assessment of the Studies
2.6. Data Extraction
3. Results
4. Discussion
- -
- Family helpers/geriatric assistants/direct action helpers: these are professionals (albeit with different levels of training) who work in home care services, nursing homes or other institutions, and are paid for their services.
- -
- Home care nurses, home care physiotherapists, family doctors: these are health professionals with university or technical training who provide specific health care and are paid for it.
5. Conclusions
6. Study Limitations
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
IC | Informal Caregiver |
JBI | Joanna Briggs Institute |
RNS | Rehabilitation Nursing Specialist |
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Reference | Objectives | Methodology | Results |
---|---|---|---|
[26] | To evaluate the effects of a rehabilitation nursing program on the training of informal caregivers in the self-care of the elderly dependent due to stroke at home. | Quasi-experimental study. The sample consisted of 15 informal caregivers from a Community Care Unit in northern Portugal. The variables assessed before and after the implementation of the program were as follows: caring for personal hygiene, transferring, positioning, providing technical aids, using the toilet, feeding/hydrating and dressing/undressing. The program included six contacts based on teaching, instruction and skills training. Data collection instruments used: the Informal Caregiver Characterization Form and the Informal Caregiver Capacities Scale for Elderly Dependent on Stroke. Keywords: caregivers, stroke, elderly, self-care, rehabilitation nursing. | Most of the caregivers in the sample were women and on average 59.9 years old. In all areas of self-care, there was an improvement in their ability after the intervention, and it was more significant in those which initially presented greater difficulty: dressing/undressing, transferring, positioning. The rehabilitation nursing program favorably influenced the training of informal caregivers for self-care of the elderly dependent on stroke at home. This research provides support to health teams for meaningful clinical practice for populations, corroborating the fundamental role of individualized intervention by rehabilitation nurses. |
[27] | To evaluate the contribution of a training program, applied by Specialists in in Rehabilitation Nursing, to informal caregivers to address body balance in the dependent person in a home context. | Quasi-experimental, single-group, longitudinal study with observation before and after the training program, in a home visit context, with the application of a program divided into six sessions. This was a non-probabilistic, convenience sample with 10 informal caregivers and their dependent loved ones. A sociodemographic form was used to collect the data, a search in the patient’s computerized clinical file was conducted, and an observation grid was drawn up for the purpose, using the Tinetti Test scale and the Barthel Index. Keywords: rehabilitation nursing, postural balance, informal caregiver, training, elderly. | The study highlights that training informal caregivers can result in significant improvements in the balance and autonomy of dependent people at home. It showed that, after the EER intervention, informal caregivers acquired theoretical and practical knowledge about body balance, and the patients showed significant average gains in balance and autonomy. This suggests that people with a high degree of dependency can benefit from basic care related to static sitting balance, provided their caregivers are trained to do so. The results of the study reinforce the importance of thinking about and implementing more advanced Rehabilitation Nursing programs and/or programs with higher objectives, to be developed in the context of home visits, thus contributing to the training of the informal caregiver and health gains for the dependent person. |
[28] | To describe the process of developing a massive, open, online course for informal caregivers of elderly people with a medical diagnosis of stroke. | Experience report for the construction and development of a massive, open and online course for informal caregivers of elderly people who have suffered a stroke admitted to a hospital in southern Brazil, written by nurses and a digital programmer. Keywords: educational technology, nursing education, stroke. | The process of developing a massive, open and online course requires a team with expertise in different areas (nursing and digital). The course had a positive preliminary evaluation from the target audience (three informal caregivers) regarding its content and functionality and represents an important advance for nursing in the construction of digital educational technologies. They recommend the development of further courses to assess their accessibility and functionality with a larger audience. |
[29] | To assess the difficulties faced by informal caregivers in caring for dependent people and to identify variables that predict these difficulties. | This is an observational, cross-sectional, descriptive–correlational and quantitative study that used a non-probabilistic convenience sample of 119 ICs from the Central Region of Portugal. The measuring instrument used included a sociodemographic data sheet and an Informal Caregiver Difficulties Assessment Scale (EADCI). Key words: caregiver, learning disabilities, home patients, rehabilitation nursing. | The authors observed difficulties, especially in the dimensions of self-care and activities of daily living. Difficulties are more pronounced among caregivers of people with severe dependence, older caregivers and those who face architectural barriers at home. The predictive variables thus identified were the degree of functional dependence of the dependent person, the age of the caregiver, and the existence of architectural barriers in the home. Informal caregivers present difficulties at various levels of care, highlighting the need to implement new strategies to respond to these challenges. |
[30] | To determine whether the involvement of the caregiver in hospital or after discharge can increase the functional performance of the elderly. The secondary objective was to determine whether the involvement of the caregiver can influence the quality of life of the patient and the caregiver. | Systematic review with narrative synthesis. MEDLINE, Embase, CINAHL, Cochrane and Web of Science databases were searched for (quasi-)experimental and observational studies, with the following inclusion criteria: caregiver involvement in functional functional performance, average age over 65, admitted to a hospital unit and subsequently discharged to their home environment. Key words: caregiver involvement, older adults, functional performance, hospitalization, physiotherapy. | Three types of interventions for caregivers could be distinguished: a care pathway (inclusion of caregivers in the care process), stroke education and teaching of bedside management skills, and exercises mediated by the caregiver. The only study that evaluated the care pathway recorded 24.9% more returns home in the intervention group. The studies that evaluated the effect of education and teaching bedside handling skills reported higher levels of efficacy for various outcomes as the frequency of sessions increased. All studies with caregiver-mediated exercises showed beneficial effects on functional performance immediately after the intervention and at 3-month follow-up. |
[31] | To explore the relationship between the variables “severity of disability”, “social support” and “caregiver competence”, and the quality of home care in a population of elderly Kazakh people in a rural area of China. | This was a cross-sectional study of 335 disabled elderly people and their main informal caregivers. The severity of the disability was assessed using the Activities of Daily Living Scale (Katz Index). Caregiver competence was assessed using the Family Caregiver Task Inventory. Social support was assessed using the Social Support Rating Scale. The quality of home care was assessed using the Family Caregiver Consequences Inventory Scale. Keywords: structural equation model, severity of disability, quality of home care, elderly Kazahk population with disabilities, primary family caregiver. | It was shown that the severity of the disability had a direct effect of 29.28% on the quality of home care and an indirect effect of 70.72% through social support and caregiver competence. The results confirm that the better the social support and the competence of the caregiver, the better the quality of home care available to elderly people with disabilities. Policymakers should prioritize improving the quality of care provided to older people with severe disabilities. Health care management departments should provide training for informal caregivers to improve their knowledge and skills in health care and rehabilitation. |
[32] | This study has two main objectives:
Secondary objectives:
| Dementia; neuropsychological behaviors; family caregiving; activities; occupational therapy; psychosocial intervention. A total of 30 ADS sites in the United States and 300 family caregivers. Hybrid design involving a two-group clinical trial to evaluate the program’s effectiveness. Mixed methodologies to evaluate the program’s implementation processes. | Caring for an individual living with dementia can put caregivers at risk of depression, burnout, health problems, and financial burdens. Most caregivers take on responsibilities without access to education about the disease or the skills needed to manage the challenges of caregiving. Expanding existing community-based resources, such as adult day centers, with evidence-based programs designed to support family members in their caregiving efforts is a promising approach. The ADS Plus program is tailored to the caregiver’s needs. In the program, the caregiver initially identifies three to five problem areas they want to address. Over 12 months, caregivers learn a specific approach to managing challenges. ADS Plus also provides ongoing education about dementia, referrals, and connections (if needed) to address unmet needs, as well as a prescription for each problem area. These “prescriptions” offer specific strategies for dealing with a challenge identified by the caregiver. The strategies provided include communication, task simplification, environmental adjustments, and self-care. If ADS Plus proves effective, it suggests that expanding services for older adults could be a potential model for scaling up support programs for caregivers. The importance of this trial is underscored by the high rates of depression among dementia caregivers, the projected increase in new dementia cases in the coming decades, and the critical role that community programs, such as adult day services, play in supporting families living with dementia. |
RNS Interventions | |
---|---|
Teaching about transfers and positioning | Balance and mobility training |
Teaching about the administration of medication, control of chronic diseases and prevention of complications | Promoting appropriate physical activities |
Home’s assessment and identification of architectural barriers that may disturb care and mobility | Implement training courses to empower ICs |
Recommendations on home adaptations, such as the installation of support bars and articulated beds | Promoting access to and use of appropriate technologies and devices |
Emotional support in relation to falls and encouraging autonomy | Encouraging participation in existing support groups and family networks |
Regular evaluation of the care provided by the IC | Adjust IC training according to needs and difficulties |
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Bento, A.R.; Duque, A.R.; Gonçalves, N.; Vaz, P.; Calção, S.; Benedito, V.; Ferreira, R.; Fonseca, C.; Silva, C. Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review. Int. J. Environ. Res. Public Health 2025, 22, 971. https://doi.org/10.3390/ijerph22070971
Bento AR, Duque AR, Gonçalves N, Vaz P, Calção S, Benedito V, Ferreira R, Fonseca C, Silva C. Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review. International Journal of Environmental Research and Public Health. 2025; 22(7):971. https://doi.org/10.3390/ijerph22070971
Chicago/Turabian StyleBento, Ana Rita, Ana Rita Duque, Nelson Gonçalves, Paulo Vaz, Susana Calção, Vanessa Benedito, Rogério Ferreira, César Fonseca, and Celso Silva. 2025. "Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review" International Journal of Environmental Research and Public Health 22, no. 7: 971. https://doi.org/10.3390/ijerph22070971
APA StyleBento, A. R., Duque, A. R., Gonçalves, N., Vaz, P., Calção, S., Benedito, V., Ferreira, R., Fonseca, C., & Silva, C. (2025). Interventions by Rehabilitation Nurse Specialists in the Training of Informal Carers of Older People at Home with Chronic Diseases: A Scoping Review. International Journal of Environmental Research and Public Health, 22(7), 971. https://doi.org/10.3390/ijerph22070971