Patients’ and Caregivers’ Conceptualisations of Pressure Ulcers and the Process of Decision-Making in the Context of Home Care
Abstract
:1. Introduction
2. Materials and Methods
2.1. Design
2.2. Sample and Data Collection
2.3. Ethical Issues
2.4. Data Analysis
2.5. Validity
3. Results
3.1. Facilitating Elements for the Process of Shared Decision Making in the Home Care of Pressure Ulcers
3.1.1. Involvement of Primary Care Professionals
3.1.2. Closeness and Trust
3.1.3. The Attitude of Professionals Regarding Their Open-Mindedness to the Opinions of Patients and Family Members
3.1.4. Personal Motivation
3.1.5. Positive Feelings Associated with Involvement in the Process of Decision Making
3.1.6. Wellbeing
3.1.7. Peace of Mind
3.1.8. Feelings of Productivity
3.1.9. Willingness to Participate in the Drafting of Clinical Practice Guidelines
3.2. Barriers for the Process of Shared Decision Making in the Home Care of People with Pressure Ulcers
3.2.1. Limitations Related to Participants’ Personal Factors
3.2.2. Advanced Age
3.2.3. Disabling Pathology
3.2.4. Low Educational Level
3.2.5. Influence of the Paternalistic Model of Organisation of Care
4. Discussion
Strengths and Limitations of the Study
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Conflicts of Interest
References
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P/CP | Sex | Age | Pressure Ulcer (PU) Category | Location of PU | Evolution of PU in Days |
---|---|---|---|---|---|
P1 | Female | 48 | 3 | Heel | 365 |
P2 | Female | 60 | 2 | Sacrum | 180 |
P3 | Male | 74 | 2 | Heel | 270 |
P4 | Male | 93 | 2 | Toes | 90 |
P5 | Male | 63 | 4 | Heel | 120 |
P6 | Female | 88 | 2 | Sacrum | 180 |
P7 | Female | 75 | 2 | Other | 120 |
P8 | Female | 90 | 3 | Heel | 450 |
P9 | Female | 81 | 2 | Sacrum | 90 |
P10 | Male | 85 | 2 | Heel | 90 |
CP1 | Female | 57 | 2 | Heel | 450 |
CP2 | Female | 28 | 3 | Sacrum | 180 |
CP3 | Female | 74 | 4 | Sacrum | 450 |
CP4 | Female | 70 | 3 | Sacrum | 545 |
CP5 | Female | 35 | 2 | Trochanter | 180 |
CP6 | Female | 68 | 2 | Heel | 270 |
CP7 | Female | 89 | 3 | Toes | 90 |
CP8 | Female | 23 | 2 | Trochanter | 730 |
CP9 | Female | 63 | 2 | Heel | 120 |
CP10 | Male | 68 | 3 | Sacrum | 730 |
CP11 | Male | 55 | 3 | Sacrum | 180 |
CP12 | Female | 65 | 4 | Sacrum | 90 |
CP13 | Male | 82 | 2 | Trocanter | 365 |
CP14 | Male | 87 | 4 | Sacrum | 90 |
CP15 | Male | 85 | 3 | Sacrum | 550 |
Variables | Men | Women | |
---|---|---|---|
Age | 45–65 years | 1 | 2 |
66–85 years | 2 | 2 | |
>86 years | 1 | 2 | |
Civil status | Single | 1 | 0 |
Married | 3 | 4 | |
Widow | 0 | 2 | |
Level of studies | Primary studies | 4 | 5 |
University studies | 0 | 1 | |
Pressure ulcer (PU) category according to the European Pressure Ulcer Advisory Panel (EPUAP) classification | 2 | 2 | 4 |
3 | 0 | 2 | |
4 | 2 | 0 | |
Location of PU | Sacrum | 0 | 3 |
Heels | 3 | 2 | |
Toes | 1 | 0 | |
Other sites | 0 | 1 | |
Place where PU developed | Hospital | 1 | 3 |
Home | 3 | 3 | |
Evolution of PU in days | ≤90 days | 2 | 1 |
91–180 days | 1 | 3 | |
181–365 days | 1 | 1 | |
>365 days | 0 | 1 | |
Pain according to the numerical pain rating scale * | 7 | 1 | 2 |
8 | 1 | 2 | |
9 | 0 | 2 | |
10 | 2 | 0 |
Variables | Men | Women | |
---|---|---|---|
Age of caregivers | 25–45 years | 0 | 3 |
46–65 years | 1 | 3 | |
66–85 years | 4 | 3 | |
>85 years | 0 | 1 | |
Civil status of caregiver | Single | 1 | 3 |
Married | 1 | 4 | |
Widow | 3 | 3 | |
Relationship with the patient | Spouse | 3 | 3 |
Son/daughter | 2 | 4 | |
Grandchild | 0 | 1 | |
Sibling | 0 | 1 | |
Neighbour | 0 | 1 | |
Caregiver’s level of studies | Primary education | 5 | 7 |
Secondary education | 0 | 1 | |
University studies | 0 | 2 | |
Caregiver’s work status | Unemployed | 1 | 1 |
Housework | 0 | 2 | |
Employed outside the home | 0 | 3 | |
Retired | 4 | 4 |
|
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García-Sánchez, F.J.; Martínez-Vizcaíno, V.; Rodríguez-Martín, B. Patients’ and Caregivers’ Conceptualisations of Pressure Ulcers and the Process of Decision-Making in the Context of Home Care. Int. J. Environ. Res. Public Health 2019, 16, 2719. https://doi.org/10.3390/ijerph16152719
García-Sánchez FJ, Martínez-Vizcaíno V, Rodríguez-Martín B. Patients’ and Caregivers’ Conceptualisations of Pressure Ulcers and the Process of Decision-Making in the Context of Home Care. International Journal of Environmental Research and Public Health. 2019; 16(15):2719. https://doi.org/10.3390/ijerph16152719
Chicago/Turabian StyleGarcía-Sánchez, Francisco José, Vicente Martínez-Vizcaíno, and Beatriz Rodríguez-Martín. 2019. "Patients’ and Caregivers’ Conceptualisations of Pressure Ulcers and the Process of Decision-Making in the Context of Home Care" International Journal of Environmental Research and Public Health 16, no. 15: 2719. https://doi.org/10.3390/ijerph16152719