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78 Results Found

  • Article
  • Open Access
4 Citations
2,709 Views
14 Pages

Association between Inappropriate End-of-Life Cancer Care and Specialist Palliative Care: A Retrospective Observational Study in Two Acute Care Hospitals

  • Manon S. Boddaert,
  • Heidi P. Fransen,
  • Ellen J. M. de Nijs,
  • Dagmar van Gerven,
  • Leontine E. A. Spierings,
  • Natasja J. H. Raijmakers and
  • Yvette M. van der Linden

8 February 2024

A substantial number of patients with life-threatening illnesses like cancer receive inappropriate end-of-life care. Improving their quality of end-of-life care is a priority for patients and their families and for public health. To investigate the a...

  • Article
  • Open Access
8 Citations
15,940 Views
22 Pages

16 January 2023

This paper is written from the perspective of a specialist religious and spiritual care practitioner who practises in major referral hospitals in Sydney, Australia. In these hospitals, religious care and ward-based spiritual care chaplaincy services...

  • Editorial
  • Open Access
14 Citations
4,478 Views
8 Pages

Specialist Palliative Care for Patients with Cancer: More Than End-of-Life Care

  • Craig Gouldthorpe,
  • Jenny Power,
  • Amy Taylor and
  • Andrew Davies

9 July 2023

Palliative care has traditionally focused on end-of-life care for patients with advanced cancer. This has since expanded to include symptom management and quality-of-life improvement from the moment of cancer diagnosis. Specialist palliative care tea...

  • Article
  • Open Access
7 Citations
5,525 Views
13 Pages

Symptom relief is fundamental to palliative care. Aboriginal and Torres Strait Islander (Indigenous) Australians are known to experience inequities in health care delivery and outcomes, but large-scale studies of end-of-life symptoms in this populati...

  • Article
  • Open Access
9 Citations
3,854 Views
16 Pages

Validation Study of the PALCOM Scale of Complexity of Palliative Care Needs: A Cohort Study in Advanced Cancer Patients

  • Margarita Viladot,
  • Jose-Luís Gallardo-Martínez,
  • Fany Hernandez-Rodríguez,
  • Jessica Izcara-Cobo,
  • Josep Majó-LLopart,
  • Marta Peguera-Carré,
  • Giselle Russinyol-Fonte,
  • Katia Saavedra-Cruz,
  • Carmen Barrera and
  • Albert Tuca
  • + 14 authors

20 August 2023

Background: In a patient-centred model of care, referral to early palliative care (EPC) depends on both the prognosis and the complexity of care needs. The PALCOM scale is a 5-domain multidimensional assessment tool developed to identify the level of...

  • Feature Paper
  • Article
  • Open Access
7 Citations
7,126 Views
10 Pages

16 February 2016

The aim of this research study was to gain an understanding of nurses’ experiences of providing care to patients from minority ethnic groups within the specialist palliative care inpatient unit of an Irish hospice. Five nurses working in a hospice in...

  • Article
  • Open Access
2 Citations
2,024 Views
10 Pages

Prognosis Discussion and Referral to Community Palliative Care Services in Patients with Advanced Pancreatic Cancer Treated in a Tertiary Cancer Centre

  • Sarah Clelland,
  • Christina L. Nuttall,
  • Helen E. Stott,
  • Joseph Cope,
  • Natalie L. Barratt,
  • Kelly Farrell,
  • Manyi V. Eyong,
  • Jack P. Gleeson,
  • Angela Lamarca and
  • Mairéad G. McNamara
  • + 2 authors

23 October 2023

Advanced pancreatic cancer is associated with a poor prognosis, often less than 1 year. Honest prognosis discussions guide early community palliative care services input, facilitating timely advance care planning and improving quality of life. The ai...

  • Article
  • Open Access
7 Citations
2,405 Views
12 Pages

Specialist Palliative Care Consultations in COVID-19 Patients in the ICU—A Retrospective Analysis of Patient Characteristics and Symptoms at a German University Hospital

  • Theresa Tenge,
  • Sebastian Brimah,
  • Daniel Schlieper,
  • Antje Roesel,
  • Jacqueline Schwartz,
  • Manuela Schallenburger,
  • Stefan Meier,
  • Timo Brandenburger,
  • Detlef Kindgen-Milles and
  • Martin Neukirchen
  • + 1 author

7 October 2022

COVID-19 patients who may require invasive therapeutic procedures such as extracorporeal membrane oxygenation (ECMO) have high symptom burden and in-hospital mortality. In addition, awake patients on ECMO are new in the intensive care unit (ICU) sett...

  • Article
  • Open Access
6 Citations
2,749 Views
19 Pages

Evolution of Complexity of Palliative Care Needs and Patient Profiles According to the PALCOM Scale (Part Two): Pooled Analysis of the Cohorts for the Development and Validation of the PALCOM Scale in Advanced Cancer Patients

  • Albert Tuca,
  • Margarita Viladot,
  • Gemma Carrera,
  • Lucia Llavata,
  • Carmen Barrera,
  • Manoli Chicote,
  • Javier Marco-Hernández,
  • Joan Padrosa,
  • Carles Zamora-Martínez and
  • Elena Font
  • + 3 authors

29 April 2024

Introduction: Identifying the complexity of palliative care needs is a key aspect of referral to specialized multidisciplinary early palliative care (EPC) teams. The PALCOM scale is an instrument consisting of five multidimensional assessment domains...

  • Article
  • Open Access
6 Citations
2,739 Views
14 Pages

The Impact of the SARS-CoV-2 Pandemic on the Needs of Non-Infected Patients and Their Families in Palliative Care—Interviews with Those Concerned

  • Christina Gerlach,
  • Anneke Ullrich,
  • Natalie Berges,
  • Claudia Bausewein,
  • Karin Oechsle,
  • Farina Hodiamont and
  • on behalf of the PallPan Study Group

3 July 2022

During humanitarian crises, such as a pandemic, healthcare systems worldwide face unknown challenges. This study aimed to explore and describe the effect of the SARS-CoV-2 pandemic on the needs of non-infected patients and family caregivers in specia...

  • Article
  • Open Access
1,042 Views
15 Pages

Early Palliative Care in Patients with Glioblastoma: Co-Design of an Integrated Care Pathway

  • Esmée K. J. van der Poort,
  • Monique C. M. Baas-Thijssen,
  • Marleen Oomes,
  • Maaike J. Vos,
  • Robin M. Pieterman,
  • Martin J. B. Taphoorn,
  • Inge de Vries,
  • Carla Juffermans,
  • Eline F. de Vries and
  • Johan A. F. Koekkoek
  • + 1 author

22 September 2025

Background: Glioblastoma is an incurable form of brain cancer with a median overall survival of 1.5 years. Despite its progressive nature and high symptom burden, palliative care is not consistently integrated in routine glioblastoma care. Early inte...

  • Article
  • Open Access
8 Citations
3,347 Views
12 Pages

Family Physicians’ Perspectives on Their Role in Palliative Care: A Double Focus Group in Portugal

  • Carlos Seiça Cardoso,
  • Filipe Prazeres,
  • Beatriz Xavier and
  • Bárbara Gomes

Background: Aggravated by the COVID-19 pandemic, the provision of palliative care for patients with palliative care needs emerges as a necessity more than ever. Most are managed in primary care by their family physicians (FP). This study aimed to und...

  • Review
  • Open Access
20 Citations
5,878 Views
10 Pages

Palliative care is indicated in patients with heart failure since the early phases of the disease, as suggested by international guidelines. However, patients are referred to palliative care very late. Many barriers could explain the gap between the...

  • Brief Report
  • Open Access
2 Citations
2,865 Views
6 Pages

This work provides an opinion on palliative care for people with heart disease. The work focuses on the management of key symptoms associated with both end stage heart disease, applying a palliative approach and suggesting treatment options. The work...

  • Article
  • Open Access
15 Citations
4,831 Views
13 Pages

23 November 2021

Background: Consumer experience of palliative care has been inconsistently and selectively investigated. Methods: People in Western Australia who had experienced a life limiting illness in the past five years were recruited via social media and care...

  • Review
  • Open Access
11 Citations
3,402 Views
11 Pages

Improving the Integration between Palliative Radiotherapy and Supportive Care: A Narrative Review

  • Erica Scirocco,
  • Francesco Cellini,
  • Costanza Maria Donati,
  • Jenny Capuccini,
  • Romina Rossi,
  • Milly Buwenge,
  • Luigi Montanari,
  • Marco Maltoni and
  • Alessio Giuseppe Morganti

19 October 2022

Palliative radiotherapy (PRT) is known to be effective in relieving cancer related symptoms. However, many studies and clinical practice show several barriers hindering its use and worsening the quality of patient support during PRT. Various solution...

  • Commentary
  • Open Access
5 Citations
4,336 Views
11 Pages

26 November 2021

Potentially avoidable medication-related harm is an inherent risk in palliative care; medication management accounts for approximately 20% of reported serious incidents in England and Wales. Despite their expertise benefiting patient care, the routin...

  • Opinion
  • Open Access
1,685 Views
7 Pages

12 December 2022

As the understanding of the role of palliative care in neurology increases, there is the need to ensure that these developments include not only care at home and in hospitals but also in clinics. There are no reports on palliative care from neurology...

  • Review
  • Open Access
131 Citations
20,755 Views
14 Pages

Timely Palliative Care: Personalizing the Process of Referral

  • David Hui,
  • Yvonne Heung and
  • Eduardo Bruera

18 February 2022

Timely palliative care is a systematic process to identify patients with high supportive care needs and to refer these individuals to specialist palliative care in a timely manner based on standardized referral criteria. It requires four components:...

  • Review
  • Open Access
26 Citations
6,554 Views
26 Pages

Palliative Care in High-Grade Glioma: A Review

  • Rita C. Crooms,
  • Nathan E. Goldstein,
  • Eli L. Diamond and
  • Barbara G. Vickrey

13 October 2020

High-grade glioma (HGG) is characterized by debilitating neurologic symptoms and poor prognosis. Some of the suffering this disease engenders may be ameliorated through palliative care, which improves quality of life for seriously ill patients by opt...

  • Article
  • Open Access
1,274 Views
14 Pages

27 November 2024

Background: Patients with dementia (PwD) nearing end of life (nEOL) do not always receive optimal end-of-life care, including timely specialist palliative care input. In hospitalized PwD likely to be nEOL, we aimed to determine the prevalence of goal...

  • Article
  • Open Access
16 Citations
5,760 Views
10 Pages

Palliative Care in Advanced Dementia: Comparison of Strategies in Three Countries

  • Shelley A. Sternberg,
  • Shiri Shinan-Altman,
  • Ladislav Volicer,
  • David J. Casarett and
  • Jenny T. van der Steen

Palliative care including hospice care is appropriate for advanced dementia, but policy initiatives and implementation have lagged, while treatment may vary. We compare care for people with advanced dementia in the United States (US), The Netherlands...

  • Article
  • Open Access
2,244 Views
16 Pages

The Impact of Qualification and Hospice Education on Staff Attitudes during Palliative Care in Pediatric Oncology Wards—A National Survey

  • Eszter Salamon,
  • Éva Fodor,
  • Enikő Földesi,
  • Peter Hauser,
  • Gergely Kriván,
  • Krisztina Csanádi,
  • Miklós Garami,
  • Gabor Kovacs,
  • Monika Csóka and
  • Gábor Ottóffy
  • + 3 authors

1 February 2024

Background: Our knowledge about the attitudes of healthcare staff to palliative care in pediatric oncology is scarce. We aimed to assess their perceptions of palliative care in Hungary and find answers to the question of how to provide good palliativ...

  • Article
  • Open Access
1,368 Views
9 Pages

25 November 2023

Palliative care offers symptom relief and improved quality of life. Tertiary palliative care units (TPCUs) focus on complex suffering under the care of specialist palliative physicians and interdisciplinary teams. The Intensive Palliative Care Unit (...

  • Article
  • Open Access
1,562 Views
12 Pages

25 December 2024

Background and Objectives: Palliative care is a very important part of medicine, aimed at ensuring an improvement in quality of life and a reduction in distressing symptoms in patients with serious, incurable, progressive diseases. The issues of the...

  • Review
  • Open Access
5 Citations
4,797 Views
15 Pages

11 December 2020

General practitioners (GPs) are increasingly expected to provide palliative care as ageing populations put pressure on specialist services. Some GPs, however, cite barriers to providing this care including prognostication challenges and lack of confi...

  • Communication
  • Open Access
7 Citations
5,991 Views
6 Pages

4 April 2022

Palliative care is defined as ‘an approach that improves the quality of life of patients and their families who are facing problems associated with life-threatening illness. It prevents and relieves suffering through identification, assessment...

  • Article
  • Open Access
2 Citations
2,134 Views
13 Pages

Patient and Provider Attitudes and Preferences Regarding Early Palliative Care Delivery for Patients with Advanced Gastrointestinal Cancers: A Prospective Survey

  • Oren Levine,
  • Daryl Bainbridge,
  • Gregory R. Pond,
  • Marissa Slaven,
  • Sukhbinder Dhesy-Thind,
  • Jonathan Sussman and
  • Ralph M. Meyer

13 June 2024

Early integrated palliative care (EIPC) for patients with advanced cancers requires the involvement of family doctors (FDs) and oncologists. We compared attitudes between patients and their providers regarding the delivery of EIPC. Patients with newl...

  • Review
  • Open Access
7 Citations
3,196 Views
14 Pages

A Critical Evaluation of Patient Pathways and Missed Opportunities in Treatment for Heart Failure

  • Chun Shing Kwok,
  • Duwarakan Satchithananda,
  • Fozia Z. Ahmed,
  • Colin D. Chue,
  • Diane Barker,
  • Ashish Patwala,
  • Simon Duckett and
  • Christian D. Mallen

Background: Heart failure (HF) is a global problem responsible for significant morbidity and mortality. Methods: This review describes the patient pathways and missed opportunities related to treatment for patients with HF. Results: The contemporary...

  • Article
  • Open Access
7 Citations
5,677 Views
23 Pages

What Do Palliative Care Professionals Understand as Spiritual Care? Findings from an EAPC Survey

  • Bella Vivat,
  • Rebecca Lodwick,
  • Maria Teresa Garcia-Baquero Merino and
  • Teresa Young

22 February 2023

From its inception palliative care has been understood as addressing four dimensions: physical, social, emotional/psychological, and spiritual/religious. However, the spiritual and/or religious element is poorly understood and under-researched, and l...

  • Review
  • Open Access
54 Citations
9,728 Views
12 Pages

Paediatric Palliative Care in Resource-Poor Countries

  • Julia Downing,
  • Sue Boucher,
  • Alex Daniels and
  • Busi Nkosi

19 February 2018

There is a great need for paediatric palliative care (PPC) services globally, but access to services is lacking in many parts of the world, particularly in resource-poor settings. Globally it is estimated that 21.6 million children need access to pal...

  • Article
  • Open Access
1,606 Views
8 Pages

Anesthesiological Preoperative Interview with a Palliative Care Patient: A Simulation-Based Experiment Using Standardized Patients

  • Christoph L. Lassen,
  • Fabian Jaschinsky,
  • Elena Stamouli,
  • Nicole Lindenberg and
  • Christoph H. R. Wiese

26 September 2024

Background and Objectives: Anesthesiologists come into contact with patients under palliative care in different clinical settings. They also routinely encounter these patients in their primary field of work, the operating room. Patients receiving pal...

  • Article
  • Open Access
586 Views
22 Pages

3 November 2025

Background/Objectives: Identifying patients with palliative care needs can be challenging in clinical practice. This study reports on the tailoring and evaluation of a minimally invasive intervention (MINI) to support early planning of palliative car...

  • Article
  • Open Access
4 Citations
3,001 Views
22 Pages

Palliative Care Survey: Awareness, Knowledge and Views of the Styrian Population in Austria

  • Ulrike Spary-Kainz,
  • Nicole Posch,
  • Muna Paier-Abuzahra,
  • Melanie Lieb,
  • Alexander Avian,
  • Erika Zelko and
  • Andrea Siebenhofer

22 September 2023

Background: No population-based data on awareness and knowledge of palliative care currently exist in Austria. We therefore conducted a survey to determine the general awareness and knowledge of palliative care in Styria, a federal state in Austria....

  • Article
  • Open Access
1 Citations
805 Views
15 Pages

12 August 2025

Background: Stroke-related deaths often follow rapid deterioration, making end-of-life (EOL) care decisions particularly challenging in acute settings. Although national guidelines support structured approaches to end-of-life care, there is limited e...

  • Article
  • Open Access
3 Citations
4,141 Views
8 Pages

Supportive Care Needs of Newly Diagnosed Cancer Patients in a Comprehensive Cancer Center: Identifying Care Profiles and Future Perspectives

  • Loula Papageorgiou,
  • Jean-Bernard Le Provost,
  • Mario Di Palma,
  • Marc Langlois,
  • Israa Salma,
  • Manuella Lopes,
  • Etienne Minvielle,
  • Maya Abbas and
  • Florian Scotté

29 February 2024

The prompt introduction of supportive care for patients with cancer leads to a better quality of life, potential survival benefits, and improvements in treatment safety. Considering that patients’ needs vary, descriptive assessments could serve...

  • Review
  • Open Access
8 Citations
8,022 Views
20 Pages

Spirituality in Renal Supportive Care: A Thematic Review

  • Richard Egan,
  • Sarah Wood,
  • Rod MacLeod and
  • Robert Walker

16 November 2015

Chronic kidney disease is marked by a reduced life expectancy and a high symptom burden. For those who reach end-stage renal disease, the prognosis is poor, and this combined with the growing prevalence of the disease necessitates supportive and pall...

  • Article
  • Open Access
16 Citations
1,387 Views
9 Pages

Palliative Care Consultation and Aggressive Care at End of Life in Unresectable Pancreatic Cancer

  • C. Lees,
  • S. Weerasinghe,
  • N. Lamond,
  • T. Younis and
  • Ravi Ramjeesingh

1 February 2019

Background: Palliative care (pc) consultation has been associated with less aggressive care at end of life in a number of malignancies, but the effect of the consultation timing has not yet been fully characterized. For patients with unresectable pan...

  • Article
  • Open Access
3 Citations
2,414 Views
13 Pages

2 August 2023

Increasing numbers of people living with chronic and life-limiting diseases are actualising a greater need for palliative care. Physicians are an important provider for identifying the need for palliation, and effective follow-up requires physician c...

  • Article
  • Open Access
1,135 Views
12 Pages

Development and Validation of an Educational Tool on Hypodermoclysis for Palliative Care Professionals

  • Maria Vanessa Tomé Bandeira de Sousa,
  • Carlos Laranjeira,
  • José Mateus Pires,
  • Isabela Melo Bonfim,
  • Luís Carlos Carvalho Graça,
  • Karla Maria Carneiro Rolim,
  • Lara Anisia Menezes Bonates,
  • Régia Christina Moura Barbosa Castro and
  • Ana Fátima Carvalho Fernandes

16 August 2025

Background/Objectives: Hypodermoclysis has gained increasing recognition as a safe, effective, and minimally invasive method for administering medication and fluids in palliative care. Despite its advantages, its adoption remains limited, primarily d...

  • Brief Report
  • Open Access
937 Views
10 Pages

Assessing Disparities in Who Accepts an Early Palliative Care Consultation

  • Heather Halperin,
  • Philip Akude,
  • Seema King,
  • Patricia Biondo,
  • Aynharan Sinnarajah,
  • Desiree Hao and
  • Jessica Simon

Early palliative care improves quality of life for patients with life-limiting illnesses, but access is often inequitable. The goal of this study was to assess disparities in early specialist palliative care (SPC) consultation among newly diagnosed s...

  • Article
  • Open Access
20 Citations
1,610 Views
6 Pages

Opportunity is the Greatest Barrier to Providing Palliative Care to Advanced Colorectal Cancer Patients: A Survey of Oncology Clinicians

  • M. A. Earp,
  • Aynharan Sinnarajah,
  • M. Kerba,
  • P. A. Tang,
  • J. Rodriguez-Arguello,
  • S. King,
  • S. M. Watanabe and
  • J. E. Simon

1 October 2018

Palliative care (pc) is part of the recommended standard of care for patients with advanced cancer. Nevertheless, delivery of pc is inconsistent. Patients who could benefit from pc services are often referred late—or not at all. In planning for impro...

  • Article
  • Open Access
2 Citations
2,236 Views
14 Pages

Redirection of Care for Neonates with Hypoxic-Ischemic Encephalopathy Receiving Therapeutic Hypothermia

  • Deborah F. L. Gubler,
  • Adriana Wenger,
  • Vinzenz Boos,
  • Rabia Liamlahi,
  • Cornelia Hagmann,
  • Barbara Brotschi and
  • Beate Grass

7 January 2025

Background/Objectives: Hypoxic-ischemic encephalopathy (HIE) in late preterm and term neonates accounts for neonatal mortality and unfavorable neurodevelopmental outcomes in survivors despite therapeutic hypothermia (TH) for neuroprotection. The circ...

  • Review
  • Open Access
5 Citations
3,244 Views
11 Pages

The Diagnostic Odyssey of Patients with Chronic Neuropathic Pain—Expert Opinion of Greek Pain Specialists

  • Persefoni Kritikou,
  • Athina Vadalouca,
  • Martina Rekatsina,
  • Giustino Varrassi and
  • Ioanna Siafaka

27 January 2023

The diagnosis of chronic neuropathic pain requires a laborious process and can be a very long journey for the patients, one that can be characterized as an “odyssey.” Our aim was to describe the “diagnostic odyssey” associated...

  • Article
  • Open Access
824 Views
12 Pages

15 April 2025

Background/Objectives: Patients with haematological malignancies less frequently receive specialist palliative care, although they may have unmet needs for symptom control and alleviating psychosocial and existential burdens. The ‘Surprise&rsqu...

  • Article
  • Open Access
1 Citations
1,742 Views
14 Pages

Navigating Emergency Management of Cancer Patients: A Retrospective Study on First-Time, End-Stage, and Other Established Diagnoses in a High Turnover Emergency County Hospital

  • Mihaela Corlade-Andrei,
  • Radu-Alexandru Iacobescu,
  • Viorica Popa,
  • Alexandra Hauta,
  • Paul Nedelea,
  • Gabriela Grigorasi,
  • Monica Puticiu,
  • Roxana Elena Ciuntu,
  • Andreea Ivona Sova and
  • Diana Cimpoesu

15 January 2025

Background and Objectives: The incidence and prevalence of cancers are increasing worldwide, with special emphasis placed on prevention, early detection, and the development of new therapeutic strategies that strongly impact patient outcomes. Limited...

  • Article
  • Open Access
13 Citations
4,011 Views
12 Pages

Oncology Clinicians’ Challenges to Providing Palliative Cancer Care—A Theoretical Domains Framework, Pan-Cancer System Survey

  • Sharlette Dunn,
  • Madelene A. Earp,
  • Patricia Biondo,
  • Winson Y. Cheung,
  • Marc Kerba,
  • Patricia A. Tang,
  • Aynharan Sinnarajah,
  • Sharon M. Watanabe and
  • Jessica E. Simon

9 April 2021

Despite the known benefits, healthcare systems struggle to provide early, integrated palliative care (PC) for advanced cancer patients. Understanding the barriers to providing PC from the perspective of oncology clinicians is an important first step...

  • Article
  • Open Access
16 Citations
4,872 Views
12 Pages

Effect of Early Management on Pain and Depression in Patients with Pancreatobiliary Cancer: A Randomized Clinical Trial

  • Sang Myung Woo,
  • Mi Kyung Song,
  • Meeyoung Lee,
  • Jungnam Joo,
  • Dae Hyun Kim,
  • Jong-Heun Kim,
  • Sung-Sik Han,
  • Sang-Jae Park,
  • Tae Hyun Kim and
  • Woo Jin Lee

11 January 2019

Background: The present study assessed whether early palliative care (EPC) targeting pain and depression and automated symptom monitoring could improve symptoms in patients with advanced pancreatobiliary cancer. Methods: Patients diagnosed with patho...

  • Review
  • Open Access
10 Citations
4,042 Views
13 Pages

The Interdisciplinary Management of Lung Cancer in the European Community

  • Luca Bertolaccini,
  • Shehab Mohamed,
  • Claudia Bardoni,
  • Giorgio Lo Iacono,
  • Antonio Mazzella,
  • Juliana Guarize and
  • Lorenzo Spaggiari

26 July 2022

Lung cancer continues to be the largest cause of cancer-related mortality among men and women globally, accounting for around 27% of all cancer-related deaths. Recent advances in lung cancer medicines, particularly for non-small-cell lung cancer (NSC...

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