- Article
Communication of the Diagnosis of Spinal Muscular Atrophy in the Views of Patients and Family Members, a Qualitative Analysis
- Isabella Araujo Mota Fernandes,
- Renata Oliveira Almeida Menezes and
- Guilhermina Rego
16 December 2022
Introduction: Communicating the diagnosis of a genetic and neurodegenerative disease, such as spinal muscular atrophy (SMA), requires a transmission centered on the patient and/or the family caregiver, ensuring autonomy to those involved and strength...