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Current Oncology
Volume 27
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Article

A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes

by
S. Ahmed
1,
L. Barbera
2,
S.J. Bartlett
3,
D.G. Bebb
2,
M. Brundage
4,
S. Bryan
5,
W.Y. Cheung
2,
N. Coburn
6,
T. Crump
7,
L. Cuthbertson
8,
D. Howell
9,
A.F. Klassen
10,
S. Leduc
11,
M. Li
12,
N.E. Mayo
1,
G. McKinnon
13,
R. Olson
14,
J. Pink
15,
J.W. Robinson
16,
M.J. Santana
15,
R. Sawatzky
17,
R.S. Moxam
18,
S. Sinclair
19,
F. Servidio-Italiano
20 and
W. Temple
7,*add Show full author list remove Hide full author list
1
Department of Medicine School of Physical and Occupational Therapy, McGill University, Montreal, QC, Canada
2
Department of Oncology, University of Calgary, Calgary, AB, Canada
3
Faculty of Medicine, McGill University, and McGill University Health Systems, Montreal, QC, Canada
4
Queen’s Cancer Research Institute, Kingston, ON, Canada
5
School of Population and Public Health, University of British Columbia, Vancouver, BC, Canada
6
Sunnybrook Health Sciences Centre, Toronto, ON, Canada
7
University of Calgary, Calgary, AB, Canada
8
Office of Patient-Centred Measurement, British Columbia Ministry of Health, Vancouver, BC, Canada
9
Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada
10
McMaster University, Hamilton, ON, Canada
11
CancerInsight, Oakville, ON, Canada
12
Department of Supportive Care, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada
13
Departments of Surgery and Oncology, University of Calgary, Calgary, AB, Canada
14
Radiation Oncology and Developmental Radiotherapeutics, University of British Columbia, Prince George, BC, Canada
15
Department of Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada
16
University of Calgary and Tom Baker Cancer Centre, Calgary, AB, Canada
17
School of Nursing, Trinity Western University, Langley, BC, Canada
18
Canadian Partnership Against Cancer, Toronto, ON, Canada
19
Faculty of Nursing, University of Calgary, Calgary, AB, Canad
20
Colorectal Cancer Resource and Action Network, Oakville, ON, Canada
 
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*
Author to whom correspondence should be addressed.
Curr. Oncol. 2020, 27(2), 90-99; https://doi.org/10.3747/co.27.6399
Submission received: 3 March 2020 / Revised: 5 April 2020 / Accepted: 7 May 2020 / Published: 1 May 2020

Abstract

Background: Patient-reported outcomes (pros) are essential to capture the patient’s perspective and to influence care. Although pros and pro measures are known to have many important benefits, they are not consistently being used and there is there no Canadian pros oversight. The Position Statement presented here is the first step toward supporting the implementation of pros in the Canadian health care setting. Methods: The Canadian pros National Steering Committee drafted position statements, which were submitted for stakeholder feedback before, during, and after the first National Canadian Patient Reported Outcomes (canpros) scientific conference, 14–15 November 2019 in Calgary, Alberta. In addition to the stakeholder feedback cycle, a patient advocate group submitted a section to capture the patient voice. Results: The canpros Position Statement is an outcome of the 2019 canpros scientific conference, with an oncology focus. The Position Statement is categorized into 6 sections covering 4 theme areas: Patient and Families, Health Policy, Clinical Implementation, and Research. The patient voice perfectly mirrors the recommendations that the experts reached by consensus and provides an overriding impetus for the use of pros in health care. Conclusions: Although our vision of pros transforming the health care system to be more patient-centred is still aspirational, the Position Statement presented here takes a first step toward providing recommendations in key areas to align Canadian efforts. The Position Statement is directed toward a health policy audience; future iterations will target other audiences, including researchers, clinicians, and patients. Our intent is that future versions will broaden the focus to include chronic diseases beyond cancer.
Keywords: patient-reported outcomes; patient-reported outcome measures; pros; proms; Canada; patient experiences; implementation science; health policy patient-reported outcomes; patient-reported outcome measures; pros; proms; Canada; patient experiences; implementation science; health policy

Share and Cite

MDPI and ACS Style

Ahmed, S.; Barbera, L.; Bartlett, S.J.; Bebb, D.G.; Brundage, M.; Bryan, S.; Cheung, W.Y.; Coburn, N.; Crump, T.; Cuthbertson, L.; et al. A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes. Curr. Oncol. 2020, 27, 90-99. https://doi.org/10.3747/co.27.6399

AMA Style

Ahmed S, Barbera L, Bartlett SJ, Bebb DG, Brundage M, Bryan S, Cheung WY, Coburn N, Crump T, Cuthbertson L, et al. A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes. Current Oncology. 2020; 27(2):90-99. https://doi.org/10.3747/co.27.6399

Chicago/Turabian Style

Ahmed, S., L. Barbera, S.J. Bartlett, D.G. Bebb, M. Brundage, S. Bryan, W.Y. Cheung, N. Coburn, T. Crump, L. Cuthbertson, and et al. 2020. "A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes" Current Oncology 27, no. 2: 90-99. https://doi.org/10.3747/co.27.6399

APA Style

Ahmed, S., Barbera, L., Bartlett, S. J., Bebb, D. G., Brundage, M., Bryan, S., Cheung, W. Y., Coburn, N., Crump, T., Cuthbertson, L., Howell, D., Klassen, A. F., Leduc, S., Li, M., Mayo, N. E., McKinnon, G., Olson, R., Pink, J., Robinson, J. W., ... Temple, W. (2020). A Catalyst for Transforming Health Systems and Person-Centred Care: Canadian National Position Statement on Patient-Reported Outcomes. Current Oncology, 27(2), 90-99. https://doi.org/10.3747/co.27.6399

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