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A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership

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Department of Public Health Sciences, Medical University of South Carolina (MUSC), 135 Cannon Street, Charleston, SC 29425, USA
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The Brotherhood/Sister Sol (Bro/Sis), 512 West 143rd Street, New York, NY 10031, USA
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Environmental Justice Action Group (EJAG) of Western NY, Buffalo, NY 14203, USA
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Primary Care Research Institute, University at Buffalo, UB Gateway Building, 77 Goodell St, Suite 220, Buffalo, NY 14203, USA
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Author to whom correspondence should be addressed.
Academic Editor: Devon Payne-Sturges
Int. J. Environ. Res. Public Health 2016, 13(5), 515; https://doi.org/10.3390/ijerph13050515
Received: 8 December 2015 / Revised: 6 May 2016 / Accepted: 13 May 2016 / Published: 20 May 2016
The Buffalo Lupus Project was a community-university partnership that investigated associations between exposure to a local waste site and high rates of lupus and other autoimmune diseases. The partnership’s major accomplishment was successful advocacy for containment and clean-up of the site. As a result of community education, the remediation plan suggested by the community was adopted. Additionally, when a local childhood lead poisoning testing program was canceled, community members signed a letter to legislators urging them to replace the funding, which was restored within one week. This demonstrated how coordinated community-based capacity-building efforts can influence health policy. View Full-Text
Keywords: Lupus; Superfund; community-based participatory research; health policy Lupus; Superfund; community-based participatory research; health policy
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Williams, E.M.; Terrell, J.; Anderson, J.; Tumiel-Berhalter, L. A Case Study of Community Involvement Influence on Policy Decisions: Victories of a Community-Based Participatory Research Partnership. Int. J. Environ. Res. Public Health 2016, 13, 515.

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