ME/CFS – the Severely and Very Severely Affected
A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Chronic Care".
Deadline for manuscript submissions: closed (31 March 2021) | Viewed by 354895
Special Issue Editors
Interests: ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome); mechanisms of chronic illness; public health access and disparities
Special Issues, Collections and Topics in MDPI journals
Interests: clinical collaboration with all scientists engaged in discovering biomarkers and improving both diagnosis and treatment of ME/CFS
Interests: the severely ill ME/CFS patients; newly discovered infections in ME/CFS ; chronic zoonotic infections ; immune abnormalities in ME/CFS and their consequences ; the microbiome and intestinal inflammation in ME/CFS and chronic zoonotic infections.
Special Issue Information
Dear Colleagues,
“ME/CFS—The Severely and Very Severely Affected” is a proposed themed Special Issue of Healthcare concerning housebound and bedbound Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients. Our intent is to redefine ME/CFS as the serious disease that it is. Up to this point in time, all literature and case definitions of ME/CFS have excluded severely and very severely affected patients, and diagnosis, patient management, and case definitions have been based on the ambulatory ME/CFS patient. Although never formally studied, it is estimated that twenty-five percent of ME/CFS patients are either severely or very severely affected. What other disease’s diagnosis, patient care, and case definition exclude the most severely ill twenty-five percent?
We aim to document, describe, and promulgate what can and should be done for this hidden patient population. By focusing on the severely affected, it is our hope that the pathophysiological nature of the disease will be better accepted and understood, and effective methods of symptom reduction and patient improvement will be placed in the medical literature. Kenneth J. Friedman, Ph.D. is serving as Guest Editor of the issue, with Drs. Lucinda Bateman and Kenny DeMeirlier serving as co-guest editors. If you would like to consider submitting a manuscript or have questions concerning the submission of a manuscript, please contact the guest editors.
Dr. Kenneth Friedman
Dr. Lucinda Bateman
Prof. Kenny Leo De Meirleir
Guest Editors
Summary Video
"Severe & Very Severe ME / CFS", produced by Natalie Boulton.
https://www.dialogues-mecfs.co.uk/films/severeme/
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Keywords
- Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
- ME/CFS
- Chronic Fatigue Syndrome (CFS)
- Myalgic Encephalomyelitis (ME)
- severely affected (housebound) patients
- very severely affected (bedbound) patients
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