Holistic Assessment in Palliative Care

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Palliative Care".

Deadline for manuscript submissions: closed (1 July 2026) | Viewed by 4233

Editors


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Guest Editor
Department of Health and Clinical Outcomes Research, Saint Louis University School of Medicine, 3556 Caroline Mall, Caroline Building, Suite 305, St. Louis, MO 63104, USA
Interests: palliative care; health disparities; epidemiology

E-Mail Website
Guest Editor
Advanced Health Data (AHEAD) Institute, Saint Louis University School of Medicine, 3556 Caroline Mall, Caroline Building, Suite 305, St. Louis, MO 63104, USA
Interests: outcomes research in patients with cancers, heart failure, and chronic kidney disease; palliative care modality and utilization; value-based care and payment method

Special Issue Information

Dear Colleagues,

Palliative care has evolved into a critical component of modern healthcare, offering support that extends far beyond symptom control to address the complex physical, emotional, social and spiritual needs of individuals with serious illnesses. As populations age and the burden of chronic and life-limiting conditions continues to rise globally, the demand for comprehensive, person-centered models of care has never been greater. Holistic assessment is an approach that systematically evaluates the multidimensional needs of patients and their families and serves as the foundation of high-quality palliative care. It ensures that interventions are aligned with patients’ values, cultural contexts, goals and lived experiences.

Despite substantial progress in palliative care delivery, gaps persist in the consistent application of holistic assessment across settings, populations and clinical disciplines. Variability in training, resource constraints, health disparities and the absence of standardized frameworks often limit the clinicians’ ability to fully capture and respond to patients’ evolving needs. Strengthening the science and practice of holistic assessment is therefore pivotal to improving patient outcomes, promoting equity, and enhancing the overall quality of palliative care. This research area is essential not only for guiding individualized care but also for informing policy, shaping clinical guidelines, and advancing the integration of palliative principles throughout the healthcare continuum.

This Special Issue seeks to bring together rigorous empirical research, theoretical advances, clinical implementation studies, and policy-oriented analyses that advance the science and practice of holistic assessment in palliative care. It will focus on better understanding how multidimensional assessments—incorporating physical symptoms, psychosocial needs, spiritual and existential concerns, caregiver/family dynamics, and health system factors—can inform personalized and value-driven palliative care pathways. Contributions may include development or validation of assessment tools, mixed-methods or implementation studies of holistic assessment in diverse settings, linkage of assessment data to outcomes (patient, caregiver and system) and policy/organizational analyses that enable holistic assessment to be embedded in routine palliative care workflows. The goal is to deepen the evidence base for holistic assessment, identify best practices and gaps and promote interdisciplinary and person-centered approaches to palliative care delivery.

Relation to the Journal’s Scope

The journal, Healthcare, covers all aspects of medicine and healthcare research, including clinical care, long-term care, health systems, quality of care, health policy and implementation in real-world settings. MDPI’s Holistic Assessment in Palliative Care fits squarely within this scope: it is fundamentally about improving quality of care and healthcare delivery for patients with serious illness; it involves clinical care (symptom management and psychosocial care), health services (how assessment is embedded in workflows and systems) and health policy/implementation (how to scale and sustain comprehensive assessment practices within health systems). The topic is neither too broad nor too narrow: it focuses on a specific domain (palliative care) and a clearly defined process (holistic assessment), yet allows a variety of approaches (tool development, clinical studies and system-level research) and settings (hospitals, hospices, community and global). Thus, it aligns well with the journal’s goal of publishing rigorous healthcare research that spans from the patient level to systems and policy.

In this Special Issue, original research articles, systematic reviews, narrative reviews, brief reports, qualitative studies, methodological papers and implementation-focused manuscripts are welcome. Submissions may include, but are not limited to, the following themes:

  • Development, validation or adaptation of holistic assessment tools for palliative care across diverse patient populations and clinical settings.
  • Symptom burden, psychosocial, spiritual and existential needs assessment and their integration into individualized care plans.
  • Culturally responsive and equity-focused approaches to holistic assessment, including studies addressing disparities in access, communication and care experiences.
  • Caregiver and family assessment within palliative care frameworks, including interventions informed by holistic evaluation of caregiver needs.
  • Digital health, AI and technology-enabled assessment methods, including remote monitoring, EHR-integrated tools and decision-support systems.
  • Implementation science, workflow integration and quality improvement studies examining how holistic assessments are operationalized in real-world clinical environments.
  • Interprofessional education and training models that enhance clinicians’ capacity to conduct comprehensive palliative assessments.
  • Outcomes research linking holistic assessment practices to patient-reported outcomes, caregiver well-being, healthcare utilization and quality of care.
  • Global health and cross-cultural perspectives on holistic assessment in palliative care delivery.

We look forward to receiving your contributions.

Dr. Divya S. Subramaniam
Dr. Zidong Zhang
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 250 words) can be sent to the Editorial Office for assessment.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-anonymized peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • holistic assessment
  • palliative care
  • patient-centered care
  • symptom management
  • psychosocial needs
  • spiritual care
  • caregiver burden
  • health disparities
  • quality of life
  • implementation science

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Published Papers (3 papers)

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Research

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18 pages, 277 KB  
Article
Death Anxiety, Spiritual Well-Being, and Death Literacy Among Relatives of Patients Receiving Palliative Care in Türkiye: A Cross-Sectional Study
by Nermin Yılmaz and Havva Akpınar
Healthcare 2026, 14(12), 1745; https://doi.org/10.3390/healthcare14121745 - 17 Jun 2026
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Abstract
Background: Understanding the psychological and spiritual needs of family caregivers, including their experiences of death anxiety and levels of death literacy, is essential for delivering holistic palliative care. This study aimed to examine the relationships between death anxiety, spiritual well-being, and death [...] Read more.
Background: Understanding the psychological and spiritual needs of family caregivers, including their experiences of death anxiety and levels of death literacy, is essential for delivering holistic palliative care. This study aimed to examine the relationships between death anxiety, spiritual well-being, and death literacy among relatives of patients receiving palliative care in Türkiye. Methods: A cross-sectional correlational study was conducted with 160 relatives of patients receiving treatment in a palliative care unit in Türkiye. The participants had a mean age of 47.56 ± 12.33 years, and 62.5% were male. Data were obtained using the Abdel-Khalek Death Anxiety Scale (ASDA), the Three-Factor Spiritual Well-Being Scale (SWBS), and the Death Literacy Index (DLI). Results: The mean scores were 61.34 ± 17.45 for ASDA, 122.94 ± 15.84 for SWBS, and 96.13 ± 16.36 for DLI. Participants exhibited relatively elevated death anxiety scores, comparatively higher spiritual well-being scores, and moderate death literacy scores within the study sample. Correlation analyses showed that death anxiety was positively associated with spiritual well-being and negatively associated with death literacy, whereas death literacy was positively associated with spiritual well-being. Regression analyses further indicated that spiritual well-being was independently and positively associated with both death anxiety and death literacy, whereas death literacy was independently and negatively associated with death anxiety. Conclusions: The findings suggest that psychosocial, spiritual, and informational dimensions should be considered together in holistic palliative care. Supporting death literacy and spiritual well-being may contribute to better coping with death-related concerns among relatives of patients receiving palliative care. Full article
(This article belongs to the Special Issue Holistic Assessment in Palliative Care)

Review

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9 pages, 3872 KB  
Review
Goals of Care Discussions in Medical Training: Integrating Palliative Care for Holistic, Patient-Centered Care
by Celine Rochon and Farzana Hoque
Healthcare 2026, 14(9), 1222; https://doi.org/10.3390/healthcare14091222 - 1 May 2026
Viewed by 697
Abstract
Background: Goals of care discussions are essential communication skills in medical training that bridge patient values with clinical decision-making. Integrating palliative care principles into these conversations enables holistic, patient-centered care, yet medical trainees often lack structured preparation for these critical interactions. Objective: This [...] Read more.
Background: Goals of care discussions are essential communication skills in medical training that bridge patient values with clinical decision-making. Integrating palliative care principles into these conversations enables holistic, patient-centered care, yet medical trainees often lack structured preparation for these critical interactions. Objective: This narrative review examines how medical training can effectively integrate palliative care approaches into goals of care discussions through structured communication frameworks, interdisciplinary collaboration, and emerging innovations to promote patient-centered outcomes. Methods: This narrative review is conducted using a structured literature search that includes relevant studies pertaining to goals of care (GOC) discussions, evidence-based communication frameworks, and communication training curricula. Databases used were PubMed and Google Scholar, using articles published between 2000 and 2025. The following keywords were used in our search: “SPIKES”, “REMAP”, “SUPER”, “serious illness conversation”, “goals of care,” “end of life,” “holistic care,” “palliative care,” and “medical education.” Exclusion criteria were used to select those relevant to inpatient care and training in inpatient settings. Studies in an outpatient setting were excluded. Findings were reviewed and synthesized to identify types of training approaches. An emphasis on clinical outcomes including patient satisfaction, hospice utilization, ICU transfers, and intervention intensity were examined. Educational barriers and facilitators—including communication training curricula, cultural competency, language considerations, and multidisciplinary team involvement—were evaluated. Emerging technologies supporting clinician education and practice were also assessed. Results: Training in structured communication frameworks improves patient–physician relationships, reduces patient anxiety, and increases family satisfaction. Early palliative care integration through effective discussions leads to increased hospice awareness and utilization while reducing burdensome interventions. Key educational facilitators include dedicated communication skills training, multidisciplinary team participation (including chaplains and palliative care specialists), and AI-assisted documentation tools that support learning while preserving humanistic clinician–patient interactions. Conclusions: Integrating palliative care principles into medical training for goals of care discussions is essential for developing patient-centered clinicians. Combining structured communication frameworks, interprofessional education, targeted skills training, and technological support creates a comprehensive educational approach that prepares trainees to elicit patient goals, create individualized care plans, and deliver holistic care that honors patient values. Full article
(This article belongs to the Special Issue Holistic Assessment in Palliative Care)
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17 pages, 446 KB  
Review
Nurses’ Experience in Providing End-of-Life Care in Intensive Care Unit: A Scoping Review
by Y. Dodi Setyawan, Indah Ayu Susanti, Cecep Eli Kosasih and Hartiah Haroen
Healthcare 2026, 14(3), 417; https://doi.org/10.3390/healthcare14030417 - 6 Feb 2026
Cited by 1 | Viewed by 2370
Abstract
Background: Most ICU patients are in the terminal phase and require complex palliative care support and End-of-Life Care (EoLC). Nurses play a central role in symptom management, emotional support, and shared decision-making. However, evidence on nurses’ experiences in providing EoLC remains fragmented and [...] Read more.
Background: Most ICU patients are in the terminal phase and require complex palliative care support and End-of-Life Care (EoLC). Nurses play a central role in symptom management, emotional support, and shared decision-making. However, evidence on nurses’ experiences in providing EoLC remains fragmented and lacks a comprehensive synthesis. Objective: This review aimed to identify, map, and synthesize global evidence on ICU nurses’ experiences in delivering EoLC, including challenges, coping strategies, and implications for critical care nursing practice. Methods: A scoping review was conducted following Arksey and O’Malley’s framework and PRISMA-ScR guidelines. Systematic searches were performed in the PubMed, Scopus, and EBSCOhost databases for studies published between 2015 and 2025. Thematic analysis was applied to the qualitative studies to identify patterns and key issues. Results: Twelve qualitative studies conducted in diverse countries met the inclusion criteria. Five major themes emerged: (1) emotional and moral challenges; (2) cultural and spiritual influences; (3) communication and interprofessional collaboration; (4) professional development and organizational support; and (5) resource constraints. These findings indicate that ICU nurses’ experiences with EoLC are multidimensional and shaped by the cultural context and institutional policies. Conclusions: ICU nurses’ experiences with EoLC reflect complex ethical, emotional, and organizational dimensions. Improving care quality requires structured training, organizational support, and culturally sensitive policies to strengthen critical care nursing practice. Full article
(This article belongs to the Special Issue Holistic Assessment in Palliative Care)
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