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Psychometric Properties and Broader Implications of Patient-Reported Outcome Measures (PROMs)...
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Psychometric Properties and Broader Implications of Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs)

A special issue of Healthcare (ISSN 2227-9032).

Deadline for manuscript submissions: 2 May 2026 | Viewed by 698

Special Issue Editors

Dr. Rui Vilarinho

E-Mail Website
Guest Editor
1. Center for Rehabilitation Research (CIR), School of Health, Polytechnic of Porto, Rua Dr. António Bernardino de Almeida, 400, 4200-072 Porto, Portugal
2. FP-I3ID, FP-BHS, Fernando Pessoa Health School, Rua Delfim Maia, 334, 4200-253 Porto, Portugal
Interests: rehabilitation; human movement; psychometric properties; measurement properties
Prof. Dr. Andreia S. P. Sousa

E-Mail Website
Guest Editor
CIR, E2S, Polytechnic of Porto, Rua Dr António Bernardino de Almeida nº 400, 4200-072 Porto, Portugal
Interests: human movement; biomechanics; postural control; rehabilitation sciences
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

Patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) are important for assessing patients' health status, quality of life, and experience of healthcare. High quality PROMs and PREMs must demonstrate strong validity, reliability, responsiveness and interpretability to ensure meaningful use. This Special Issue invites papers that examine the psychometric properties of PROMs and PREMs in different clinical populations. We welcome studies that assess the level of evidence for these properties, as well as research on translation and cross-cultural adaptation efforts to ensure broader applicability and equity in health assessment.

We encourage original research, systematic reviews, and methodological studies that examine the role of PROMs and PREMs in clinical decision making, health policy, and the promotion of value-based care. Submissions that address a wide range of diseases, conditions, and healthcare settings—such as primary care, hospitals, home care, and telemedicine—are particularly welcome. Expanding the understanding and application of PROMs and PREMs in different contexts will be essential for improving patient-centered care and informing future healthcare strategies.

Dr. Rui Vilarinho
Prof. Dr. Andreia S. P. Sousa
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 250 words) can be sent to the Editorial Office for assessment.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • patient-reported outcome measures
  • patient-reported experience measures
  • validity
  • reliability
  • responsiveness

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Published Papers (2 papers)

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Research

13 pages, 280 KB  
Article
Cultural Adaptation and Validation of the Pelvic Floor Distress Inventory Short Form (PFDI-20) and Pelvic Floor Impact Questionnaire Short Form (PFIQ-7) Portuguese Versions
by Inês Branco, Mariana Ferreira, Ana Pacheco, Clara Ferreira, Vera Baldaia Dias and Anabela Correia Martins
Healthcare 2025, 13(23), 3136; https://doi.org/10.3390/healthcare13233136 - 2 Dec 2025
Viewed by 194
Abstract
Introduction: Throughout life, the characteristics of a woman’s pelvic floor change due to physiological changes, including pregnancy, childbirth and menopause. These changes can predispose them to pelvic floor dysfunction. Objectives: To develop a linguistically and psychometrically adapted Portuguese (European) version of the Pelvic [...] Read more.
Introduction: Throughout life, the characteristics of a woman’s pelvic floor change due to physiological changes, including pregnancy, childbirth and menopause. These changes can predispose them to pelvic floor dysfunction. Objectives: To develop a linguistically and psychometrically adapted Portuguese (European) version of the Pelvic Floor Distress Inventory (PFDI-20) and Pelvic Floor Impact Questionnaire (PFIQ-7), for assessing symptoms and quality of life in women with pelvic floor dysfunction. Methods: This cross-cultural study used a translation method, followed by an assessment of the validity and reliability of the instruments. The Portuguese versions of the PFDI-20 and PFIQ-7 were completed by 287 women (33.47 ± 8.2 years). To assess reliability, internal consistency was evaluated using Cronbach’s alpha (CA). Descriptive statistical analysis was applied for sociodemographic and clinical characterization, as well as questionnaire scoring. Spearman’s correlation (r) and Student’s t-test were used to analyze criterion and construct validity. Results: The Portuguese versions of PFDI-20 and PFIQ-7 were effectively translated and adjusted, revealing excellent internal consistency, as reflected in Cronbach’s alpha values of 0.853 for PFDI-20 and 0.937 for PFIQ-7. No Ceiling Effect was observed, while a Floor Effect was identified in both Portuguese versions of the PFDI-20 (5.2%) and PFIQ-7 (41.5%). Significant correlations were established between the instruments and five questions. Conclusions: The Portuguese versions of the PFDI-20 and PFIQ-7 showed adequate psychometric characteristics and are valid for use in the Portuguese population. Full article
(This article belongs to the Special Issue Psychometric Properties and Broader Implications of Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs))
16 pages, 506 KB  
Article
Cross-Cultural Adaptation, Validity and Reliability of the European Portuguese Version of the Kerlan-Jobe Orthopaedic Clinic Shoulder & Elbow Score (KJOC)
by Gonçalo Almeida, Luísa Amaral, Rui Vilarinho, Bárbara Magalhães, Fátima Silva, Verónica Abreu, André Magalhães, Mário Esteves and Mariana Cervaens
Healthcare 2025, 13(23), 3081; https://doi.org/10.3390/healthcare13233081 - 26 Nov 2025
Viewed by 169
Abstract
Background/Objectives: The Kerlan-Jobe Orthopaedic Clinic Shoulder & Elbow Score (KJOC) is used to identify dysfunctions and estimate injury risk in overhead sports athletes. Although it has been validated in several countries, a European Portuguese version is currently unavailable. This study aimed to [...] Read more.
Background/Objectives: The Kerlan-Jobe Orthopaedic Clinic Shoulder & Elbow Score (KJOC) is used to identify dysfunctions and estimate injury risk in overhead sports athletes. Although it has been validated in several countries, a European Portuguese version is currently unavailable. This study aimed to translate, culturally adapt and assess psychometric properties (validity and reliability) of the European Portuguese KJOC (KJOC-PT). Methods: The KJOC-PT was translated and culturally adapted according to international guidelines. One hundred athletes were selected (median age 24 [IQR 17] years, 72% male) and divided into two groups: asymptomatic and symptomatic athletes. The convergent validity was assessed by correlating the KJOC-PT with the Disabilities of the Arm, Shoulder and Hand (DASH) and DASH-Sports. 31 athletes from the initial sample were considered to assess between-day reliability and agreement (Bland-Altman analysis). Floor and ceiling effects were also calculated. Sampling adequacy was assessed using the Kaiser Meyer-Olkin (KMO) test. Results: Minor cultural and linguistic changes were made in the KJOC-PT. This version demonstrated excellent internal consistency (Cronbach’s α = 0.91 to 0.97) and moderate negative correlations for validity (KJOC-PT with DASH, rho = −0.595; with DASH-Sports, rho = −0.533, both p < 0.001). Good reliability (ICC2,1 = 0.77 to 0.89 [95%CI 0.36 to 0.96]), measurement error (SEM = 4.11 to 6.90; MDC = 11.39 to 19.13) and mean difference ranging from −0.08 ± 6.14 to 3 ± 9.17 were found. No floor effect (0%) and ceiling effects of 24.2% for the total sample (50% for asymptomatic and 5.1% for symptomatic athletes) were found. Conclusions: KJOC-PT is now available and is a valid and reliable instrument for use by athletes in overhead sports. Full article
(This article belongs to the Special Issue Psychometric Properties and Broader Implications of Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs))
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