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Volume 13
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10.3390/healthcare13040412
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Article

Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study

by
Miriam Pavelth Casillas-Ávila
1,
Ileana Chavez-Maisterra
2,
Benjamín Gómez-Díaz
3,
Vanessa Ivonne Orellana Villazon
4,
Rosa Elena Escobar-Cedillo
3,
Alexandra Berenice Luna-Angulo
3,
Edgar Oswaldo Zamora González
1,5,
Norma Alejandra Vázquez-Cárdenas
2,
Marlen Escotto-Ramírez
2,
Georgina Martínez-Gómez
2 and
Luz Berenice López-Hernández
2,*
1
Hospital Civil “Dr. Antonio González Guevara”, Tepic 63169, Mexico
2
Departamento Académico de Ciclo de Vida, Universidad Autónoma de Guadalajara, Av Patria 1201, Zapopan 45129, Mexico
3
Instituto Nacional de Rehabilitación Luis Guillermo Ibarra Ibarra, México City 14389, Mexico
4
James M. Anderson Center for Health Systems Excellence, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA
5
Departamento de Bienestar y Desarrollo Sustentable, Centro Universitario del Norte de la Universidad, Guadalajara 44214, Mexico
*
Author to whom correspondence should be addressed.
Healthcare 2025, 13(4), 412; https://doi.org/10.3390/healthcare13040412
Submission received: 13 December 2024 / Revised: 7 February 2025 / Accepted: 8 February 2025 / Published: 14 February 2025
(This article belongs to the Special Issue Patient Centred Care: Current Situation and Development)
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Abstract

Background: Duchenne muscular dystrophy (DMD) is a genetic disorder characterized by progressive muscle weakness, a decline in quality of life, and premature mortality. This study aims to evaluate the perceived quality of healthcare and the experience of DMD patients and their caregivers in Mexico, comparing governmental and non-profit healthcare institutions using a newly designed assessment instrument. Methods: In a cross-sectional study, data were gathered from 91 participants through an online self-administered questionnaire informed by the Donabedian model and six dimensions of healthcare quality. Results: Analysis revealed two key mediating factors: perceived quality of healthcare and patient experience. The Mann–Whitney U test showed that non-profit organizations were perceived to provide superior quality care in both aspects (p < 0.05), notably regarding healthcare professionals’ preparedness and other domains of quality. However, the patient-centered care domain indicated that the importance of quality domains may vary according to cultural and social contexts. In Mexico, the humanistic approach of healthcare professionals appeared to compensate for shortcomings in timely diagnosis and other quality domains. This emphasizes the necessity for enhanced patient education and healthcare evaluation, and it highlights that patient satisfaction does not always correlate with high-quality healthcare. The developed instrument can further aid in understanding the experiences of DMD patients across different countries and cultures.
Keywords: healthcare quality; patient experience; perceptions healthcare quality; patient experience; perceptions

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MDPI and ACS Style

Casillas-Ávila, M.P.; Chavez-Maisterra, I.; Gómez-Díaz, B.; Orellana Villazon, V.I.; Escobar-Cedillo, R.E.; Luna-Angulo, A.B.; Zamora González, E.O.; Vázquez-Cárdenas, N.A.; Escotto-Ramírez, M.; Martínez-Gómez, G.; et al. Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study. Healthcare 2025, 13, 412. https://doi.org/10.3390/healthcare13040412

AMA Style

Casillas-Ávila MP, Chavez-Maisterra I, Gómez-Díaz B, Orellana Villazon VI, Escobar-Cedillo RE, Luna-Angulo AB, Zamora González EO, Vázquez-Cárdenas NA, Escotto-Ramírez M, Martínez-Gómez G, et al. Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study. Healthcare. 2025; 13(4):412. https://doi.org/10.3390/healthcare13040412

Chicago/Turabian Style

Casillas-Ávila, Miriam Pavelth, Ileana Chavez-Maisterra, Benjamín Gómez-Díaz, Vanessa Ivonne Orellana Villazon, Rosa Elena Escobar-Cedillo, Alexandra Berenice Luna-Angulo, Edgar Oswaldo Zamora González, Norma Alejandra Vázquez-Cárdenas, Marlen Escotto-Ramírez, Georgina Martínez-Gómez, and et al. 2025. "Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study" Healthcare 13, no. 4: 412. https://doi.org/10.3390/healthcare13040412

APA Style

Casillas-Ávila, M. P., Chavez-Maisterra, I., Gómez-Díaz, B., Orellana Villazon, V. I., Escobar-Cedillo, R. E., Luna-Angulo, A. B., Zamora González, E. O., Vázquez-Cárdenas, N. A., Escotto-Ramírez, M., Martínez-Gómez, G., & López-Hernández, L. B. (2025). Perceptions of Healthcare Quality in Duchenne Muscular Dystrophy: A Patient Experience Exploratory Study. Healthcare, 13(4), 412. https://doi.org/10.3390/healthcare13040412

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