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Journal: Int. J. Environ. Res. Public Health, 2020
Volume: 17
Number: 8743

Article: The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes
Authors: by Salma R. Ali, Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L. T. van den Akker, Natasha M. Appelman-Dijkstra, Jerome Bertherat, Martine Cools, Olaf M. Dekkers, Yllka Kodra, Luca Persani, Arelene Smyth, Christopher Smythe, Domenica Taruscio and S. Faisal Ahmed
Link: https://www.mdpi.com/1660-4601/17/23/8743

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