The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes
Ali, S.R.; Bryce, J.; Tan, L.E.; Hiort, O.; Pereira, A.M.; van den Akker, E.L.T.; Appelman-Dijkstra, N.M.; Bertherat, J.; Cools, M.; Dekkers, O.M.; Kodra, Y.; Persani, L.; Smyth, A.; Smythe, C.; Taruscio, D.; Ahmed, S.F. The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. Int. J. Environ. Res. Public Health 2020, 17, 8743. https://doi.org/10.3390/ijerph17238743
Ali SR, Bryce J, Tan LE, Hiort O, Pereira AM, van den Akker ELT, Appelman-Dijkstra NM, Bertherat J, Cools M, Dekkers OM, Kodra Y, Persani L, Smyth A, Smythe C, Taruscio D, Ahmed SF. The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. International Journal of Environmental Research and Public Health. 2020; 17(23):8743. https://doi.org/10.3390/ijerph17238743
Chicago/Turabian StyleAli, Salma R., Jillian Bryce, Li E. Tan, Olaf Hiort, Alberto M. Pereira, Erica L.T. van den Akker, Natasha M. Appelman-Dijkstra, Jerome Bertherat, Martine Cools, Olaf M. Dekkers, Yllka Kodra, Luca Persani, Arelene Smyth, Christopher Smythe, Domenica Taruscio, and S. F. Ahmed. 2020. "The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes" International Journal of Environmental Research and Public Health 17, no. 23: 8743. https://doi.org/10.3390/ijerph17238743