Evaluation of Long-Term Outcomes of Congenital Diaphragmatic Hernia

Dear Colleagues,

As a result of improved prenatal diagnosis, protocolized perinatal care, and implementation of new treatment modalities, more neonates born with Congenital Diaphragmatic Hernia (CDH) now survive. During the past decades, interest has shifted from survival to long-term outcomes. We have learned that, apart from having disease-specific morbidities, children with CDH are at risk for neurodevelopmental problems and failure of educational attainments which may affect their participation in society. International collaboration to develop long-term multidisciplinary follow-up programs for these children is important not only to improve their outcome at an individual level, but also to define universal outcome sets for future intervention trials.

This Special Edition will explore standardized outcomes in children and adolescents with CDH and the availability and validity of multidisciplinary assessment instruments that have been used in this population.

The goal is to provide an update of research in the field of long-term outcomes in CDH and to encourage clinicians to use standardized assessments for follow-up and intervention studies.

Dr. Hanneke IJsselstijn
Dr. Natalie E. Rintoul
Guest Editors

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