Special Issue "Evaluation of Long-Term Outcomes of Congenital Diaphragmatic Hernia"

A special issue of Children (ISSN 2227-9067).

Deadline for manuscript submissions: 20 May 2022.

Special Issue Editors

Dr. Hanneke IJsselstijn
E-Mail Website
Guest Editor
Department of Pediatric Surgery and Intensive Care, Erasmus MC-Sophia Children's Hospital, 3015 CN Rotterdam, The Netherlands
Interests: congenital diaphragmatic hernia; congenital anatomical malformations; outcome studies; neurodevelopmental outcomes; standardized assessment instruments; quality of life; risk stratification
Dr. Jonathan Coutts
E-Mail Website
Co-Guest Editor
Neonatal Unit, Royal Hospital for Children, 1345 Govan Road, Glasgow G51 4TF, UK
Interests: neonatal resuscitation; airway obstruction

Special Issue Information

Dear Colleagues,

As a result of improved prenatal diagnosis, protocolized perinatal care, and implementation of new treatment modalities, more neonates born with Congenital Diaphragmatic Hernia (CDH) now survive. During the past decades, interest has shifted from survival to long-term outcomes. We have learned that, apart from having disease-specific morbidities, children with CDH are at risk for neurodevelopmental problems and failure of educational attainments which may affect their participation in society. International collaboration to develop long-term multidisciplinary follow-up programs for these children is important not only to improve their outcome at an individual level, but also to define universal outcome sets for future intervention trials.

This Special Edition will explore standardized outcomes in children and adolescents with CDH and the availability and validity of multidisciplinary assessment instruments that have been used in this population.

The goal is to provide an update of research in the field of long-term outcomes in CDH and to encourage clinicians to use standardized assessments for follow-up and intervention studies.

Dr. Hanneke IJsselstijn
Guest Editor

Dr. Jonathan Coutts
Co-Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All papers will be peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Children is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 1600 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • congenital diaphragmatic hernia
  • pulmonary imaging
  • neuro-imaging
  • outcome studies
  • neurodevelopmental outcomes
  • standardized assessment instruments
  • proxy-reports
  • self-reports
  • quality of life
  • risk stratification

Published Papers (1 paper)

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Research

Article
Patient-Reported Outcome Measures and Clinical Outcomes in Children with Foregut Anomalies
Children 2021, 8(7), 587; https://doi.org/10.3390/children8070587 - 10 Jul 2021
Viewed by 547
Abstract
Increasing numbers of children and adults with chronic disease status highlight the need for a value-based healthcare system. Patient-reported outcome measures (PROMs) are essential to value-based healthcare, yet it remains unclear how they relate to clinical outcomes such as health and daily functioning. [...] Read more.
Increasing numbers of children and adults with chronic disease status highlight the need for a value-based healthcare system. Patient-reported outcome measures (PROMs) are essential to value-based healthcare, yet it remains unclear how they relate to clinical outcomes such as health and daily functioning. We aimed to assess the added value of self-reported PROMs for health status (HS) and quality of life (QoL) in the long-term follow-up of children with foregut anomalies. We evaluated data of PROMs for HS and/or QoL among eight-year-olds born with congenital diaphragmatic hernia (CDH), esophageal atresia (EA), or congenital lung malformations (CLM), collected within the infrastructure of a multidisciplinary, longitudinal follow-up program. Clinical outcomes were categorized into different outcome domains, and their relationships with self-reported HS and QoL were assessed through multivariable linear regression analyses. A total of 220 children completed HS and/or QoL self-reports. In children with CDH and EA, lower cognition was significantly associated with lower self-reported HS. Due to the low number of cases, multivariable linear regression analysis was not possible in children with CLM. HS, QoL, and clinical outcomes represent different aspects of a child’s wellbeing and should be measured simultaneously to facilitate a more holistic approach to clinical decision making. Full article
(This article belongs to the Special Issue Evaluation of Long-Term Outcomes of Congenital Diaphragmatic Hernia)
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