Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis

Gayà-Barroso, Aina; González-Moreno, Juan; Rodríguez, Adrián; Ripoll-Vera, Tomás; Losada-López, Inés; Gili, Margarita; Cisneros-Barroso, Eugenia

doi:10.3390/ijerph19084464

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Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis

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Eugenia Cisneros-Barroso

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Internal Medicine Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain

Health Research Institute of the Balearic Islands (IdISBa), Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain

Cardiology Department, Son Llàtzer University Hospital, 07198 Palma de Mallorca, Spain

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Department of Psychology, Spain Health Research Institute of the Balearic Islands (IdISBa), University of Balearic Islands, 07122 Palma de Mallorca, Spain

Author to whom correspondence should be addressed.

Academic Editors: Óscar Zurriaga, Clara Cavero-Carbonell and Paul B. Tchounwou

Int. J. Environ. Res. Public Health 2022, 19(8), 4464; https://doi.org/10.3390/ijerph19084464

Received: 3 February 2022 / Revised: 30 March 2022 / Accepted: 6 April 2022 / Published: 7 April 2022

(This article belongs to the Special Issue Second Edition of the Current Situation and Distribution of Rare Diseases: Challenges, Prevention, Healthcare, and Effects)

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Abstract

This study was designed to investigate the global utilization of occupational therapy (OT) services by patients with hereditary transthyretin amyloidosis (ATTRv) in Spain. The main objective was to find out whether these patients have access to OT services and the types of interventions being offered to them, together with their satisfaction and real benefits as users. We developed an online questionnaire which was distributed to patients with ATTRv in Spain through patient associations. Seventy-four patients with a diagnosis of ATTRv residing in Spain participated in the study. Thirteen had already used OT services at least once, felt that OT interventions improved their quality of life, would recommend OT services to others, and would return to see an occupational therapist. However, 61 had never used this type of service before. Of these, 35 knew what OT is and 13 declared that they considered that OT interventions in ATTRv could be positive for them. The results suggest that the use of OT services by ATTRv patients is low, mainly because of the lack of information about the occupational profile of individuals with this disease. The low response rate obtained for the survey limits generalization, and thus further research to confirm these preliminary findings is needed. View Full-Text

Keywords: transthyretin; amyloidosis; occupational therapy; polyneuropathy; accessibility

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Gayà-Barroso, A.; González-Moreno, J.; Rodríguez, A.; Ripoll-Vera, T.; Losada-López, I.; Gili, M.; Cisneros-Barroso, E. Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis. Int. J. Environ. Res. Public Health 2022, 19, 4464. https://doi.org/10.3390/ijerph19084464

AMA Style

Gayà-Barroso A, González-Moreno J, Rodríguez A, Ripoll-Vera T, Losada-López I, Gili M, Cisneros-Barroso E. Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis. International Journal of Environmental Research and Public Health. 2022; 19(8):4464. https://doi.org/10.3390/ijerph19084464

Chicago/Turabian Style

Gayà-Barroso, Aina, Juan González-Moreno, Adrián Rodríguez, Tomás Ripoll-Vera, Inés Losada-López, Margarita Gili, and Eugenia Cisneros-Barroso. 2022. "Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis" International Journal of Environmental Research and Public Health 19, no. 8: 4464. https://doi.org/10.3390/ijerph19084464

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Accessibility to Occupational Therapy Services for Hereditary Transthyretin Amyloidosis

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