Special Issue "Health Care from Patients' Perspective"

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Care Sciences & Services".

Deadline for manuscript submissions: 1 July 2022.

Special Issue Editors

Prof. Dr. Andrea Glässel
E-Mail Website1 Website2
Guest Editor
Institute of Biomedical Ethics and Medical History (IBMH), University of Zurich, 8006 Zürich, Switzerland;
Institute of Health Science (IHS), School of Health Professions, Zurich University of Applied Sciences (ZUAS), 8400 Winterthur, Switzerland
Interests: qualitative research; patient perspective; ICF research; interprofessional teaching; Delphi surveys
Prof. Dr. Christine Holmberg
E-Mail Website
Guest Editor
Institute of Social Medicine and Epidemiology, Medical School Brandenburg Theodor Fontane, Hochstrasse 15, 14770 Brandenburg an der Havel, Germany
Interests: experience; mixed-method study designs; patient perspective; health services research; social health

Special Issue Information

Dear Colleagues, 

We are organizing a Special Issue on “Health Care from Patients’ Perspective” in the International Journal of Environmental Research and Public Health, a peer-reviewed journal that publishes articles and communications in the interdisciplinary area of environmental health sciences and public health. For detailed information on the journal, please refer to https://www.mdpi.com/journal/ijerph.

This IJERPH Special Issue on “Health Care from Patients’ Perspective” will focus on patients’ perspective as experts, on their challenges and health-care-related experiences embedded in a biopsychosocial framework. Research on experiences will build the core of this issue. They will not only provide insights into complex health care situations and ethical-related questions but also into patient-centered problems as a possible starting point for improving the health care system and/or policy. It will also include an interprofessional perspective on patients’ health care providers, relatives or significant others.  

This Special Issue offers an opportunity to publish high-quality papers on health and illness narratives to health-related topics based on qualitative research, including participatory research methodology from the whole spectrum of care, such as health promotion, prevention, chronic diseases, rehabilitation or palliative care. We also welcome high-quality systematic and scoping reviews related to these matters. We would be pleased if this Special Issue serves as a trigger for the provision of insightful data for the design of teaching relevant studies based on narratives that are implemented in study programs on health care professionals such as therapists, nurses, midwifes, medicine, and other professions.

Prof. Dr. Andrea Glässel
Prof. Dr. Christine Holmberg
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All papers will be peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • patient experiences
  • illness narratives
  • chronic disease
  • health promotion
  • prevention
  • rehabilitation
  • qualitative research
  • participatory research
  • biopsychosocial perspective

Published Papers (5 papers)

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Research

Article
“I Had to Rediscover Our Healthy Food”: An Indigenous Perspective on Coping with Type 2 Diabetes Mellitus
Int. J. Environ. Res. Public Health 2022, 19(1), 159; https://doi.org/10.3390/ijerph19010159 - 24 Dec 2021
Viewed by 495
Abstract
Type 2 Diabetes Mellitus (T2DM) is disproportionally prevalent among the Bedouin minority in Israel, with especially poor treatment outcomes compared to other indigenous groups. This study uses the perspective of the Bedouins themselves to explore the distinct challenges they face, as well as [...] Read more.
Type 2 Diabetes Mellitus (T2DM) is disproportionally prevalent among the Bedouin minority in Israel, with especially poor treatment outcomes compared to other indigenous groups. This study uses the perspective of the Bedouins themselves to explore the distinct challenges they face, as well as their coping strategies. The study is based on an interpretive interactionist analysis of 49 semi-structured interviews with Bedouin men and women. The findings of the analysis include three themes. First, physical inequality: the Bedouin community’s way of coping is mediated by the transition to a semi-urban lifestyle under stressful conditions that include the experience of land dispossession and the rupture of caring relationships. Second, social inequality: they experience an inaccessibility to healthcare due to economic problems and a lack of suitable informational resources. Third, unique resources for coping with T2DM: interviewees use elements of local culture, such as religious practices or small enclaves of traditional lifestyles, to actively cope with T2DM. This study suggests that there is a need to expand the concept of active coping to include indigenous culture-based ways of coping (successfully) with chronic illness. Full article
(This article belongs to the Special Issue Health Care from Patients' Perspective)
Article
National Profile of Caregivers’ Perspectives on Autism Spectrum Disorder Screening and Care in Primary Health Care: The Need for Autism Medical Home
Int. J. Environ. Res. Public Health 2021, 18(24), 13043; https://doi.org/10.3390/ijerph182413043 - 10 Dec 2021
Viewed by 526
Abstract
Although autism spectrum disorder (ASD) is a common developmental disorder, primary healthcare providers show a deficit in providing early diagnosis. To understand parents’ experience and perspective in the diagnosis and intervention process of their children, a survey was deployed through social media to [...] Read more.
Although autism spectrum disorder (ASD) is a common developmental disorder, primary healthcare providers show a deficit in providing early diagnosis. To understand parents’ experience and perspective in the diagnosis and intervention process of their children, a survey was deployed through social media to parents’ with at least one child diagnosed with ASD. The survey included parents experience, satisfaction and perception in the diagnosis process and services provided for their children, stigma and type of support received. A total of 223 participants were enrolled. Although 62% of ASD patients were diagnosed by three years old, most diagnoses (66%) were non-physician initiated. Additionally, 40.8% of the parents reported that the services required for their child are available in their area of residence, but only 7.9% were satisfied with these services. Parents who received psychological support (9.9%) started early intervention, and their children have a better prognosis (p ≤ 0.005). Stigmatized parents were more likely to delay intervention (p ≤ 0.005). Parents’ perception is to have qualified healthcare and educational professionals experienced in ASD. Our findings suggest that a specialized family-centred medical home for ASD patients would significantly benefit ASD patients, increase parents’ satisfaction, reduce parents’ stress, and ease their children’s transition to adolescents. Full article
(This article belongs to the Special Issue Health Care from Patients' Perspective)
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Article
Parkinson’s Disease and Deep Brain Stimulation Have an Impact on My Life: A Multimodal Study on the Experiences of Patients and Family Caregivers
Int. J. Environ. Res. Public Health 2021, 18(18), 9516; https://doi.org/10.3390/ijerph18189516 - 09 Sep 2021
Viewed by 711
Abstract
Parkinson’s disease (PD) has a large impact on patients’ physical and mental health, which also greatly affects their family caregivers. Deep brain stimulation (DBS) has emerged as an effective treatment for PD, but different authors have expressed their concerns about the potential impact [...] Read more.
Parkinson’s disease (PD) has a large impact on patients’ physical and mental health, which also greatly affects their family caregivers. Deep brain stimulation (DBS) has emerged as an effective treatment for PD, but different authors have expressed their concerns about the potential impact of DBS on personality and identity. Our study aims at better understanding how patients and family caregivers experience life with PD and DBS, the impact of both on their personal and social lives, and their perception of the changes that have occurred as a result of the disease and the treatment. Our study applies a multimodal approach by means of narrative semi-structured interviews and drawings. Seven principal themes have been identified: “everyone’s Parkinson’s is different”, “changing as a person during the disease”, “going through Parkinson’s together”, “DBS improved my life”, “I am treated with DBS but I have Parkinson’s still”, “DBS is not perfect”, and “being different after DBS”. PD is perceived as an unpredictable and heterogeneous disease that changes from person to person, as does the effect of DBS. While DBS side-effects may have an impact on patients’ personality, behavior, and self-perception, PD symptoms and drug side-effects also have a great impact on these aspects. Full article
(This article belongs to the Special Issue Health Care from Patients' Perspective)
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Article
Validation and Adjustment of the Patient Experience Questionnaire (PEQ): A Regional Hospital Study in Norway
Int. J. Environ. Res. Public Health 2021, 18(13), 7141; https://doi.org/10.3390/ijerph18137141 - 03 Jul 2021
Viewed by 1038
Abstract
This paper assesses the psychometric qualities of the Patient Experience Questionnaire (PEQ), thereby validating a patient-oriented measurement model in a hospital environment, and modifies the model based on empirical results. This study employed survey data gathered by the Norwegian Institute of Public Health [...] Read more.
This paper assesses the psychometric qualities of the Patient Experience Questionnaire (PEQ), thereby validating a patient-oriented measurement model in a hospital environment, and modifies the model based on empirical results. This study employed survey data gathered by the Norwegian Institute of Public Health from adult inpatients at somatic hospitals in the Health South-East RHF in Norway. The survey engaged 4603 patients out of 8381 from five main hospitals in the region. The study found that an eight-factor model of the PEQ generally showed good fitness to the data, but assessment of discriminant validity showed that this was not the optimal factor solution among four of the eight dimensions. After comparing models, the study proposed a model with a second-order factor for four of the factors: “nurse services”, “doctor services”, “information”, and “organization”, collectively named “treatment services”. The proposed model demonstrated good validity and reliability results. The results present theoretical and practical implications. The study recommends that inferential analyses on the PEQ should be done with the second-order factor. Furthermore, a revision of the PEQ is recommended subject to more confirmatory studies with larger samples in different regions. The study indicates a second-order factor structure for assessing and understanding patient experiences—a finding which has both theoretical and managerial implications. Full article
(This article belongs to the Special Issue Health Care from Patients' Perspective)
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Article
A Swiss Health Care Professionals’ Perspective on the Meaning of Interprofessional Collaboration in Health Care of People with MS—A Focus Group Study
Int. J. Environ. Res. Public Health 2021, 18(12), 6537; https://doi.org/10.3390/ijerph18126537 - 17 Jun 2021
Cited by 1 | Viewed by 953
Abstract
Multiple sclerosis (MS) is a chronic, inflammatory autoimmune disease of the central nervous system mainly of adults ranging from 20 to 45 years of age. The risk of developing MS is 50% higher in women than in men. Most people with MS (PwMS) [...] Read more.
Multiple sclerosis (MS) is a chronic, inflammatory autoimmune disease of the central nervous system mainly of adults ranging from 20 to 45 years of age. The risk of developing MS is 50% higher in women than in men. Most people with MS (PwMS) experience a spectrum of symptoms such as spasticity, continence dysfunctions, fatigue, or neurobehavioral manifestations. Due to the complexity of MS and the variety of patient-centered needs, a comprehensive approach of interprofessional collaboration (IPC) of multiple health care professionals (HCP) is necessary. The aim of this qualitative study was to explore the meaning of IPC in the comprehensive care of PwMS from a HCP perspective. Focus groups (FG) with HCP were conducted, recorded, and transcribed verbatim. The sample contained HCP from three MS clinics in different phases of care and rehabilitation. Four main categories emerged: (a) experience with IPC, (b) relevant aspects for IPC in patients’ treatment, (c) differences in in- and outpatient settings, and (d) influence of patient perspective. IPC plays a crucial role in HCP perspective when treating PwMS, which can benefit from an IPC therapeutic approach because HCP work together in a patient-centered way. The inpatient setting of HCP strongly supports the implementation of IPC. This prerequisite does not exist in outpatient settings. Full article
(This article belongs to the Special Issue Health Care from Patients' Perspective)
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