Dementia Care: Voices from Under-Represented Groups
A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Care Sciences & Services".
Deadline for manuscript submissions: closed (30 June 2023) | Viewed by 6226
Special Issue Editors
Interests: cognitive decline in older people
Special Issue Information
Dear Colleagues,
Dementia is a global health concern. In 2020, 55 million people were recorded as living with dementia, and these figures are expected to reach 139 million by 2050.
In 2012, WHO recommended the development of a Dementia Plan to face this challenge. Thus far, however, only 32 countries have dedicated dementia plans. In consideration of the huge demographic, socio-economic, cultural and health care organizations between countries, strategies to provide care for dementia are developing worldwide.
Currently, 60% of people with dementia live in low- and middle-income countries (LMIC) and this is estimated to reach 71% by 2050. Most LMIC face great challenges in providing adequate diagnosis, care and support for people with dementia and their families. These challenges include limited public knowledge about dementia symptoms, diagnostic stigma and low diagnostic rates, as well as financial constraints concomitant with demands from other major social and public health problems. and lack of research funding.
Without or with dementia plans or specific public policies, many countries have adopted different strategies or facilities for dementia. These facilities are implemented at different socioeconomic and political levels and in different areas of the healthcare system.
There is a lack of evidence of health or social facilities for dementia and public policies for dementia of LMIC or economy in transition.
Even in countries with an established dementia care plan, some minority groups are often neglected. For example, migrants are particularly vulnerable to dementia due to the psychological trauma of displacement and their social isolation in a new country. Most of them might have low literacy, brain injuries, limited knowledge of dementia symptoms and internalized diagnostic stigma from their original countries. However, only 25% of the national plans explicitly mentioned this group. Another striking example is that of people with intellectual disabilities. Despite their increased risk of early onset dementia, particularly in people with Down syndrome, the literature regarding the efficacy of post-diagnostic support remains poor, and guidelines are lacking.
In this Special Issue, we would like to give a voice to those groups who are neglected in the usual national care plan and research.
We call for papers on dementia care (from prevention to treatment, from clinical care to epidemiological or economic analysis) in LMICs and in minority groups in all countries.
Dr. Yaohua Chen
Prof. Dr. Andrea Slachevsky
Guest Editors
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Keywords
- dementia
- care plan
- prevention
- risk factors
- lMIC
- equity
- underrepresented populations
- intellectual disabilities
- migrants
- public policies
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