Family-Centred Interventions for Children with Disabilities and Chronic Illnesses: Practice-Based Evidence
A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Global Pediatric Health".
Deadline for manuscript submissions: closed (5 April 2024) | Viewed by 21224
Special Issue Editor
Interests: intellectual and developmental disabilities; family; community based supports; innovative services; social inclusion; public attitudes
Special Issues, Collections and Topics in MDPI journals
Special Issue Information
Dear Colleagues,
Internationally, family-centred services are seen as essential in promoting the development of children with developmental disabilities and caring for those with chronic and life-limiting conditions. Building the resilience and wellbeing of families to meet the ongoing needs of their child has to be a major priority. However, current service provision in most affluent countries remains predominately child-focused and clinic-centred. Often, it is more affluent and better educated parents living in urban settings who benefit. In less affluent countries, many families receive little or no support, and struggle with other challenges such as poverty, inadequate housing and social isolation.
The Special Issue aims to bring together international expertise and experience on the design and delivery of family-centred interventions. Articles that focus on ‘hard-to-reach’ families due to rurality, ethnicity, poverty and culture are especially welcome. Our objective is to document strategies that have been shown to be effective and efficient so that they can be replicated within and across nations. Although evidence of impact on families as well as children is necessary, details of the formative evaluations that were undertaken are essential.
We hope that practitioners in health, social services and education from various professions will find the time to document their successes and lessons learnt. Articles with multi-disciplinary authorships are especially sought.
In recent years, a number of review articles have been published on family-centred care which highlight the issues that we hope the Special Issue will be able to address.
Carrington L, Hale L, Freeman C, Qureshi A, Perry M. Family-Centred Care for Children with Biopsychosocial Support Needs: A Scoping Review. Disabilities. 2021 Sep 27;1(4):301-30. https://doi.org/10.3390/disabilities1040022
Kokorelias KM, Gignac MA, Naglie G, Cameron JI. Towards a universal model of family centered care: a scoping review. BMC health services research. 2019 Dec;19(1):1-1. https://doi.org/10.1186/s12913-019-4394-5
McCarthy E, Guerin S. Family‐centred care in early intervention: A systematic review of the processes and outcomes of family‐centred care and impacting factors. Child: Care, Health and Development. 2022 Jan;48(1):1-32. https://doi.org/10.1111/cch.12901
Ridgway L, Hackworth N, Nicholson JM, McKenna L. Working with families: A systematic scoping review of family-centred care in universal, community-based maternal, child, and family health services. Journal of Child Health Care. 2021 Jun;25(2):268-89. https://doi.org/10.1177/1367493520930172
Please feel free to contact if you have any further queries or comments.
Prof. Dr. Roy McConkey
Guest Editor
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Keywords
- family-centred
- intervention
- parents
- families
- practice
- practioners
- development
- disability
- chronic illness
- resilience
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