Psychosocial Care and Support in Dementia

A special issue of Behavioral Sciences (ISSN 2076-328X). This special issue belongs to the section "Health Psychology".

Deadline for manuscript submissions: 15 October 2025 | Viewed by 3269

Special Issue Editors


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Guest Editor
1. Department of Psychiatry and Neuropsychology and Alzheimer Centrum Limburg, Maastricht University, 6229 ET Maastricht, The Netherlands
2. Department of Clinical Neuroscience, Karolinska Institutet, 171 77 Solna, Sweden
Interests: mild cognitive impairment; Alzheimer's disease; dementia; neuropsychology; caregiving; eHealth; pain management; interventions; affect; experience sampling method

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Guest Editor
Institute of Mental Health, University of Nottingham, Nottingham NG7 2RD, UK
Interests: lived experiences of people with dementia and carers; social health; post-diagnostic support; psychosocial interventions; technology; patient and public involvement (PPI)
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Special Issue Information

Dear Colleagues,

According to the World Health Organization, more than 55 million people are currently living with dementia worldwide. Dementia is a major cause of disability and dependency, resulting in high economical costs (i.e., 1.3 trillion US dollars globally, 2019), with 50% of these care costs being attributable to care provided by informal caregivers (e.g., partners, family members, and close friends). Psychosocial care and support can help people with dementia and informal caregivers adjust to the diagnosis, develop coping skills, and maintain independence and wellbeing. Therefore, psychosocial care and support are essential for both the person with dementia and informal caregivers.

In recent years, the research field of psychosocial care and support for dementia has rapidly expanded. There is growing interest in aspects such as (1) social health and inclusion; (2) resilience and coping; (3) technology use and digital interventions; (4) inequity and inequality in access to care and support; and (5) novel methodological approaches. Given the importance of these topics, more studies are being conducted in this area. This Special Issue focuses on the development, evaluation, and/or implementation of psychosocial care and support in dementia to advance research, practice, and policy. We welcome reviews and original research articles focusing on these topics targeting any dementia types, stages, and care settings.

Dr. Sara Laureen Bartels
Dr. Esther Loseto-Gerritzen
Guest Editors

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Keywords

  • dementia
  • Alzheimer’s disease
  • young-onset dementia
  • caregiving
  • social health
  • inclusion
  • resilience
  • coping
  • technology
  • eHealth
  • inequality
  • inequity
  • minority
  • methodology
  • intervention
  • psychosocial
  • development
  • evaluation
  • implementation
  • sustainability

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Published Papers (3 papers)

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Research

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13 pages, 241 KiB  
Article
Close to the Comfort Zone: Stakeholders’ Perspectives on Implementing Leisure Activities in Dementia and Eldercare
by Golnaz Atefi, Hannah L. Christie, Marjolein E. de Vugt and Michael P. Craven
Behav. Sci. 2025, 15(3), 347; https://doi.org/10.3390/bs15030347 - 12 Mar 2025
Viewed by 469
Abstract
Background: This study aimed to explore stakeholders’ perspectives on implementing non-digital leisure activities to promote social interaction in dementia and eldercare settings. Methods: A secondary analysis of online semi-structured interviews was conducted, focusing on nine stakeholders with expertise in dementia and eldercare. The [...] Read more.
Background: This study aimed to explore stakeholders’ perspectives on implementing non-digital leisure activities to promote social interaction in dementia and eldercare settings. Methods: A secondary analysis of online semi-structured interviews was conducted, focusing on nine stakeholders with expertise in dementia and eldercare. The data collected were analyzed using inductive qualitative thematic analysis to identify key themes and insights. Results: Three key themes emerged, emphasizing inclusivity, usability, and context. Stakeholders highlighted the importance of tailored activities, ease of use, and privacy. Challenges included resource allocation and availability. The findings underscore the significance of supporting innovations in both digital and non-digital leisure activities within dementia and eldercare settings. Clinicians and policymakers should consider integrating inclusive activities into care plans to enhance social interaction for older adults. Future research should focus on identifying optimal levels of engagement and evaluating the effectiveness of leisure activities in promoting well-being among older adults in diverse settings. Conclusion: Despite current limitations, stakeholders affirmed the value of non-digital leisure activities, such as board games, for enhancing social interaction and well-being in dementia and eldercare settings. Integrating non-digital and digital activities was seen as promising for meeting diverse needs. Full article
(This article belongs to the Special Issue Psychosocial Care and Support in Dementia)
15 pages, 526 KiB  
Article
Development of a Best Practice Guidance on Online Peer Support for People with Young-Onset Dementia
by Esther Vera Loseto-Gerritzen, Orii McDermott and Martin Orrell
Behav. Sci. 2024, 14(9), 746; https://doi.org/10.3390/bs14090746 - 26 Aug 2024
Viewed by 1148
Abstract
This work aimed to develop a Best Practice Guidance on online peer support for people with young-onset dementia (YOD). The Best Practice Guidance was developed through a systematic literature review, focus groups, an online survey, and interviews and consultations with people with YOD [...] Read more.
This work aimed to develop a Best Practice Guidance on online peer support for people with young-onset dementia (YOD). The Best Practice Guidance was developed through a systematic literature review, focus groups, an online survey, and interviews and consultations with people with YOD and professionals. The Best Practice Guidance consists of two parts. Part 1 contains information for people with YOD about what online peer support entails, what to expect from it, and how to get involved. Part 2 is aimed at those who facilitate or moderate online peer support (professionals or people with lived experience) and includes guidelines on how to optimize online peer support for people with YOD. The Best Practice Guidance on online peer support provides (1) people with YOD with evidence-based, relevant, and accessible information about what online peer support entails and how it could help them, (2) providers and facilitators with guidelines on how to optimize online peer support for people with YOD, and (3) healthcare professionals with a concise and accessible tool for signposting. Future research is needed to implement and disseminate the Best Practice Guidance among dementia organizations and healthcare practices and should include rigorous studies on the implementation and sustainability of online peer support for people with YOD. Full article
(This article belongs to the Special Issue Psychosocial Care and Support in Dementia)
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Review

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19 pages, 962 KiB  
Review
Effective for Whom? A Review of Psychological and Social Intervention Recommendations in European Dementia Care Guidelines Through the Lenses of Social Health and Intersectionality
by David Neal, Sara Laureen Bartels, Saloua Berdai Chaouni, Thais Caprioli, Adelina Comas-Herrera, Rabih Chattat, Ana Diaz, Rose-Marie Dröes, Thomas Faulkner, Simone Anna Felding, Manuel Franco-Martin, Clarissa Giebel, Manuel Gonçalves-Pereira, Samira Hesse, Iva Holmerova, Wei Qi Koh, Emily Mena, Julia Misonow, Anahit Mkrtchyan, Nicole Müller, Martina Roes, Isabeau van Rompuy, Joanna Rymaszewska, Dorota Szcześniak, Jochen René Thyrian, Marjolein de Vugt, Amy Walden, Karin Wolf-Ostermann and Louise Hopperadd Show full author list remove Hide full author list
Behav. Sci. 2025, 15(4), 457; https://doi.org/10.3390/bs15040457 - 2 Apr 2025
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Abstract
In dementia care, access to effective psychosocial interventions is often addressed by evidence-based guidelines for care providers. However, it is unclear if current guidelines consider personal characteristics that may impact intervention effectiveness. This study investigates if, and within what framing, dementia care guidelines [...] Read more.
In dementia care, access to effective psychosocial interventions is often addressed by evidence-based guidelines for care providers. However, it is unclear if current guidelines consider personal characteristics that may impact intervention effectiveness. This study investigates if, and within what framing, dementia care guidelines in Europe address what is effective and for whom. A review of 47 guidelines from 12 European countries was conducted. Content analysis focused on (i) if guidelines recommended specific psychosocial interventions, and how guidelines referred to (ii) social health, (iii) the intersection of social positioning, and (iv) inequities in care or outcomes. Thirty-five guidelines (74%) recommended specific psychosocial interventions. Around half referenced aspects of social health and of intersectionality. Thirteen guidelines (28%) referenced inequities. Social health was not explicitly recognised as a mechanism of psychosocial interventions. Only age and comorbidity were consistently considered to impact interventions’ effectiveness. Inequities were acknowledged to arise from within-country regional variations and individual economic status, but were not linked to (intersectional) individual societal positions such as sex and/or gender, sexuality, and/or religion. The results between European countries were heterogeneous. Current guidelines offer little insight into what works for whom. Policymakers and guideline developers should work with researchers, generating and translating evidence into policy. Full article
(This article belongs to the Special Issue Psychosocial Care and Support in Dementia)
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