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Adolescents and Young Adults (AYAs) with Cancer: Part II
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Adolescents and Young Adults (AYAs) with Cancer: Part II

A special issue of Journal of Clinical Medicine (ISSN 2077-0383). This special issue belongs to the section "Oncology".

Deadline for manuscript submissions: closed (19 April 2024) | Viewed by 1087

Special Issue Editor

Dr. Olga Husson

E-Mail Website
Guest Editor
Division of Clinical Studies, Department of Medical Oncology and Institute of Cancer Research, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands
Interests: adolescent and young adult oncology; sarcoma; patient-report outcomes; health-related quality of life; epidemiology
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

Adolescent and young adult (AYA) cancer patients, those who are diagnosed with cancer for the first time at the age of 15–39 years, are recognized as a distinct population within the oncology community due to the unique challenges that they face throughout their disease trajectory. This Special Issue focuses on all aspects of AYA cancer oncology: epidemiology, diagnostic trajectory, medical treatment, palliative care, medical and psychological long-term and late effects, health-related quality of life, and (psychological) interventions.

Dr. Olga Husson
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Journal of Clinical Medicine is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2600 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • adolescents and young adults
  • oncology
  • palliative care medical health outcomes
  • epidemiology
  • interventions

Published Papers (1 paper)

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Research

19 pages, 238 KiB  
Article
Same Journey, Different Paths: Caregiver Burden among Informal Caregivers of Adolescent and Young Adult Patients with an Uncertain or Poor Cancer Prognosis (UPCP)
by Milou J. P. Reuvers, Vivian W. G. Burgers, Carla Vlooswijk, Bram Verhees, Olga Husson and Winette T. A. van der Graaf
J. Clin. Med. 2024, 13(1), 158; https://doi.org/10.3390/jcm13010158 - 27 Dec 2023
Viewed by 907
Abstract
A minority of adolescent and young adult cancer patients (AYA) live with an uncertain or poor prognosis (UPCP). Caring for a young, advanced cancer patient can lead to caregiver burden. This study aims to provide insight into burden on informal caregivers of AYA [...] Read more.
A minority of adolescent and young adult cancer patients (AYA) live with an uncertain or poor prognosis (UPCP). Caring for a young, advanced cancer patient can lead to caregiver burden. This study aims to provide insight into burden on informal caregivers of AYA cancer patients with UPCP. In-depth, semistructured interviews were conducted with parents (n = 12), siblings (n = 7), friends (n = 7), and partners (n = 13). Thematic analysis was performed to derive themes from the data. Participants reported sleeping problems and stress. They struggle with uncertainty, fear, loss, and negative emotions. Family life is altered due to solely taking care of the children, but also the AYA. Contact with friends and family is changed. The relationship to the AYA can shift positively (e.g., becoming closer) or negatively (e.g., more conflict or no longer being attracted). Participants were under pressure, having to take on many responsibilities and multiple roles. In the financial domain, they report less income and often must continue working. A high amount of caregiver burden is experienced among informal caregivers of AYAs with UPCP. Yet only part of the impact appears to be age specific. Specific, age-adjusted interventions can be developed to lower the burden. Full article
(This article belongs to the Special Issue Adolescents and Young Adults (AYAs) with Cancer: Part II)
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