2nd Edition: Adolescent and Young Adult Oncology

A special issue of Cancers (ISSN 2072-6694). This special issue belongs to the section "Cancer Survivorship and Quality of Life".

Deadline for manuscript submissions: closed (30 September 2023) | Viewed by 2728

Special Issue Editors


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Guest Editor
Division of Clinical Studies, Department of Medical Oncology and Institute of Cancer Research, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands
Interests: adolescent and young adult oncology; sarcoma; patient-report outcomes; health-related quality of life; epidemiology
Special Issues, Collections and Topics in MDPI journals

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Guest Editor
Department of Medical Oncology, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands
Interests: sarcoma; AYA (adolescents young adults); TYA (teenager young adults); survivorshop; GIST (gastrointestinal stromal tumour); bone; soft tissue; desmoid
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

This collection is the second edition of the previous one "Adolescent and Young Adult Oncology":
https://www.mdpi.com/journal/cancers/special_issues/Adolescent_Young_Adult_Oncology.

Adolescents and young adults (AYA) are recognized as a distinct population within the oncology community due to the unique challenges they encounter including recognition, diagnosis, treatment and monitoring of their disease. AYA presents with a unique spectrum of cancers: either with a pediatric malignancy, a tumor of AYA age, or with an adult. About 80% of AYA with cancer will achieve a long-term cure. While cancer outcomes for children and older adults have continued to improve over the last decades, the AYA group has lagged behind. Among the many issues identified for the lack of improvement was the exceedingly low participation rate in clinical trials. Many other factors contribute to the poorer outcome of AYA oncology patients, including differences in host and disease biology, and lack of insight into risk factors. delayed diagnosis, different treatment regimens, poor compliance with and poor adherence to therapy, and unique psychosocial and economic issues related to their age at cancer diagnosis.

The focus of this Special Issue is to consider the following aspects of AYA oncology: (a) Etiology, Biology and Genetics; (b) Diagnosis; (c) Clinical trials; (d) Treatment and Care; (e) Fertility; (f) Long-term and Late Effects; (g) Survivorship Care; (h) Palliative Care; (i) End-of-Life Care.

Dr. Olga Husson
Prof. Dr. Winette T.A. van der Graaf
Guest Editors

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Keywords

  • adolescent and young adult oncology
  • genetics
  • diagnosis
  • clinical trials
  • reatment
  • fertility
  • survivorship
  • late effects
  • palliative care
  • end-of-life care

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Published Papers (1 paper)

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Review

24 pages, 1244 KiB  
Review
Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs
by Milou J. P. Reuvers, Asiye Gedik, Kirsty M. Way, Sanne M. Elbersen-van de Stadt, Winette T. A. van der Graaf and Olga Husson
Cancers 2023, 15(12), 3263; https://doi.org/10.3390/cancers15123263 - 20 Jun 2023
Cited by 6 | Viewed by 2428
Abstract
AYAs with cancer (aged 15 to 39 at primary diagnosis) form a specific group within oncology, and there is limited information on the impact on their informal caregivers. This scoping review aimed to gain insight into the burden on caregivers of AYAs with [...] Read more.
AYAs with cancer (aged 15 to 39 at primary diagnosis) form a specific group within oncology, and there is limited information on the impact on their informal caregivers. This scoping review aimed to gain insight into the burden on caregivers of AYAs with cancer and identify the unmet needs they might have. Eligible articles focused on impacts in one of the domains of caregiver burden (physical, psychological, social, on schedule, financial) or unmet needs. In all domains of caregiver burden, impact was reported by caregivers. Caregiving leads to physical problems (such as sleep problems) and psychological symptoms (e.g., depression, anxiety, and negative emotions). Loneliness is reported, and little peer-support. Many different tasks and roles must be undertaken, which is perceived as challenging. In addition, there is a financial impact and there are unmet needs to be met. Several domains of the lives of caregivers of AYA cancer patients are negatively affected by the disease. Some of these are age-specific, and tailored to a particular group of caregivers (parents, partners, or friends). AYA cancer patients represent a wide age range, resulting in the engagement of many different caregivers. Future research will need to take this into account in order to adequately provide support. Full article
(This article belongs to the Special Issue 2nd Edition: Adolescent and Young Adult Oncology)
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