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Opinion

European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe

by
Luis Nacul
1,2,*,†,
François Jérôme Authier
3,†,
Carmen Scheibenbogen
4,
Lorenzo Lorusso
5,
Ingrid Bergliot Helland
6,
Jose Alegre Martin
7,
Carmen Adella Sirbu
8,
Anne Marit Mengshoel
9,
Olli Polo
10,
Uta Behrends
11,
Henrik Nielsen
12,
Patricia Grabowski
13,
Slobodan Sekulic
14,
Nuno Sepulveda
15,
Fernando Estévez-López
16,
Pawel Zalewski
17,
Derek F. H. Pheby
18,
Jesus Castro-Marrero
19,
Giorgos K. Sakkas
20,
Enrica Capelli
21,
Ivan Brundsdlund
22,
John Cullinan
23,
Angelika Krumina
24,
Jonas Bergquist
25,26,
Modra Murovska
27,
Ruud C. W. Vermuelen
28,‡ and
Eliana M. Lacerda
29,‡add Show full author list remove Hide full author list
1
London School of Hygiene and Tropical Medicine, Faculty of Infectious and Tropical Diseases, London WC1E 7HT, UK
2
BC Women’s Hospital, Vancouver, BC V6H 3N1, Canada
3
Faculty of Medicine Créteil—Paris Est, 94010 Creteil, France
4
Institute of Medical Immunology, Charité-Universitätsmedizin Berlin, 10117 Berlin, Germany
5
Neurology and Stroke Unit—Neuroscience Department—A.S.S.T.—Lecco, 23900 Merate, Italy
6
National Advisory Unit on CFS/ME, Oslo University Hospital, Rikshospitalet OUS, 0372 Oslo, Norway
7
Chronic Fatigue Unit, Hospital Universitari Vall d’Hebron University Hospital (VHIR), Universitat Autònoma de Barcelona, E-08035 Barcelona, Spain
8
Central Military Emergency University Hospital, Titu Maiorescu University, 040441 Bucharest, Romania
9
Institute of Health and Society, Medical Faculty, University of Oslo, Box 1089 Blindern, 0317 Oslo, Norway
10
Bragée ME/CFS Center, 115 26 Stockholm, Sweden
11
Department of Pediatrics, School of Medicine, Technical University of Munich, 80333 Munich, Germany
12
Privat Hospitalet Danmark, 2920 Charlottenlund, Denmark
13
Department of Hematology, Oncology and Tumor Immunology, Institute for Medical Immunology, Charite Medical School, 10117 Berlin, Germany
14
Medical Faculty Novi Sad, University of Novi Sad, 21000 Novi Sad, Serbia
15
Centre of Statistics and Its Applications, University of Lisbon, 1749-016 Lisbon, Portugal
16
Erasmus MC University Medical Center, 3015 Rotterdam, The Netherlands
17
Department of Hygiene, Epidemiology, Ergonomics and Postgraduate Education, Nicolaus Copernicus University in Torun, Collegium Medicum, 85-067 Bydgoszcz, Poland
18
Society and Health, Buckinghamshire New University (retired), High Wycombe HP11 2JZ, UK
19
Division of Rheumatology, ME/CFS Research Unit (Lab 009–Box 02), Vall d’Hebron Hospital Research Institute (VHIR), Val d’Hebron Hospital Research Unit (VIHR), Passeig de la Val d’Hebron 119-129, E-08035 Barcelona, Spain
20
Department of PE and Sports Science, University of Thessaly, 421 00 Trikala, Greece
21
Department of Earth and Environmental Sciences, University of Pavia, 27100 Pavia, Italy
22
Department of Regional Health Research, University Hospital of Southern Denmark, 5000 Odense, Denmark
23
School of Business & Economics, National University of Ireland Galway, University Road, H91 TK33 Galway, Ireland
24
Department of Infectiology and Dermatology, Riga Stradins University, LV-1067 Riga, Latvia
25
Department of Chemistry—Biomedical Center, Analytical Chemistry and Neuro Chemistry, Uppsala University, 751 23 Uppsala, Sweden
26
The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Collaborative Research Centre, Uppsala University, 751 23 Uppsala, Sweden
27
Institute of Microbiology and Virology, Riga Stradins University, LV-1067 Riga, Latvia
28
CFS/ME Medical Centre, 1078 Amsterdam, The Netherlands
29
Department of Clinical Research, Faculty of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, Keppel Street, London WC1E 7HT, UK
 
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*
Author to whom correspondence should be addressed.
†
Shared first authorship.
‡
Shared last authorship.
Academic Editor: Tibor Hortobágyi
Medicina 2021, 57(5), 510; https://doi.org/10.3390/medicina57050510
Received: 11 April 2021 / Revised: 13 May 2021 / Accepted: 13 May 2021 / Published: 19 May 2021
(This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis)
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Abstract

Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation in Science and Technology (COST)—COST action 15111—from 2016 to 2020. The main goal of the Cost Action was to assess the existing knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report our findings and make recommendations for clinical diagnosis, health services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS. View Full-Text
Keywords: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; diagnosis; health services; care Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; diagnosis; health services; care
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
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MDPI and ACS Style

Nacul, L.; Authier, F.J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.B.; Martin, J.A.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda, N.; Estévez-López, F.; Zalewski, P.; Pheby, D.F.H.; Castro-Marrero, J.; Sakkas, G.K.; Capelli, E.; Brundsdlund, I.; Cullinan, J.; Krumina, A.; Bergquist, J.; Murovska, M.; Vermuelen, R.C.W.; Lacerda, E.M. European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe. Medicina 2021, 57, 510. https://doi.org/10.3390/medicina57050510

AMA Style

Nacul L, Authier FJ, Scheibenbogen C, Lorusso L, Helland IB, Martin JA, Sirbu CA, Mengshoel AM, Polo O, Behrends U, Nielsen H, Grabowski P, Sekulic S, Sepulveda N, Estévez-López F, Zalewski P, Pheby DFH, Castro-Marrero J, Sakkas GK, Capelli E, Brundsdlund I, Cullinan J, Krumina A, Bergquist J, Murovska M, Vermuelen RCW, Lacerda EM. European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe. Medicina. 2021; 57(5):510. https://doi.org/10.3390/medicina57050510

Chicago/Turabian Style

Nacul, Luis, François J. Authier, Carmen Scheibenbogen, Lorenzo Lorusso, Ingrid B. Helland, Jose A. Martin, Carmen A. Sirbu, Anne M. Mengshoel, Olli Polo, Uta Behrends, Henrik Nielsen, Patricia Grabowski, Slobodan Sekulic, Nuno Sepulveda, Fernando Estévez-López, Pawel Zalewski, Derek F.H. Pheby, Jesus Castro-Marrero, Giorgos K. Sakkas, Enrica Capelli, Ivan Brundsdlund, John Cullinan, Angelika Krumina, Jonas Bergquist, Modra Murovska, Ruud C.W. Vermuelen, and Eliana M. Lacerda. 2021. "European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE): Expert Consensus on the Diagnosis, Service Provision, and Care of People with ME/CFS in Europe" Medicina 57, no. 5: 510. https://doi.org/10.3390/medicina57050510

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