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  • Article
  • Open Access
4 Citations
3,543 Views
16 Pages

Care Needs of Highly Complex Chronic Patients in the Canary Islands: An Observational Study

  • Martín Rodríguez-Álvaro,
  • Domingo Ángel Fernández-Gutiérrez,
  • Antonio Cabeza-Mora,
  • Rosario Barrios-Torres,
  • Nursing Methodology Group General Directorate of Health Care Programs of the Canary Islands Health Service (Primary Care) and
  • Pedro Ruymán Brito-Brito

20 December 2022

In the last few decades, the impact of chronic health conditions on health systems, as well as on the quality of life, frailty, and dependence of those affected, has been brought to light. The objective of this study was to describe the population ca...

  • Article
  • Open Access
2 Citations
1,860 Views
13 Pages

Qualitative Descriptive Research Investigating Burn Survivors’ Perspectives on Quality of Care Aspects

  • Raaba S. M. Thambithurai,
  • Lotte van Dammen,
  • Margriet E. van Baar,
  • Hendriët Wanders,
  • Angelique E. A. M. Weel-Koenders,
  • Tsjitske M. Haanstra,
  • Carine M. H. van Schie,
  • Paul P. M. van Zuijlen,
  • Cornelis H. van der Vlies and
  • on behalf of the National Burn Care, Education & Research Group, The Netherlands
  • + 4 authors

1 July 2024

Burn care quality indicators are used to monitor and improve quality of care and for benchmark purposes. The perspectives of burn survivors, however, are not included in current sets of quality indicators while patient-centred care gains importance....

  • Article
  • Open Access
4 Citations
3,810 Views
9 Pages

A Virtual Community of Practice: An International Educational Series in Pediatric Neurocritical Care

  • Jennifer C. Erklauer,
  • Ajay X. Thomas,
  • Sue J. Hong,
  • Brian L. Appavu,
  • Jessica L. Carpenter,
  • Nicolas R. Chiriboga-Salazar,
  • Peter A. Ferrazzano,
  • Zachary Goldstein,
  • Jennifer L. Griffith and
  • Pediatric Neurocritical Care Research Group
  • + 13 authors

20 July 2022

Pediatric neurocritical care (PNCC) is a rapidly growing field. Challenges posed by the COVID-19 pandemic on trainee exposure to educational opportunities involving direct patient care led to the creative solutions for virtual education supported by...

  • Article
  • Open Access
8 Citations
1,419 Views
8 Pages

Organizational Guidance for the Care of Patients with Head-and-Neck Cancer in Ontario

  • J. Irish,
  • J. Kim,
  • J. Waldron,
  • A.C. Wei,
  • E. Winquist,
  • J. Yoo,
  • A. Boasie,
  • M. Brouwers,
  • E. Meertens and
  • the Expert Panel on Organizational Guidance for the Care of Patients with Head and Neck Cancer in Ontario
  • + 2 authors

1 May 2020

Background: At the request of the Head and Neck Cancers Advisory Committee of Ontario Health (Cancer Care Ontario), a working group and expert panel of clinicians with expertise in the management of head-and-neck cancer developed the present guidelin...

  • Article
  • Open Access
1 Citations
3,440 Views
19 Pages

Cancer Care Team’s Management of Clinical Alerts Generated by Electronically Collected Patient Reported Outcomes: We Could Do Better

  • Orlando Rincones,
  • Adeola Bamgboje-Ayodele,
  • Anthony Arnold,
  • Geoff P. Delaney,
  • Ivana Durcinoska,
  • Sandra Avery,
  • Tiffany Sandell,
  • Stephen A. Della-Fiorentina,
  • Joanne Pearson and
  • Afaf Girgis
  • + 1 author

Electronically administered patient-reported outcome measures (ePROMs) are effective digital health tools for informing clinicians about cancer patients’ symptoms and facilitating timely patient-centred care. This paper describes the delivery o...

  • Systematic Review
  • Open Access
1 Citations
430 Views
23 Pages

Screening Tools for the Early Identification of Palliative Care Needs in Patients with Advanced Chronic Conditions: An Updated Systematic Review

  • Ana Bustamante-Fermosel,
  • Agustín Diego Chacón-Moreno,
  • Laetitia Hennekinne,
  • Fuensanta Gil-Gil,
  • Helena Notario-Leo,
  • Ricardo Larrainzar-Garijo,
  • Juan Torres-Macho,
  • Anabel Franco-Moreno,
  • Gerardo García Melcón and
  • on behalf of the Research in Palliative Care HUIL-Group

23 January 2026

Background/Objectives: Earlier initiation of palliative care improves clinical outcomes, including better symptom relief, enhanced quality of life, and decreased use of healthcare resources in advanced disease. This systematic review aimed to identif...

  • Article
  • Open Access
8 Citations
4,368 Views
15 Pages

Prevalence of Chronic Heart Failure, Associated Factors, and Therapeutic Management in Primary Care Patients in Spain, IBERICAN Study

  • Jose L. Llisterri-Caro,
  • Sergio Cinza-Sanjurjo,
  • Vicente Martín-Sánchez,
  • Gustavo C. Rodríguez-Roca,
  • Rafael M. Micó-Pérez,
  • Antonio Segura-Fragoso,
  • Sonsoles Velilla-Zancada,
  • Jose Polo-García,
  • Alfonso Barquilla-García and
  • on behalf of the Investigators of the IBERICAN Study and of the Spanish Society of Primary Care Physicians (SEMERGEN)’s Foundation
  • + 2 authors

7 September 2021

Background: The prevalence of chronic heart failure (CHF) in patients assisted in primary care is not well known. We investigated the prevalence of CHF, its associated factors, and its therapeutic management. Methods and findings: This was a cross-se...

  • Article
  • Open Access
35 Citations
19,031 Views
11 Pages

Spiritual Care in Palliative Care

  • Megan C. Best,
  • Bella Vivat and
  • Marie-Jose Gijsberts

28 February 2023

Palliative care has always included spiritual care, but the provision and inclusion of spiritual care within and across palliative care services internationally is sub-optimal. In this summary overview, we address understandings and meanings of spiri...

  • Article
  • Open Access
2,261 Views
12 Pages

Objective: This study aimed to explore self-care understanding and behaviours among aged-care workers in Australia. It was conducted as part of a project to co-produce a self-care resource for the Australian aged-care workforce. Methods: Semi-structu...

  • Article
  • Open Access
8 Citations
4,224 Views
15 Pages

Evaluation of Reablement Home Care: Effects on Care Attendants, Care Recipients, and Family Caregivers

  • Yu-Hsien Chiang,
  • Hui-Chuan Hsu,
  • Chiung-Ling Chen,
  • Chen-Fen Chen,
  • Shu-Nu Chang-Lee,
  • Ya-Mei Chen and
  • Shang-Wei Hsu

Background: The traditional home care model entails caring “for” people with disabilities, not “with” them. Reablement care has been applied to long-term care, but the evidence for care attendants, home care recipients, and fa...

  • Article
  • Open Access
31 Citations
5,333 Views
13 Pages

Rationing of Nursing Care in Intensive Care Units

  • Agnieszka Młynarska,
  • Anna Krawuczka,
  • Ewelina Kolarczyk and
  • Izabella Uchmanowicz

The nursing practice refers to a wide range of tasks and responsibilities. In a situation where there is a problem of limited resources, nurses are forced to ration the patient’s care—that is, minimize and skip some tasks. The main purpos...

  • Conference Report
  • Open Access
95 Citations
26,939 Views
20 Pages

8 May 2015

Nurses and health care professionals should have an active role in meeting the spiritual needs of patients in collaboration with the family and the chaplain. Literature criticizes the impaired holistic care because the spiritual dimension is often ov...

  • Article
  • Open Access
4 Citations
3,243 Views
17 Pages

Comparison of the Physical Care Burden on Formal Caregivers between Manual Human Care Using a Paper Diaper and Robot-Aided Care in Excretion Care

  • Jeong-Bae Ko,
  • Yong-Ku Kong,
  • Kyeong-Hee Choi,
  • Chang-Ki Lee,
  • Hyun-Ji Keum,
  • Jae-Soo Hong and
  • Byeong-Hee Won

Although the older population has been rapidly growing, the availability of formal caregivers remains limited. Assistance provided by care robots has helped lower this burden; however, whether using a care robot while providing excretion care (EC) is...

  • Article
  • Open Access
2,643 Views
19 Pages

24 July 2024

A total of 10% of children looked after in residential care in Scotland are aged 5–11. Although there has been a significant amount of information published about the care trajectories of adolescents in residential care, there is limited inform...

  • Article
  • Open Access
16 Citations
5,632 Views
15 Pages

Knowledge about Palliative Care and Attitudes toward Care of the Dying among Primary Care Nurses in Spain

  • Tamara Escoto Mengual,
  • Elena Chover-Sierra,
  • María Luisa Ballestar-Tarín,
  • Carles Saus-Ortega,
  • Vicente Gea-Caballero,
  • Natura Colomer-Pérez and
  • Antonio Martínez-Sabater

Objective: To analyze the knowledge in palliative care and the attitudes toward caring for the dying of nurses who carry out their professional activity in primary care in Spain. Design: A cross-sectional descriptive observational study was carried o...

  • Article
  • Open Access
1 Citations
1,492 Views
13 Pages

26 April 2025

Background: Person-centered care (PCC) approaches are widely recognized for improving the quality of life of residents living with dementia in long-term care (LTC). However, residents are only one part of the care dyad, and it remains unclear whether...

  • Concept Paper
  • Open Access
15 Citations
7,563 Views
15 Pages

The Problems with Care: A Feminist Care Scholar Retrospective

  • Janna Klostermann,
  • Laura Funk,
  • Holly Symonds-Brown,
  • Maria Cherba,
  • Christine Ceci,
  • Pat Armstrong and
  • Jeanette Pols

16 March 2022

Seeking to support qualitative researchers in the artful development of feminist care scholarship, our goal here is to ‘look back’ on how we have conceptualized the problems of care and developed research that illuminates the social organ...

  • Review
  • Open Access
6 Citations
5,148 Views
17 Pages

Integration of Psychosocial Theory into Palliative Care: Implications for Care Planning and Early Palliative Care

  • Thomas V. Merluzzi,
  • Natalia Salamanca-Balen,
  • Errol J. Philip,
  • John M. Salsman and
  • Andrea Chirico

13 January 2024

Palliative care improves patients’ symptoms, quality of life and family satisfaction with caregiving, reduces hospital admissions and promotes alignment of medical care with the patient’s needs and goals. This article proposes the utility...

  • Review
  • Open Access
43 Citations
9,933 Views
26 Pages

Diagnostic Modalities in Critical Care: Point-of-Care Approach

  • Sasa Rajsic,
  • Robert Breitkopf,
  • Mirjam Bachler and
  • Benedikt Treml

25 November 2021

The concept of intensive care units (ICU) has existed for almost 70 years, with outstanding development progress in the last decades. Multidisciplinary care of critically ill patients has become an integral part of every modern health care system, en...

  • Case Report
  • Open Access
1 Citations
3,374 Views
6 Pages

31 August 2022

Critical care pharmacists play an important role in ICU patient care, with evidence showing reductions in drug prescribing errors, adverse drug events and costs, as well as improvement in clinical outcomes, such as mortality and length of ICU stay. C...

  • Editorial
  • Open Access
16 Citations
4,669 Views
8 Pages

Specialist Palliative Care for Patients with Cancer: More Than End-of-Life Care

  • Craig Gouldthorpe,
  • Jenny Power,
  • Amy Taylor and
  • Andrew Davies

9 July 2023

Palliative care has traditionally focused on end-of-life care for patients with advanced cancer. This has since expanded to include symptom management and quality-of-life improvement from the moment of cancer diagnosis. Specialist palliative care tea...

  • Article
  • Open Access
9 Citations
2,809 Views
12 Pages

30 September 2022

Survivorship care plans aim to facilitate a smooth transition from tertiary to primary care settings after primary cancer treatment is completed. This study sought to identify the sociodemographic factors associated with receiving a survivorship care...

  • Brief Report
  • Open Access
9 Citations
13,441 Views
8 Pages

12 August 2022

The registered nurse has crucial preventative, therapeutic, sociocultural, and advocacy roles in promoting quality holistic patient-centred palliative care. This paper examines, describes, and analyses this multifaceted role from an antipodean perspe...

  • Article
  • Open Access
17 Citations
4,592 Views
10 Pages

The impact of formal care (co-paid by long term care (LTC) insurance) on informal care is critical to the improvement and promotion of public policy. We conducted an interview-based survey to examine how the use of formal care impacts the use of info...

  • Article
  • Open Access
3 Citations
1,617 Views
12 Pages

Increase in Chronic Medications and Polypharmacy—The Multifaceted Burden of COVID-19 Disease on Public Health Care

  • Antonella Gallo,
  • Marcello Covino,
  • Alice Lipari,
  • Simona Pellegrino,
  • Francesca Ibba,
  • Maria Chiara Agnitelli,
  • Matteo Tosato,
  • Francesco Landi,
  • Massimo Montalto and
  • Gemelli against COVID-19 Post-Acute Care Team

28 August 2023

The long-term impact of COVID-19 disease is becoming a major global concern. In this retrospective monocentric analysis, we included consecutive subjects admitted to our COVID-19 Post-Acute Care Service for a SARS-CoV-2 infection that occurred betwee...

  • Commentary
  • Open Access
4 Citations
4,068 Views
4 Pages

An underutilized value strategy that may reduce unnecessary subspecialty involvement in pediatric healthcare targets the high-quality care of children with common chronic conditions such as obesity, asthma, or attention deficit hyperactivity disorder...

  • Review
  • Open Access
25 Citations
8,241 Views
17 Pages

19 February 2019

In the last few years, important changes have occurred in the clinical and epidemiological characteristics of patients that were admitted to cardiac intensive care units (CICU). Care has shifted from acute coronary syndrome patients towards elderly p...

  • Article
  • Open Access
3 Citations
3,269 Views
14 Pages

In a future where home health care is no longer an information silo, patient information will be communicated along transitions in care to improve care. Evidence-based practice in the United States supports home health care patients to see their prim...

  • Review
  • Open Access
7 Citations
3,207 Views
12 Pages

Background: Historically, once the baby was born, the mother and baby were separated shortly after birth into a postnatal ward and a baby nursery. Overtime, with advances in neonatology led to an increasing number of neonates being separated from the...

  • Article
  • Open Access
1 Citations
3,593 Views
13 Pages

A Qualitative Evaluation of the Implementation of an Oral Care Program in Home Care Nursing

  • Lina F. Weening-Verbree,
  • Annemarie A. Schuller,
  • Sytse U. Zuidema and
  • Johannes S. M. Hobbelen

An Oral Care Program (OCP) was implemented in home care nursing teams in a northern province of the Netherlands to improve the oral health and hygiene of older people who make use of formal home care in 2018–2019. The aim of the current study w...

  • Feature Paper
  • Article
  • Open Access
23 Citations
10,703 Views
11 Pages

Spiritual Care: The Nurses’ Experiences in the Pediatric Intensive Care Unit

  • Lucila C. Nascimento,
  • Willyane A. Alvarenga,
  • Sílvia Caldeira,
  • Tâmisa M. Mica,
  • Fabiane C. S. Oliveira,
  • Raquel Pan,
  • Tabatha F. M. Santos,
  • Emília C. Carvalho and
  • Margarida Vieira

9 March 2016

Physical aspects of disease management are often more evident than those related to spirituality or spiritual care. Spirituality may appear more crucial in pediatric intensive care units (PICUs) when patients are experiencing serious illness or end-o...

  • Review
  • Open Access
3 Citations
3,897 Views
16 Pages

Quality of Care in Pediatric Palliative Care: A Scoping Review

  • Tania Ruiz-Gil and
  • Francisco Ródenas-Rigla

13 December 2023

Palliative care (PC) enhances the quality of life for patients and families facing life-threatening conditions. While PC is well-established for adults, not all practices apply to pediatrics. Consequently, specific quality indicators for Pediatric Pa...

  • Article
  • Open Access
22 Citations
4,565 Views
17 Pages

Turnover and retention of care workers in long-term care (LTC) settings is an important issue. However, much research about turnover in LTC settings has focused on licensed nurses or nurse assistants. Moreover, many studies have utilized quantitative...

  • Article
  • Open Access
55 Citations
10,644 Views
12 Pages

27 November 2015

This paper shows similarities and differences in perceptions and competences regarding spirituality and spiritual care of nurses in different health care settings. Research on this specific topic is limited and can contribute towards a nuanced implem...

  • Article
  • Open Access
18 Citations
3,950 Views
15 Pages

Sustainable Care in a Familialist Regime: Coping with Elderly Care in Slovenia

  • Maša Filipovič Hrast,
  • Valentina Hlebec and
  • Tatjana Rakar

15 October 2020

In countries with prevalent family care and less developed care services, it is important to understand the ways families cope with the care needs of their frail family members as part of policy learning to make care systems more sustainable. Filial...

  • Review
  • Open Access
15 Citations
7,390 Views
21 Pages

Spiritual Care[Givers] Competence in Palliative Care: A Scoping Review

  • Cristina Costeira,
  • Ana Querido,
  • Filipa Ventura,
  • Hugo Loureiro,
  • Joana Coelho,
  • Enric Benito,
  • Maria Nabal,
  • Monica Dones,
  • Marcela Specos and
  • Carlos Laranjeira

To deliver spiritual care, professionals must be skilled in physical, mental, social, and spiritual care. Spiritual care competence includes knowledge, behaviors, attitudes, and skills that enable successful or efficient care. This review aims to ide...

  • Article
  • Open Access
1 Citations
2,008 Views
16 Pages

Experiences of Individual Care Workers in Oral Care of Dementia Patients

  • Evelina Daugėlienė,
  • Karolina Skučaitė,
  • Jurgita Andruškienė,
  • Šarūnė Barsevičienė and
  • Eglė Žymantienė

2 July 2024

Objective: Dementia is one of the most common diseases in the elderly population. The aim of this study was to reveal the experiences of individual care workers performing oral care for dementia patients. The oral health of the elderly is in a critic...

  • Communication
  • Open Access
2,800 Views
10 Pages

15 June 2022

To address the importance of family carers’ understanding of care, encompassing their own care as well as the broader care and health social systems, this paper leverages the notion of ‘care literacy’. The aim of this study is to un...

  • Review
  • Open Access
10 Citations
6,185 Views
64 Pages

10 May 2021

This systematic review aims to identify what rehabilitation care networks, within primary care or between primary and other health care settings, have been described for patients with chronic musculoskeletal pain, and what their impact is on the Quad...

  • Article
  • Open Access
5 Citations
2,893 Views
14 Pages

Association between Inappropriate End-of-Life Cancer Care and Specialist Palliative Care: A Retrospective Observational Study in Two Acute Care Hospitals

  • Manon S. Boddaert,
  • Heidi P. Fransen,
  • Ellen J. M. de Nijs,
  • Dagmar van Gerven,
  • Leontine E. A. Spierings,
  • Natasja J. H. Raijmakers and
  • Yvette M. van der Linden

8 February 2024

A substantial number of patients with life-threatening illnesses like cancer receive inappropriate end-of-life care. Improving their quality of end-of-life care is a priority for patients and their families and for public health. To investigate the a...

  • Systematic Review
  • Open Access
7 Citations
6,951 Views
14 Pages

28 June 2024

The increasing elderly population is driving higher utilization rates of long-term care facilities, where residents often have multiple chronic diseases, making them potential candidates for palliative care. Timely palliative care interventions can i...

  • Article
  • Open Access
7 Citations
1,699 Views
5 Pages

1 February 2019

Hospitals play an important role in the care of patients with advanced cancer: nearly half of all cancer deaths occur in acute-care settings. The need for increasing access to palliative care and related support services for patients with cancer in a...

  • Article
  • Open Access
1,289 Views
15 Pages

Early Palliative Care in Patients with Glioblastoma: Co-Design of an Integrated Care Pathway

  • Esmée K. J. van der Poort,
  • Monique C. M. Baas-Thijssen,
  • Marleen Oomes,
  • Maaike J. Vos,
  • Robin M. Pieterman,
  • Martin J. B. Taphoorn,
  • Inge de Vries,
  • Carla Juffermans,
  • Eline F. de Vries and
  • Johan A. F. Koekkoek
  • + 1 author

22 September 2025

Background: Glioblastoma is an incurable form of brain cancer with a median overall survival of 1.5 years. Despite its progressive nature and high symptom burden, palliative care is not consistently integrated in routine glioblastoma care. Early inte...

  • Article
  • Open Access
16 Citations
1,417 Views
4 Pages

Challenges and Insights in Implementing Coordinated Care between Oncology and Primary Care Providers: A Canadian Perspective

  • J.R. Tomasone,
  • M. Vukmirovic,
  • M.C. Brouwers,
  • E. Grunfeld,
  • R. Urquhart,
  • M.A. O’Brien,
  • M. Walker,
  • F. Webster and
  • M. Fitch

1 April 2017

We report here on the current state of cancer care coordination in Canada and discuss challenges and insights with respect to the implementation of collaborative models of care. We also make recommendations for future research. This work is based on...

  • Article
  • Open Access
2,109 Views
15 Pages

Caring for–Caring about: Negotiations of Values in Pastoral Care

  • Mikkel Gabriel Christoffersen,
  • Annette Daniela Haußmann and
  • Anne Austad

17 May 2024

The term “care” in pastoral care means caring for others. Yet those who care for others in pastoral conversations can also be defined existentially as people who care about the world, that is, people who hold values. This article explores...

  • Article
  • Open Access
4 Citations
3,883 Views
14 Pages

Inequalities in expectations to receive care permeate social structures, reinforcing racialized and gendered hierarchies. Harming the people who are overburdened and disadvantaged as caregivers, these inequalities also shape the subjectivities and co...

  • Article
  • Open Access
24 Citations
4,506 Views
17 Pages

16 September 2020

Survivorship care that is shared between oncology and primary care providers may be a suitable model to effectively and efficiently care for the growing survivor population, however recommendations supporting implementation are lacking. This qualitat...

  • Article
  • Open Access
2 Citations
3,233 Views
12 Pages

Training Proposal in Palliative Care for Primary Care Nurses in a Health Area in Spain

  • Isidro García-Salvador,
  • Encarna Chisbert-Alapont,
  • Amparo Antonaya Campos,
  • Jorge Casaña Mohedo,
  • Clara Hurtado Navarro,
  • Silvia Fernández Peris,
  • José Bonías López and
  • Maria Luisa De la Rica Escuín

11 June 2023

Background: Primary Health Care nurses express deficits in their training in Palliative Care. The purpose of this study is to design a Palliative Care training plan and a bereavement care protocol for Primary Health Care nurses of the Dr. Peset Healt...

  • Brief Report
  • Open Access
6 Citations
7,006 Views
8 Pages

30 August 2022

Healthy ageing refers to the development and maintenance of the functional ability of ageing individuals. Aged care nurses provide nursing care to elderly individuals and usually work in aged care residential facilities, nursing homes, home care serv...

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