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Quality of Life in Patients with Hydrocephalus
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Quality of Life in Patients with Hydrocephalus

A special issue of Journal of Clinical Medicine (ISSN 2077-0383). This special issue belongs to the section "Clinical Neurology".

Deadline for manuscript submissions: closed (31 May 2025) | Viewed by 1365

Special Issue Editors

Dr. Susan Noell

E-Mail Website
Guest Editor
Department of Neurosurgery, University of Tuebingen, 72076 Tuebingen, Germany
Interests: hydrocephalus; neurooncology; psychology; molecular biology of brain tumors; neuropathology
Dr. Leonidas Trakolis

E-Mail Website
Guest Editor
Department in Neurosurgery, St Luke Hospital, Thessaloniki, Greece
Interests: hydrocephalus; neurooncology; spine surgery; meningioma; SAH; brain aneurysm;

Special Issue Information

Dear Colleagues,

Hydrocephalus is one of the most common pathologies treated by neurosurgeons at all ages not only as an own entity but also as in context of other diseases. The diagnosis of hydrocephalus rapidly increased over the years, leading more patients to some kind of therapy and improving their quality of life. Nevertheless, many of them may have to live with some chronic disability and may require multiple surgeries. Proper evaluation of the success of the treatment may be difficult to achieve. Especially in patients with NPH, long-term outcome assessment is under-represented in existing literature. No clinical standard to assess quality of life in patients with hydrocephalus is available. Thus, it is of vital importance to understand the burden these patients carry and try to help them. This special issue aims to gather ideas, knowledge and experience in order to improve the quality of life in patients with paediatric and adult hydrocephalus. Authors are kindly invited to share their thoughts with original studies, systematic-, narrative- or mini-reviews and meta-analyses about current diagnosis and management of hydrocephalus as well as ways to assess and improve the quality of life of those patients.

Dr. Susan Noell
Dr. Leonidas Trakolis
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Journal of Clinical Medicine is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2600 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • pediatric hydrocephalus
  • adult hydrocephalus
  • normal pressure hydrocephalus
  • long-term outcome
  • management
  • quality of life
  • chronic disability
  • cognitive disorder

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Published Papers (1 paper)

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Research

10 pages, 840 KiB  
Article
Discrepancies in Subjective Perceptions of Hydrocephalus Management and Self-Reported Outcomes
by Julian Zipfel, Zoltan Filip, Cristina Kohlmann-Dell’Acqua, Susan Noell and Leonidas Trakolis
J. Clin. Med. 2024, 13(23), 7205; https://doi.org/10.3390/jcm13237205 - 27 Nov 2024
Viewed by 975
Abstract
Background/Objectives: Despite surgical interventions with advances in endoscopic procedures as well as shunt technologies, the quality of life in patients with hydrocephalus can be poor. Clinical experience suggests discrepancies between objective measures of treatment success and subjective patient satisfaction. With this study, [...] Read more.
Background/Objectives: Despite surgical interventions with advances in endoscopic procedures as well as shunt technologies, the quality of life in patients with hydrocephalus can be poor. Clinical experience suggests discrepancies between objective measures of treatment success and subjective patient satisfaction. With this study, we retrospectively investigated patients’ knowledge of their treatment as well as their satisfaction with received interventions. Methods: Retrospective analysis of self-reporting forms, routinely handed out in the hydrocephalus clinic of a tertiary neurosurgical center, was performed. Clinical data were gathered between 1 January 2020 and 31 March 2023. Correlation of self-reporting forms and available clinical data was performed. Results: A total of 261 forms from 215 patients were obtained. The mean age at visit was 57.5 ± 18.5 years (range 19–88). The most common pathology was normal pressure hydrocephalus (NPH, 31.6%); 31.2% had an occlusive etiology, 22.3% posthemorrhagic, 9.8% benign intracranial hypertension and 5.1% another pathology. Overall, 53% of patients (n = 114) indicated the correct therapy on the self-reporting forms (χ2 (56) = 100.986, p < 0.001). Symptoms and subjective benefit did not differ in the different types of provided therapy. Conclusions: Merely half of the patients with hydrocephalus are able to correctly indicate the treatment they had received. The type of shunt valve did not affect the rate of self-reported symptoms. The symptoms and subjective benefits did not differ in the different types of provided therapy. Poor patient knowledge could correlate with poor self-reported quality of life. Medical professionals should emphasize and advocate for better patient education. Full article
(This article belongs to the Special Issue Quality of Life in Patients with Hydrocephalus)
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