Bowel Management in Paediatric Colorectal Disease

A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Surgery".

Deadline for manuscript submissions: 25 September 2025 | Viewed by 814

Special Issue Editors


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Guest Editor
Department of Paediatric Surgery, Paediatric Colorectal Center Rostock, University Hospital Rostock, Ernst-Heydemann Str. 8, 18057 Rostock, Germany
Interests: paediatric surgery; paediatric colorectal disease; bowel management; Hirschsprung’s disease; anorectal malformations

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Guest Editor
Great Ormond Street Hospital for Children NHS Foundation Trust, London WC1N 3JH, UK
Interests: oesophageal surgery; anti-reflux surgery; lower bowel surgery; children's anorectal anomalies; Hirschsprung’s disease; inflammatory bowel disease

Special Issue Information

Dear Colleagues,

Paediatric colorectal conditions like anorectal malformation or Hirschsprung disease are often complicated by impairment of faecal continence and control. This can have a profound impact on the family and child in terms of quality of life, social function, and the development of relationships as adults. In spite of anatomical impairments of anorectal function, it should still be possible to allow children to achieve social continence through a process of effective control of stooling often referred to as “bowel management”.

In this Special Issue we will explore the background conditions that can lead to a requirement for bowel management. We will discuss the necessary investigations and approach for children with problems of incontinence and then go on to describe the individual features of an effective bowel management programme from a multidisciplinary perspective. Our proposed chapter summary would be as follows:

  1. Understanding of the anatomy and physiology of normal defaecation through infancy, childhood, and beyond;
  2. Structural abnormalities that lead to incontinence in childhood;
  3. Functional abnormalities that lead to incontinence in childhood;
  4. Detailed assessment of a patient prior to bowel management;
  5. Bowel management—surgeon’s perspective;
  6. Bowel management—specialist’s nursing perspective;
  7. Bowel management—psychologist’s perspective;
  8. Beyond bowel management: transition to adult hood and long-term care.

Dr. Judith Lindert
Dr. Joseph Curry
Guest Editors

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Keywords

  • bowel management
  • Hirschsprung disease
  • anorectal malformation
  • functional constipation
  • spina bifida
  • cloaca disease
  • bowel function score

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Published Papers (1 paper)

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Research

19 pages, 4065 KiB  
Article
Patient Empowerment Among Children and Adolescents with Inflammatory Bowel Disease (IBD) and Parents of IBD Patients—Use of Counseling Services and Lack of Knowledge About Transition
by Kalina Kaul, Stefan Schumann, Jakob Felder, Jan Däbritz and Jan de Laffolie
Children 2025, 12(5), 620; https://doi.org/10.3390/children12050620 - 10 May 2025
Viewed by 189
Abstract
Background: Children and adolescents with pediatric inflammatory bowel diseases (PIBD) face significant challenges, including emotional stress, social isolation, and interrupted education due to symptoms. Effective counseling and education empower these young patients and their families to actively participate in healthcare. This paper [...] Read more.
Background: Children and adolescents with pediatric inflammatory bowel diseases (PIBD) face significant challenges, including emotional stress, social isolation, and interrupted education due to symptoms. Effective counseling and education empower these young patients and their families to actively participate in healthcare. This paper investigates the IBD needs analysis (CEDNA), focusing on counseling and transition services. Methods: The Study Group distributed questionnaires to PIBD patients and the parents of children and adolescents with PIBD across Germany, with all responses provided anonymously. We conducted a subgroup analysis based on patient age and time since diagnosis, as well as aspects of regional distribution and city size. Parents’ responses were analyzed by corresponding age groups to facilitate comparison with the patients’ responses. Results: From October 2021 to April 2022, 1158 questionnaires (patients 38.9%, n = 450; parents 61.1%, n = 708) were completed. In the group of 16–17-year-old patients, only 14.1% (n = 239) feel well informed about transition programs (parents 6.7% of n = 360). Depending on the disease duration, 2.1% to 6.9% of the patients surveyed (n = 292) feel well informed about PIBD (parents 3.3% to 7.5%, n = 361). Nutritional counseling is the most requested support service (patients 49.2%, n = 382; parents: service used for their children 41.9%, n = 578; parents: service used for themselves 46.1%, n = 575). Conclusions: PIBD patients, especially aged 12–17, lack knowledge and preparation for transition to adult care. While general PIBD management awareness is fair, targeted educational efforts are necessary. Trustworthy information sources and early, tailored counseling services could enhance transition experiences and improve long-term disease management and patient outcomes. Full article
(This article belongs to the Special Issue Bowel Management in Paediatric Colorectal Disease)
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