Palliative Home Care in Pediatric Patients: Current Innovations and Future Challenges

A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Anesthesiology, Pain Medicine and Palliative Care".

Deadline for manuscript submissions: 1 March 2026 | Viewed by 310

Special Issue Editor


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Guest Editor
1. Paediatric Palliative Care Service, Children's Health Queensland Hospital and Health Service, Queensland Children's Hospital, South Brisbane, QLD 4101, Australia
2. Centre for Children’s Health Research, Queensland University of Technology, South Brisbane, QLD 4101, Australia
Interests: paediatric palliative care
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Special Issue Information

Dear Colleagues,

Children and adolescents with life-limiting diseases suffer from various symptoms at the end of their lives, which can impact quality of life and cause suffering. This extends to the whole family system, including siblings. Symptoms can cause distress, including pain, agitation, anxiety, fatigue, seizures, and various gastrointestinal symptoms (e.g., feed intolerance, anorexia, nausea, and vomiting). In recent years, there has been an increasing capacity to support children receiving palliative care at home. Palliative care at home has a number of benefits, including less disruption to family life, freedom from the hospital environment, freedom to have visitors at any time, and the child’s own preferences, including food and parental choice. One important benefit of being at home includes the parents' ability to be more particular about the timing of analgesia; however, it can be difficult to provide nursing care and access to clinical staff for 24 hours a day, 7 days a week at home. In this context, there can be benefits of being cared for in a tertiary children’s hospital, a hospital close to home, or a children’s hospice. Elements of home life can still be integrated into both hospital and hospice settings. This is especially the case for children’s hospices. This Special Issue invites you to contribute original research articles and reviews on “pediatric palliative home care”. If you would like to contribute, please feel free to contact us.

Dr. Anthony Herbert
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

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Keywords

  • children
  • adolescents
  • palliative home care
  • pain
  • life-limiting
  • end-of-life care

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Published Papers (1 paper)

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Review

15 pages, 683 KB  
Review
Addressing Social Determinants of Health Service Gaps in Chinese American Caregivers During the COVID-19 Pandemic
by Alicia Chung, Stella Chong, Debbie Chung, Amira Gee, Monica Stanton-Koko and Keng-Yen Huang
Children 2025, 12(11), 1499; https://doi.org/10.3390/children12111499 - 5 Nov 2025
Abstract
Background/Objectives: This study aims to understand gaps and strategies in Chinese Americans’ utilization of SDOH services in the pediatric primary care context in Sunset Park, Brooklyn, from a patient–provider partnership perspective. Methods: The study was guided by an integrated Patient–Provider Partnership, [...] Read more.
Background/Objectives: This study aims to understand gaps and strategies in Chinese Americans’ utilization of SDOH services in the pediatric primary care context in Sunset Park, Brooklyn, from a patient–provider partnership perspective. Methods: The study was guided by an integrated Patient–Provider Partnership, Engagement, and Collaboration (PEC) framework that influenced patient–provider interaction during the provision of SDOH services. A qualitative study design was applied, and eight quality improvement interviews with healthcare providers were conducted to understand the existing community and health service system context. Six in-depth interviews were conducted with Mandarin-speaking Chinese American caregivers. Interviews were transcribed and coded in Mandarin and then translated into English. Results: Consistent with the PEC framework, we identified cognitive, affective, and communication gaps from both the patient and provider. Caregivers reported unaddressed needs in food, financial security, and mental health. Providers identified gaps in patient workflow, staffing, and the intake form process. Conclusions: Addressing social determinants of health among Chinese American immigrant populations is crucial for mitigating poor health outcomes in children and families. Multi-level community-engaged strategies are needed to alleviate the challenges facing this community. Recommendations for future research should consider the importance of language and cultural affinity, digital intake forms translated into the patient’s language, and regular on-site staffing during SDOH screenings. Full article
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