New Insights into Personalized Care in Advance Care Planning

A special issue of Journal of Personalized Medicine (ISSN 2075-4426). This special issue belongs to the section "Clinical Medicine, Cell, and Organism Physiology".

Deadline for manuscript submissions: 25 February 2026 | Viewed by 974

Special Issue Editor


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Guest Editor
Aioi Geriatric Health Services Facility, Higashiura-cho, Chita-gun 470-2102, Japan
Interests: advance care planning

Special Issue Information

Dear Colleagues,

Advance Care Planning (ACP) is important for personalized care in accordance with the person's wishes.

Due to cognitive decline, the person's wishes may be unclear, making it difficult to respect them.

In addition, the person's wishes may conflict with the wishes of family members, or the person's wishes may conflict with the suggestions of healthcare providers.

In such cases, the degree to which the family's wishes are respected and the degree to which the medical provider's suggestions are respected may differ depending on the cultural background of the individual.

Although ACP is the same in both the West and the East in terms of making choices about future medical care, the above points are influenced by cultural differences.

In this Special Issue, we will focus on the medical aspects as well as cultural diversity; we invite original articles, reviews, and other papers to be submitted to this Special Issue in order to obtain new insights into ACP.

Dr. Mitsunori Nishikawa
Guest Editor

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Keywords

  • advance care planning
  • choices about future medical care
  • cultural differences
  • diversity
  • personalized care choices

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Published Papers (2 papers)

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Research

16 pages, 251 KiB  
Article
Personalized Care in Advance Care Planning with Cancer and Chronic Progressive Diseases Using the Go Wish Game
by Sara Alquati, Marta Perin, Simona Sacchi, Ludovica De Panfilis and Silvia Tanzi
J. Pers. Med. 2025, 15(5), 180; https://doi.org/10.3390/jpm15050180 - 30 Apr 2025
Abstract
Background: The Go Wish Game (GWG) is a card game designed to ease Advance Care Planning (ACP) discussions. It helps patients to consider their values and priorities, and to share them with families and healthcare professionals (HPs). Despite a general appreciation of the [...] Read more.
Background: The Go Wish Game (GWG) is a card game designed to ease Advance Care Planning (ACP) discussions. It helps patients to consider their values and priorities, and to share them with families and healthcare professionals (HPs). Despite a general appreciation of the GWG, mechanisms related to its implementation have been poorly investigated. Objective: to determine optimal strategies for integration of the GWG into clinical practice and to investigate the experiences of a Palliative Care Unit (PCU) trained in the use of the GWG. Methods: We performed a descriptive qualitative study. Data were collected through a focus group (FG) and we followed the thematic analysis. The PCU’s team described their experience using the GWG focusing on 15 patients (9 oncological, 6 non-oncological) patients, managed by the PCU. Results: Our data revealed five main themes, along with their subthemes: (1) personalizing the GWG proposal; (2) the role of the caregiver; (3) organizational aspects; (4) meaning of the GWG in clinical practice, and (5) dealing with patient’s priorities. Comparison of real-life cases has led to the identification of specific facilitators and barriers that can hinder or promote the use of the GWG for personalized medicine. Conclusions: Findings suggest that certain aspects still require attention in GWG implementation, particularly regarding the training and competencies (communicative, relational, ethical) of the healthcare professionals, and the process leading to the proposal of the GWG to the patient. Full article
(This article belongs to the Special Issue New Insights into Personalized Care in Advance Care Planning)
12 pages, 1144 KiB  
Article
Frailty as a Predictor of Post-Traumatic Stress Disorder After Advance Care Planning Communication Intervention by Trained Care Managers in Long-Term Care Service Users in Japan: A Secondary Analysis
by Mariko Miyamichi, Kyoko Oshiro, Shozo Okochi, Noriyasu Takeuchi, Tomoe Nakamura, Terumi Matsushima, Masako Okada, Yoshimi Kudo, Takehiro Ishiyama, Tomoyasu Kinoshita, Hideki Kojima and Mitsunori Nishikawa
J. Pers. Med. 2025, 15(4), 159; https://doi.org/10.3390/jpm15040159 - 21 Apr 2025
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Abstract
Background/Objectives: Advance care planning is essential in a community; however, intervention studies by care managers remain scarce. This study aims to determine the relationship between frailty and post-traumatic stress disorder among long-term care service users (hereinafter referred to as “users”) following advance [...] Read more.
Background/Objectives: Advance care planning is essential in a community; however, intervention studies by care managers remain scarce. This study aims to determine the relationship between frailty and post-traumatic stress disorder among long-term care service users (hereinafter referred to as “users”) following advance care planning conversations with their care managers. Methods: We conducted a secondary analysis using raw data from the Japanese University Hospital Medical Information Network Study No. 000048573, published on 23 September 2024. In this previous study, trained care managers provided advance care planning conversation interventions to 30 users. Care managers conducted a convenience sample of 30 mentally and physically stable users who were 65 years old or older, had a family member or healthcare provider assigned, and had never used ACP. Our analysis in the present study focuses on the Clinical Frailty Scale and Impact of Events Scale-Revised, both of which measure post-traumatic stress disorder. Results: The Impact of Events Scale-Revised score was significantly higher in users with a clinical frailty score ≥ 5 compared to those with a clinical frailty score < 5. Logistic regression analysis, using the Impact of Events Scale-Revised as the objective variable, also revealed an association between a clinical frailty score ≥ 5 and a higher Impact of Events Scale-Revised. The four groups, selected through hierarchical cluster analysis for sensitivity analysis, demonstrated results consistent with the above analysis. Conclusions: The degree of post-traumatic stress disorder among users is associated with their degree of frailty following an advance care planning conversation with their care manager. Frailty in users may be a valuable predictor of stress related to advance care planning conversations. Users with a clinical frailty scale score ≥ 5 can be provided with more personalized care through more careful communication. University Hospital Medical Information Network Trial ID: 000048573. Full article
(This article belongs to the Special Issue New Insights into Personalized Care in Advance Care Planning)
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