Selected Papers from the OASIS (Holistic Care in Hirschsprung’s Disease) Meeting
A special issue of Children (ISSN 2227-9067). This special issue belongs to the section "Pediatric Nursing".
Deadline for manuscript submissions: closed (5 July 2024) | Viewed by 11004
Special Issue Editor
Special Issue Information
Dear Colleagues,
Hirschsprung Disease (HSCR) is a rare condition affecting the motility of the enteric system and resulting in obstruction of the bowel. Its most severe form, Total Colonic Aganglionosis (TCA), occurs in 2–5 % of all children with HSCR.
Patients should be managed by specialized medical personnel familiar with the disease.
Competence in the management of Hirschsprung’s Disease is not only defined by an ability to perform complex surgery; it is also based on diagnostic processes, handling complications and addressing long term effects of the malformation.
Therapeutic strategies must be adjusted in line with current scientific knowledge and should increase the quality of life in patients as well as maintain continuity through transition of care.
At the OASIS Symposium, clinicians, researchers and patients (representatives) from all over Europe will work together on a holistic approach to care.
There will be a particular focus on:
- Patients and Family needs before and after surgery;
- Patient support groups for Hirschsprung’s Disease in Europe as well as ideas for cross-collaboration;
- Diagnostic pathways;
- Surgical Strategies in Hirschsprung’ Disease and total colonic aganglionosis;
- Optimal bowel management;
- Holistic Continence Score;
- Nutrition and Microbioma;
- Quality of life aspects; longitudinal follow up;
- Transition of care.
The Symposium will be open to everyone. We want clinicians (doctors and allied health professionals), scientists and patient associations to come together to share their clinical experiences and discuss together how to achieve the best level of care for this patient group and their families.
More information please contact us: [email protected] (https://forms.gle/CdHppxTobEY9ShiXA).
This Special Issue will also focus on other articles or reviews related to Hirschsprung’s Disease (OASIS).
Prof. Dr. Stefanie Märzheuser
Guest Editor
Manuscript Submission Information
Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.
Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Children is an international peer-reviewed open access monthly journal published by MDPI.
Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2400 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.
Keywords
- Hirschsprung’s disease
- total colonic aganglionosis
- self-help-group
- quality of life
Benefits of Publishing in a Special Issue
- Ease of navigation: Grouping papers by topic helps scholars navigate broad scope journals more efficiently.
- Greater discoverability: Special Issues support the reach and impact of scientific research. Articles in Special Issues are more discoverable and cited more frequently.
- Expansion of research network: Special Issues facilitate connections among authors, fostering scientific collaborations.
- External promotion: Articles in Special Issues are often promoted through the journal's social media, increasing their visibility.
- e-Book format: Special Issues with more than 10 articles can be published as dedicated e-books, ensuring wide and rapid dissemination.
Further information on MDPI's Special Issue polices can be found here.