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Volume 9
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10.1080/20016689.2021.1885789
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Journal of Market Access & Health Policy (JMAHP) is published by MDPI from Volume 12 Issue 1 (2024). Previous articles were published by another publisher in Open Access under a CC-BY (or CC-BY-NC-ND) licence, and they are hosted by MDPI on mdpi.com as a courtesy and upon agreement with Taylor & Francis.
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Article

A Conceptual Framework to Develop a Patient-Reported Experience Measure of the Quality of Mental Health Care: A Qualitative Study of the PREMIUM Project in France

by
S Fernandes
1,*,
G Fond
1,
X Zendjidjian
1,
P Michel
1,
C Lançon
1,
F Berna
2,
F Schurhoff
2,
B Aouizerate
2,
C Henry
2,
B Etain
2,
L Samalin
2,
M Leboyer
2,
D Misdrahi
2,
PM Llorca
2,
M Coldefy
3,
P Auquier
1,
K Baumstarck
1,
L Boyer
1 and
On behalf of the French PREMIUM Group
1
Aix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France
2
FondaMental Foundation, Créteil, France
3
Institute for Research and Information in Health Economics (IRDES), Paris, France
*
Author to whom correspondence should be addressed.
J. Mark. Access Health Policy 2021, 9(1), 1885789; https://doi.org/10.1080/20016689.2021.1885789
Submission received: 3 November 2020 / Revised: 21 January 2021 / Accepted: 27 January 2021 / Published: 23 February 2021

Abstract

Background: The objective of this study was to develop a conceptual framework to define a domain map describing the experience of patients with severe mental illnesses (SMIs) on the quality of mental health care. Methods: This study used an exploratory qualitative approach to examine the subjective experience of adult patients (18–65 years old) with SMIs, including schizophrenia (SZ), bipolar disorder (BD) and major depressive disorder (MDD). Participants were selected using a purposeful sampling method. Semistructured interviews were conducted with 37 psychiatric inpatients and outpatients recruited from the largest public hospital in southeastern France. Transcripts were subjected to an inductive analysis by using two complementary approaches (thematic analysis and computerized text analysis) to identify themes and subthemes. Results: Our analysis generated a conceptual model composed of 7 main themes, ranked from most important to least important as follows: interpersonal relationships, care environment, drug therapy, access and care coordination, respect and dignity, information and psychological care. The interpersonal relationships theme was divided into 3 subthemes: patient-staff relationships, relations with other patients and involvement of family and friends. All themes were spontaneously raised by respondents. Conclusion: This work provides a conceptual framework that will inform the subsequent development of a patient-reported experience measure to monitor and improve the performance of the mental health care system in France. The findings showed that patients with SMIs place an emphasis on the interpersonal component, which is one of the important predictors of therapeutic alliance.
Keywords: patient-reported experience measures; patient experience; health services research; quality of care; psychiatry; schizophrenia; bipolar disorder; major depressive disorder; severe mental illness; qualitative research patient-reported experience measures; patient experience; health services research; quality of care; psychiatry; schizophrenia; bipolar disorder; major depressive disorder; severe mental illness; qualitative research

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MDPI and ACS Style

Fernandes, S.; Fond, G.; Zendjidjian, X.; Michel, P.; Lançon, C.; Berna, F.; Schurhoff, F.; Aouizerate, B.; Henry, C.; Etain, B.; et al. A Conceptual Framework to Develop a Patient-Reported Experience Measure of the Quality of Mental Health Care: A Qualitative Study of the PREMIUM Project in France. J. Mark. Access Health Policy 2021, 9, 1885789. https://doi.org/10.1080/20016689.2021.1885789

AMA Style

Fernandes S, Fond G, Zendjidjian X, Michel P, Lançon C, Berna F, Schurhoff F, Aouizerate B, Henry C, Etain B, et al. A Conceptual Framework to Develop a Patient-Reported Experience Measure of the Quality of Mental Health Care: A Qualitative Study of the PREMIUM Project in France. Journal of Market Access & Health Policy. 2021; 9(1):1885789. https://doi.org/10.1080/20016689.2021.1885789

Chicago/Turabian Style

Fernandes, S, G Fond, X Zendjidjian, P Michel, C Lançon, F Berna, F Schurhoff, B Aouizerate, C Henry, B Etain, and et al. 2021. "A Conceptual Framework to Develop a Patient-Reported Experience Measure of the Quality of Mental Health Care: A Qualitative Study of the PREMIUM Project in France" Journal of Market Access & Health Policy 9, no. 1: 1885789. https://doi.org/10.1080/20016689.2021.1885789

APA Style

Fernandes, S., Fond, G., Zendjidjian, X., Michel, P., Lançon, C., Berna, F., Schurhoff, F., Aouizerate, B., Henry, C., Etain, B., Samalin, L., Leboyer, M., Misdrahi, D., Llorca, P., Coldefy, M., Auquier, P., Baumstarck, K., Boyer, L., & On behalf of the French PREMIUM Group. (2021). A Conceptual Framework to Develop a Patient-Reported Experience Measure of the Quality of Mental Health Care: A Qualitative Study of the PREMIUM Project in France. Journal of Market Access & Health Policy, 9(1), 1885789. https://doi.org/10.1080/20016689.2021.1885789

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