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Disabilities
Special Issues
The Care Economy and Disability Inclusion
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The Care Economy and Disability Inclusion

A special issue of Disabilities (ISSN 2673-7272).

Deadline for manuscript submissions: 30 June 2025 | Viewed by 3799

Special Issue Editors

Dr. Daniel Mont

E-Mail Website1 Website2
Guest Editor
Center for Inclusive Policy, 1450 Church Street, NW Unit 602, Washington, DC 20005, USA
Interests: disability; socioeconomic policies; social protection; disability data
Special Issues, Collections and Topics in MDPI journals
Dr. Monica Pinilla-Roncancio

E-Mail Website
Guest Editor
Facultad de Medicina, Universidad de los Andes, Bogota 111711, Colombia
Interests: disability; poverty; social protection

Special Issue Information

Dear Colleagues,

The care economy has gained prominence in global discourse, especially after the COVID-19 pandemic. Yet, existing debates often fail to adequately consider the rights and support needs of those receiving care, such as persons with disabilities. Moreover, policy initiatives, despite being well-intentioned, often disregard the rights, autonomy, and independence of this group. Disability rights advocates have expressed their concern that new care policies risk reinforcing outdated models that do not align with the international human rights law. Therefore, as countries start considering new systems, policies, and programs to address care gaps and inequalities, it is critical to integrate a disability perspective. This inclusion offers a better guide to developing holistic care and support systems that benefit everyone, from care workers to persons with disabilities.

This Special Issue of this journal explores the intricate link between the care economy and disability inclusion. It aims to compile evidence on the practices and strategies towards advancing disability-inclusive care and support programs, policies, and investments, as well as papers addressing the tensions between the care economy and disability rights. Additionally, it will consider studies discussing their data and research on the care and support needs of persons with disabilities, including carers with disabilities, to identify key opportunities for innovation, policy development, and advocacy.

Dr. Daniel Mont
Dr. Monica Pinilla-Roncancio
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Disabilities is an international peer-reviewed open access quarterly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 1000 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • disability
  • care
  • economy
  • human support
  • unpaid work
  • personal assistance

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Published Papers (2 papers)

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Research

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16 pages, 438 KiB  
Article
Disability Tax in the Welfare State: Uncertainty and Resentment about Disability Services in Finland
by Hisayo Katsui
Disabilities 2024, 4(2), 413-428; https://doi.org/10.3390/disabilities4020026 - 19 Jun 2024
Viewed by 859
Abstract
This paper focuses on the uncertainty and resentment that many persons with disabilities feel concerning their disability services in the welfare state of Finland. This paper elaborates on the theme through the lived citizenship of persons with disabilities using the key theory of [...] Read more.
This paper focuses on the uncertainty and resentment that many persons with disabilities feel concerning their disability services in the welfare state of Finland. This paper elaborates on the theme through the lived citizenship of persons with disabilities using the key theory of disability tax as an analytical tool. The empirical data were collected through an online survey (n = 541) and six group interviews (n = 41) of persons with disabilities in 2023. The disability tax experiences are elaborated through four aspects: (1) rejected applications, (2) uncertain realisation, (3) laborious complaint mechanisms, and (4) the psycho–emotional effect. The findings of this study establish collective experiences of multi-layered disability tax throughout the disability services process. It concludes that disability services, which were originally planned to specifically ensure equal opportunities to participate in society for persons with disabilities, are increasingly becoming the very sources of burden as austerity has silently grown deeper over recent years and has become the clear policy of the current government. Full article
(This article belongs to the Special Issue The Care Economy and Disability Inclusion)
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Review

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14 pages, 463 KiB  
Review
Building Community Capital—The Role of Local Area Coordinators in Disability Services: A Critical Review
by Lyndal Hickey, Jennifer Davidson, Catherine Viney, Emily Daniels, Lea Spaven and Louise Harms
Disabilities 2024, 4(3), 493-506; https://doi.org/10.3390/disabilities4030031 - 4 Jul 2024
Viewed by 994
Abstract
Local Area Coordination (LAC) roles have been implemented in disability services in many countries, supporting people living with disability to connect with formal and informal support in the community. Embedded in the National Disability Insurance Scheme in Australia, the aspiration is that this [...] Read more.
Local Area Coordination (LAC) roles have been implemented in disability services in many countries, supporting people living with disability to connect with formal and informal support in the community. Embedded in the National Disability Insurance Scheme in Australia, the aspiration is that this LAC role will connect people with disability to supports and enable the generation of greater community capacity and inclusion. Yet, with only a limited evidence base that demonstrates the impact of this approach, a clear measurement framework is needed to provide evidence of the realization of this aspiration. We propose that this impact could be demonstrated by applying a Community Capitals Framework (CCF) as the theoretical base for the LAC role and other community capacity initiatives, such as service navigation within disability reform of disability services. The CCF is premised on seven ‘capitals’—social, natural, cultural, human, political, financial and built that intersect and interact with each other to create positive spirals of change in communities. In this critical literature review, we apply the CCF to map and synthesize existing research on the LAC’s role in building community capital and examine the utility of the CCF as a map for LAC and service navigation practices to enhance community inclusion. For this review, we analyzed peer-reviewed journal papers and grey literature that focused on LAC community capacity building for people with disability in a disability service context published between 2000 and August 2023. Of the 17 publications that met the inclusion criteria, there was no published evidence that comprehensively examined or measured community capacity building consistent with the tenets of the CCF. However, our analysis showed that all capitals, with the exception of natural capital, had been considered, with some indication that investment in these capitals (particularly social capital) could be connected in the positive spiraling way suggested by the CCF. Given the paucity of existing evidence to inform the LAC aspiration for community capacity building, research informed by consumer priorities is needed to inform LAC and service navigation practices to address community needs. The CCF has the potential to develop our understanding of LAC and other community capacity-building initiatives through the measurement of LAC and service navigation services and consumer outcomes, as well as by informing investment to target growth capitals in communities. Full article
(This article belongs to the Special Issue The Care Economy and Disability Inclusion)
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