Mental Health Intervention Program to Support Children with Epilepsy in Selected Public Hospitals in Limpopo Province, South Africa ^†

Background: Epilepsy, a common neurological disorder in childhood, has been linked to an increased risk of developing mental disorders. Despite this association, research on their relationship is limited. Studies suggest that between 30% and 50% of children with epilepsy worldwide develop mental disorders, with approximately 10% of cases undiagnosed and untreated, potentially extending to adulthood and impacting their future. Despite the existing policies and guidelines, mental health care for children with epilepsy remains inadequate, highlighting the need for mental health support. Objective(s): The study’s objectives were to explore the experiences of caregivers in caring for children with epilepsy; explore the experiences of health professionals in managing epilepsy in children; and to develop a mental health intervention program to support children with epilepsy in selected public hospitals of the Limpopo Province. Methods: The study employed a mixed-method research approach utilizing an exploratory sequential design; however, this paper focuses on qualitative findings. Data was collected through semi-structured interviews and participants included caregivers of children with epilepsy, professional nurses, and paediatricians recruited from Mankweng and Polokwane Tertiary and Academic Hospital. Twenty-one participants were purposely recruited to participate in the study until data saturation was met. Data was analyzed using thematic analysis. Results: The study revealed that caregivers reported concerns about the impact of epilepsy on their child’s mental health, noting increased hyperactivity, aggression, self-harming behaviors, delayed developmental milestones, and educational challenges. They themselves experienced psychological burden, caregiving burden, social rejection, and financial strain. Meanwhile, professional nurses experienced difficulties managing epilepsy in children due to limited resources, and training, whereas paediatricians faced diagnostic and referral challenges managing epilepsy compounded by psychiatric comorbidities. Conclusions: The study findings highlight the significant mental health challenges faced by children with epilepsy, as well as the challenges faced by caregivers, and the difficulties managing epilepsy faced by professional nurses and paediatricians, underscoring a need for a mental health intervention program to support these children.