Search Results (28)

Background: Parents of youth with chronic health conditions face several challenges in supporting their children across contexts. Involvement of parents in a child’s pain management approach is accepted as best practice, yet there is little guidance on how to best parent the child with chronic pain. Prior studies have shown that parents require support and education to effectively care for their children and themselves. This quality improvement program evaluation aimed to evaluate group-level: (1) feasibility of the Creating Bonds program, (2) acceptability and perceived effectiveness of the program, and (3) suggestions for program improvements. Methods: In this quality improvement program evaluation, parents (N = 40) of youth with chronic pain from the United States and Europe were recruited online to participate in a virtual peer-support and educational program, Creating Bonds, offered through the nonprofit organization, Creative Healing for Youth in Pain. Creating Bonds is an 8-week, virtual, supportive, and educational program for parents and caregivers of youth with chronic pain led by a licensed clinical psychologist. A mixed methods approach evaluated the impact of and suggestions for improving the program. Independent samples t-tests were used to examine quantitative items related to understanding of pain, isolation, confusion, distress, relationships, and self-care. Qualitative responses were evaluated for common themes through an inductive thematic analysis. Results: Results indicated that Creating Bonds significantly improved parents’ level of understanding of chronic pain, relationships with others, and self-care, and significantly reduced confusion about parenting a child with chronic pain, stress, and anxiety levels (ps < 0.05). Levels of isolation moderately decreased. Parents qualitatively described the experience as validating, connecting, and educational, with both emotional relief and practical strategies emerging as benefits. Conclusions: Quantitative results and qualitative themes capture the dual role of the Creating Bonds program in providing tangible parenting tools alongside education and critical psychosocial support. Parents entered with uncertainty, a desire for strategies, and hope for connection, and they came away with validation, practical parenting tools, and a community facing similar experiences. Full article

Marine macroinvertebrate communities play a key role in ecosystem functioning by regulating flows of energy and materials and providing numerous ecosystem services. In Mozambique and São Tomé and Príncipe marine macroinvertebrates are important for the livelihood and food security of local populations. We compiled a dataset on marine invertebrates from Mozambique and São Tomé and Príncipe through an extensive data search of digital platforms, scientific literature, and natural history collections (NHC). This dataset encompasses data from 1816 to 2023 and comprises 20,122 records, representing 617 families, 1552 genera, 2137 species, providing species occurrence in mangrove forests, seagrass beds, coral reefs, and other coastal and offshore habitats. The dataset has a Darwin Core standard format and has been fully released in the Global Biodiversity Information Facility (GBIF). It is accessible through the GBIF portal under the Creative Commons Attribution 4.0 International license. The data are standardized and validated with tools such as WoRMS, GEOLocate, and Google Maps. Therefore, they can be readily used for further studies on species richness, distribution, and functional traits. Overall, this dataset contributes baseline information on marine biodiversity for future research. Full article

Antimicrobial resistance is a major threat to global health in the 21st century. In the age of the internet and social media, infographics may constitute an effective educational resource for transmitting complete messages about antibiotics and antimicrobial resistance and driving behavioural change. We aimed to evaluate the infographics on antibiotics available on the internet in terms of their documentary quality, purpose, and appropriateness as educational tools for explaining the strategic lines defined in the World Health Organization Global Action Plan on Antimicrobial Resistance (GAP-AMR) and for conveying the One Health concept. We obtained the infographics for this cross-sectional study on 4 March 2021 by searching the terms “infographic” and “antibiotic” in Google Images. We verified infographic documentary quality by analysing the image, authorship, title, structure, date, and licence. To evaluate the purpose, we determined whether it coincided with one of the strategic objectives set out in the GAP-AMR. The degree of appropriateness depended on the type of key awareness message on antibiotic use. After obtaining these results, we performed a cross-sectional evaluation to determine how successfully these infographics conveyed the One Heath concept. We selected 247 infographics from 518 references. Of the included infographics, 97 (39%) were produced by public institutions; 58 (23%) read from left to right; 142 (57%) had an educational purpose; 156 (63%) focused on humans; 140 (57%) were subject to copyright; and 97 (39%) had no licence of any type. Almost one quarter (n = 57; 23%) included no key message on proper use of antibiotics. Infographics that included an author/promoter had a significantly higher mean number of messages that those without disclosure of authorship (1.67 vs. 0.50; p < 0.001). The infographics on antibiotics available on the internet are of moderate general quality. Most are produced by public institutions and have a clear and readable layout, but very few have a Creative Commons license to enable their reuse as informative material. The most common purpose is to improve awareness and understanding of antimicrobial resistance; few infographics focus on the remaining four strategic objectives of the GAP-AMR. It would be useful for authors of educational infographics on antibiotics to promote key messages related to antimicrobial resistance and the One Health concept, in accordance with the first objective of the WHO GAP-AMR. Full article

Monitoring is an important component in pest management, to prevent or mitigate outbreaks of native pests and to check for quarantine organisms. Surveys often rely on trapping, especially when the target species respond to semiochemicals. Many traps are available for this purpose, but they are bulky in most cases, which raises transportation and deployment issues, and they are expensive, which limits the size and accuracy of any network. To overcome these difficulties, entomologists have used recycled material, such as modified plastic bottles, producing cheap and reliable traps but at the cost of recurrent handywork, not necessarily possible for all end-users (e.g., for national plant-protection organizations). These bottle-traps have allowed very large surveys to be conducted, which would have been impossible with standard commercial traps, and we illustrate this approach with a few examples. Here, we present, under a Creative Commons BY-SA License, the blueprint for a fan-trap, a foldable model, laser cut from a sheet of polypropylene, which can rapidly be produced in large numbers in a Fab lab or by a commercial company and could be transported and deployed in the field with very little effort. Our first field comparisons show that fan-traps are as efficient as bottle-traps for some Scolytinae species and we describe two cases where they are being used for monitoring. Full article

Robust, fault tolerant, and available systems are fundamental for the adoption of Internet of Things (IoT) in critical domains, such as finance, health, and safety. The IoT infrastructure is often used to collect a large amount of data to meet the business demands of Smart Cities, Industry 4.0, and Smart Home, but there is a opportunity to use these data to intrinsically monitor an IoT system in an autonomous way. A Test Driven Development (TDD) approach for automatic module assessment for ESP32 and ESP8266 IoT development devices based on unsupervised Machine Learning (ML) is proposed to monitor IoT device status. A framework consisting of business drivers, non-functional requirements, engineering view, dynamic system evaluation, and recommendations phases is proposed to be used with the TDD development tool. The proposal is evaluated in academic and smart home study cases with 25 devices, consisting of 15 different firmware versions collected in one week, with a total of over 550,000 IoT status readings. The K-Means algorithm was applied to free memory available, internal temperature, and Wi-Fi level metrics to automatically monitor the IoT devices under development to identify device constraints violation and provide insights for monitoring frequency configuration of different firmware versions. To the best of the authors’ knowledge, it is the first TDD approach for IoT module automatic assessment which uses machine learning based on the real testbed data. The IoT status monitoring and the Python scripts for model training and inference with K-Means algorithm are available under a Creative Commons license. Full article

Background: Monitoring the ecological status of coastal ecosystems is essential to track the consequences of anthropogenic pressures and assess conservation actions. Monitoring requires periodic measurements collected in situ, replicated over large areas and able to capture their spatial distribution over time. This means developing tools and protocols that are cost-effective and provide consistent and high-quality data, which is a major challenge. A new tool and protocol with these capabilities for non-extractively assessing the status of fishes and benthic habitats is presented here: the KOSMOS 3.0 underwater video system. Methods: The KOSMOS 3.0 was conceived based on the pre-existing and successful STAVIRO lander, and developed within a digital fabrication laboratory where collective intelligence was contributed mostly voluntarily within a managed project. Our suite of mechanical, electrical, and software engineering skills were combined with ecological knowledge and field work experience. Results: Pool and aquarium tests of the KOSMOS 3.0 satisfied all the required technical specifications and operational testing. The prototype demonstrated high optical performance and high consistency with image data from the STAVIRO. The project’s outcomes are shared under a Creative Commons Attribution CC-BY-SA license. The low cost of a KOSMOS unit (~1400 €) makes multiple units affordable to modest research or monitoring budgets. Full article

This paper provides a guide through the FMP notebooks, a comprehensive collection of educational material for teaching and learning fundamentals of music processing (FMP) with a particular focus on the audio domain. Organized in nine parts that consist of more than 100 individual notebooks, this collection discusses well-established topics in music information retrieval (MIR) such as beat tracking, chord recognition, music synchronization, audio fingerprinting, music segmentation, and source separation, to name a few. These MIR tasks provide motivating and tangible examples that students can hold onto when studying technical aspects in signal processing, information retrieval, or pattern analysis. The FMP notebooks comprise detailed textbook-like explanations of central techniques and algorithms combined with Python code examples that illustrate how to implement the methods. All components, including the introductions of MIR scenarios, illustrations, sound examples, technical concepts, mathematical details, and code examples, are integrated into a unified framework based on Jupyter notebooks. Providing a platform with many baseline implementations, the FMP notebooks are suited for conducting experiments and generating educational material for lectures, thus addressing students, teachers, and researchers. While giving a guide through the notebooks, this paper’s objective is to yield concrete examples on how to use the FMP notebooks to create an enriching, interactive, and interdisciplinary supplement for studies in science, technology, engineering, and mathematics. The FMP notebooks (including HTML exports) are publicly accessible under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License. Full article

Through volunteering data, people can help assess information on various aspects of their surrounding environment. Particularly in natural resource management, Volunteered Geographic Information (VGI) is increasingly recognized as a significant resource, for example, supporting visitation pattern analysis to evaluate collective values and improve natural well-being. In recent years, however, user privacy has become an increasingly important consideration. Potential conflicts often emerge from the fact that VGI can be re-used in contexts not originally considered by volunteers. Addressing these privacy conflicts is particularly problematic in natural resource management, where visualizations are often explorative, with multifaceted and sometimes initially unknown sets of analysis outcomes. In this paper, we present an integrated and component-based approach to privacy-aware visualization of VGI, specifically suited for application to natural resource management. As a key component, HyperLogLog (HLL)—a data abstraction format—is used to allow estimation of results, instead of more accurate measurements. While HLL alone cannot preserve privacy, it can be combined with existing approaches to improve privacy while, at the same time, maintaining some flexibility of analysis. Together, these components make it possible to gradually reduce privacy risks for volunteers at various steps of the analytical process. A specific use case demonstration is provided, based on a global, publicly-available dataset that contains 100 million photos shared by 581,099 users under Creative Commons licenses. Both the data processing pipeline and resulting dataset are made available, allowing transparent benchmarking of the privacy–utility tradeoffs. Full article

This work presents an open-source, dynamic, 1D, proton exchange membrane fuel cell model suitable for real-time applications. It estimates the cell voltage based on activation, ohmic and concentration overpotentials and considers water transport through the membrane by means of osmosis, diffusion and hydraulic permeation. Simplified equations reduce the computational load to make it viable for real-time analysis, quick parameter studies and usage in complex systems like complete vehicle models. Two modes of operation for use with or without reference polarization curves allow for a flexible application even without information about cell parameters. The program code is written in MATLAB and provided under the terms and conditions of the Creative Commons Attribution License (CC BY). It is designed to be used inside of a Simulink model, which allows this fuel cell model to be used in a wide variety of 1D simulation platforms by exporting the code as C/C++. Full article

Open educational resources (OER) have become increasingly popular in recent times. Here, the aim was to synthesise the lessons learned through the development of OER materials for a university-level course called “environmental modelling”. Consequently, the topics of discussion included: (i) how to choose an appropriate creative commons license; (ii) ways of incorporating materials from other sources, such as publicly available sources, other open access materials, and an author’s own published materials if not published under a creative commons license; (iii) the impact of the developed OER in the field of environmental modelling; and (iv) the challenges in developing OER material. Upon developing the materials, we observed the following: (i) students enrolled in the course did not purchase textbooks; (ii) our OER materials ranked as one of the most accessed (i.e., number 7) materials according to the usage data that summed the number of file downloads and item views from PRISM (i.e., the hosting platform maintained by the University of Calgary); (iii) the students learned relatively better as per the data acquired by the University of Calgary’s universal student ratings of instruction (USRI) instrument; and (iv) other universities expressed interest in adopting the materials. Full article

Personalized medicine is an aspect of the P4 medicine (predictive, preventive, personalized and participatory) based precisely on the customization of all medical characters of each subject. In personalized medicine, the development of medical treatments and drugs is tailored to the individual characteristics and needs of each subject, according to the study of diseases at different scales from genotype to phenotype scale. To make concrete the goal of personalized medicine, it is necessary to employ high-throughput methodologies such as Next Generation Sequencing (NGS), Genome-Wide Association Studies (GWAS), Mass Spectrometry or Microarrays, that are able to investigate a single disease from a broader perspective. A side effect of high-throughput methodologies is the massive amount of data produced for each single experiment, that poses several challenges (e.g., high execution time and required memory) to bioinformatic software. Thus a main requirement of modern bioinformatic softwares, is the use of good software engineering methods and efficient programming techniques, able to face those challenges, that include the use of parallel programming and efficient and compact data structures. This paper presents the design and the experimentation of a comprehensive software pipeline, named microPipe, for the preprocessing, annotation and analysis of microarray-based Single Nucleotide Polymorphism (SNP) genotyping data. A use case in pharmacogenomics is presented. The main advantages of using microPipe are: the reduction of errors that may happen when trying to make data compatible among different tools; the possibility to analyze in parallel huge datasets; the easy annotation and integration of data. microPipe is available under Creative Commons license, and is freely downloadable for academic and not-for-profit institutions. Full article

Imaging spectroscopy acquires imagery in hundreds or more narrow contiguous spectral bands. This offers unprecedented information for archaeological research. To extract the maximum of useful archaeological information from it, however, a number of problems have to be solved. Major problems relate to data redundancy and the visualization of the large amount of data. This makes data mining approaches necessary, as well as efficient data visualization tools. Additional problems relate to data quality. Indeed, the upwelling electromagnetic radiation is recorded in small spectral bands that are only about ten nanometers wide. The signal received by the sensor is, thus quite low compared to sensor noise and possible atmospheric perturbations. The often small, instantaneous field of view (IFOV)—essential for archaeologically relevant imaging spectrometer datasets—further limits the useful signal stemming from the ground. The combination of both effects makes radiometric smoothing techniques mandatory. The present study details the functionality of a MATLAB^®-based toolbox, called ARCTIS (ARChaeological Toolbox for Imaging Spectroscopy), for filtering, enhancing, analyzing, and visualizing imaging spectrometer datasets. The toolbox addresses the above-mentioned problems. Its Graphical User Interface (GUI) is designed to allow non-experts in remote sensing to extract a wealth of information from imaging spectroscopy for archaeological research. ARCTIS will be released under creative commons license, free of charge, via website (http://luftbildarchiv.univie.ac.at). Full article

This paper analyses the implementation of the Open Government Data strategy and portal of the City of Vienna. This evaluation is based on qualitative interviews and online polls after the strategy was implemented. Two groups of users were involved in the evaluation: internal target groups (employees and heads of department in the City of Vienna’s public administration departments) and external stakeholders (citizens, business representatives, science and research, journalists). Analyzed aspects included the present organizational processes, the benefits (to business and society), and requirements for future Open Government Data initiatives. This evaluation reveals success factors which accompanied the implementation: the clear definition of responsibilities and the implementation along a process model, the integration of the Open Government Data platform into existing Content Management Systems, the evaluation of the Open Government Data initiative very shortly after its inception. Based on the theoretical and empirical findings, recommendations for future Open Government Data strategies are made which target the local authority and would require action on the federal level such as Creative Commons Attribution License as the default for subsidy funds or public relation measures carried out directly by the data providing departments. Full article