Quality of Life for Informal Caregivers of Dependent Individuals

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Palliative Care".

Deadline for manuscript submissions: 1 October 2026 | Viewed by 1232

Editors


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Guest Editor
Department of Nursing, Faculty of Health Sciences, University of Jaen, 23071 Jaen, Spain
Interests: chronic wounds; pressure injuries; advanced practices; effectiveness of nursing interventions; end-of-life care; palliative care

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Guest Editor Assistant
Department of Nursing, Faculty of Health Sciences, University of Jaen, 23071 Jaen, Spain
Interests: caregivers; mental health; nursing students; university education

Special Issue Information

Dear Colleagues,

Family caregivers are those who provide continuous support to a loved one with a chronic illness, disability, or dependency. Their work, usually unpaid, includes physical, emotional, and administrative tasks, such as medication management, personal hygiene, nutrition, and coordination with health services. This role, although essential for the patient's well-being and the sustainability of the healthcare system, often generates physical and emotional overload due to stress, lack of rest, and social isolation. They are often middle-aged women who combine caregiving with work and family responsibilities. It is essential to promote research in the field of family caregiving, as it allows for a better understanding of the needs, challenges, and resources of caregivers, fostering the development of interventions and policies that improve their well-being and the quality of the care they provide.

In this Special Issue, we invite high-quality contributions. Research areas may include, but are not limited to, original empirical studies and systematic reviews with meta-analyses focused on the assessment and determinants of quality of life among family caregivers of dependent persons.

Prof. Dr. Francisco Pedro García-Fernández
Guest Editor

Dr. Belén Gutiérrez-Sánchez
Guest Editor Assistant

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Keywords

  • quality of life
  • informal caregivers
  • family caregivers
  • mental health
  • adults

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Published Papers (2 papers)

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Research

13 pages, 949 KB  
Article
Validation of the Arabic Version of the Multicultural Quality of Life Index (MQLI-Ar) Among Parents of Children with Disabilities
by Majed Ahmed Algarni, Abdullah Ahmed Alghamdi and Mohammad S. Alzahrani
Healthcare 2026, 14(10), 1327; https://doi.org/10.3390/healthcare14101327 - 13 May 2026
Viewed by 262
Abstract
Background: Parents of children with disabilities often experience reduced quality of life (QoL), yet validated Arabic instruments remain limited. This study aimed to translate and validate the Arabic version of the Multicultural Quality of Life Index (MQLI-Ar). Methods: A cross-sectional study was conducted [...] Read more.
Background: Parents of children with disabilities often experience reduced quality of life (QoL), yet validated Arabic instruments remain limited. This study aimed to translate and validate the Arabic version of the Multicultural Quality of Life Index (MQLI-Ar). Methods: A cross-sectional study was conducted among 132 parents and caregivers in Saudi Arabia. The MQLI was translated using forward–backward translation and culturally adapted. Reliability and validity were assessed using Cronbach’s alpha, exploratory factor analysis (EFA), and confirmatory factor analysis (CFA). Results: The MQLI-Ar demonstrated high internal consistency (Cronbach’s alpha = 0.948). EFA supported a unidimensional structure explaining 68.3% of the variance. CFA indicated acceptable model fit (CFI = 0.934, TLI = 0.915, SRMR = 0.0397), although RMSEA was elevated. Factor loadings ranged from 0.642 to 0.919, confirming strong item–factor relationships. Conclusions: The MQLI-Ar is a reliable and valid tool for assessing QoL among Arabic-speaking caregivers of children with disabilities, supporting its use in research and clinical practice. Full article
(This article belongs to the Special Issue Quality of Life for Informal Caregivers of Dependent Individuals)
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15 pages, 373 KB  
Article
Is Perceived Family Cohesion Associated with Family Caregiver Role and Caregiver-Related Characteristics? A Comparison of Spousal and Adult-Child Caregivers
by Jie Huang, Xinjie Zhou, Jun Yao and Li Zhang
Healthcare 2026, 14(4), 472; https://doi.org/10.3390/healthcare14040472 - 13 Feb 2026
Viewed by 591
Abstract
Background: Spousal caregivers and adult-child caregivers are the main sources of informal care of patients with dementia. They are primarily responsible for providing daily assistance, emotional support, and long-term care within the family. Methods: A cross-sectional survey was conducted in June 2024 in [...] Read more.
Background: Spousal caregivers and adult-child caregivers are the main sources of informal care of patients with dementia. They are primarily responsible for providing daily assistance, emotional support, and long-term care within the family. Methods: A cross-sectional survey was conducted in June 2024 in Nanjing, Jiangsu Province, China. A total of 410 family caregivers (154 spousal and 256 adult-child caregivers) participated. Perceived family cohesion was measured using the Family Adaptability Cohesion Scale, Second Edition, Chinese version (FACES II-CV). Caregiver-related characteristics included the following: caregivers’ self-reported physical health, social support, self-efficacy, and the number of family members assisting in caregiving. Results: (1) adult-child caregivers reported significantly higher perceived family cohesion than spousal caregivers (p < 0.001); (2) regression analyses revealed that caregiver role and caregiver-related characteristics were positively associated with perceived family cohesion (all p < 0.05); and (3) mediation analyses revealed that caregiver-related characteristics mediate the relationship between caregiver role and perceived family cohesion, with mediating effects of 0.109, 0.293, 0.087 and 0.174, respectively. Conclusions: Given that caregiver-related characteristics act as mediators of family cohesion, interventions should focus on strengthening caregivers’ physical health, social support, self-efficacy, and family involvement in caregiving to equalize the perception of family cohesion between spousal caregivers and adult-child caregivers. Full article
(This article belongs to the Special Issue Quality of Life for Informal Caregivers of Dependent Individuals)
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