Special Issue "Measuring Quality of Life in Chronic Illness"
A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Behavior, Chronic Disease and Health Promotion".
Deadline for manuscript submissions: 28 February 2023 | Viewed by 1961
2. Collegium of Business Administration, Warsaw School of Economics, 02-554 Warszawa, Poland
Interests: public health problems; health-related quality of life; health economics; health promotion; health education; teaching methods and techniques; personal development techniques
The World Health Organization emphasizes that chronic diseases are the major cause of adult illness and death in all regions of the world. Chronic disease, due to its specificity, significantly burdens not only the patient, but also their family and environment, affecting many aspects of life. A chronic disease is associated with limitations in everyday activities and the need for frequent medical visits, as well as medications and the necessity to change the lifestyle. Many of these aspects significantly affect the patient’s quality of life.
Health-related quality of life is a multidimensional area, which includes the physical, mental, and social dimensions. In this respect, beliefs about the disease, acceptance of the disease, strategies for coping with pain, self-efficacy, and methods of emotional control are of great importance. Sociodemographic or socioeconomic variables can also have a significant impact on quality of life. Reports also indicate that quality of life may be determined by health behaviors, such as taking care of physical activity, diet, sleep, relaxation, etc. For this reason, it is necessary to conduct research on all these elements in the life of chronically ill patients. Many studies prove that a better quality of life is associated with greater motivation to care for health or compliance with medical recommendations, which significantly affects the effects of therapy. Assessment of disease impact on the quality of a patient’s life will allow both better planning of disease management and the identification of those factors that have the greatest impact on the quality of life.
Therefore, all articles related to the broadly understood quality of life are invited to this Special Issue, especially those that combine various dimensions of the quality of life and allow the results to be used in clinical practice.
Dr. Urszula Religioni
Manuscript Submission Information
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- quality of life
- chronic disease
- beliefs about the disease
- health behaviors
- attitudes toward health
- disease management
- psychometric tools
- health promotion
- health psychology
The below list represents only planned manuscripts. Some of these manuscripts have not been received by the Editorial Office yet. Papers submitted to MDPI journals are subject to peer-review.
Title: Pain Experience in the Course of Endometriosis and Quality of Life of Affected Women
Author: Grażyna Bączek 1, Marta Miętus 2, Julia Klimanek 3, Aneta Duda-Zalewska 4
Affiliation: 1 Department of Obstetrics and Gynecology Didactics, Medical University of Warsaw, Warsaw, Poland; 2 Luxmed, Medicover, Warsaw, Poland; 3 St. Sophia’s Specialist Hospital, Żelazna Medical Center, Warsaw, Poland; 4 Department of Public Health, Medical University of Warsaw, Warsaw, Poland
Abstract: The quality of life of a patient experiencing a chronic disease is an important issue for both science and the life of the individual. Endometriosis is a disease that can be defined as ectopic growth and function of endometrial tissue outside the uterine cavity and it occurs on average in about 10% of women of reproductive age. The diagnosis of the disease is often long and ambiguous due to the wide variety of symptoms and their intensity. The aim of the study was to find out the opinions of women on the experience of pain in the course of the disease and its impact on the quality of life. Cross-sectional studies were carried out using a diagnostic survey in a group of 650 women. The study group consisted of patients diagnosed with endometriosis (361), and the control group - healthy women with a similar sociodemographic status (289). The research used an original interview questionnaire and a shortened version of the WHOQOL-BREF quality of life questionnaire. The obtained results allow us to conclude that the most important factors deteriorating the quality of life of women suffering from endometriosis include intense pain during menstrual bleeding, abdominal pain, sacral and spine pain, infertility, dyspareunia, and reduced satisfaction in individual areas of life (somatic, psychological, social and environmental). The conclusions from the study can be used in planning effective and comprehensive care for patients with endometriosis. It is necessary to continue research in this area, also with the use of qualitative methods.
Title: Coping with Stress in Neoplastic Diseases
Authors: Dominik Olejniczak 1, Paulina Mularczyk-Tomczewska 1, Krzysztof Klimiuk 2, Agata Olearczyk 1; Karolina Osowiecka 3, Aleksandra Kielan 1; Anna Staniszewska 4
Affiliation: 1 Department of Public Health, Faculty of Health Science, Medical University of Warsaw; 2 Faculty of Medicine, Medical University of Gdańsk; 3 Department of Psychology and Sociology of Health and Public Health, School of Public Health, University of Warmia and Mazury in Olsztyn; 4 Department of Experimental and Clinical Pharmacology, Medical University of Warsaw
Abstract: Disease-related stress is a common phenomenon. It also occurs in neoplastic diseases. As physical and mental health are interrelated, so it is important that treatment covers these two areas. Therefore, it is important to learn how cancer patients can cope with stress. Based on the results of the research titled “Coping with Stress in Neoplastic Diseases”, it will be possible to propose a recommendations. The respondents are patients suffering from neoplastic diseases, associated in patient advocacy groups. The method is Mini-COPE questionnaire.
Title: Dealing with Emotional States of Cancer Patients by Using Cognitive Strategies
Authors: Karolina Osowiecka 1, Anna Kieszkowska-Grudny 2,3, Monika Rucińska 4
Affiliation: 1 Department of Psychology and Sociology of Health and Public Health, University of Warmia and Mazury in Olsztyn, Poland; 2 Minds of Hope, Warsaw, Poland; 3 Psychiatry Clinic, Postgraduate Centre of Medical Education; 4 Department of Oncology Collegium Medicum, University of Warmia and Mazury in Olsztyn, Poland
Abstract: Cancer diagnosis is a traumatic moment in every patient's life. Patients experience various emotions from the time of diagnosis to the start of treatment and return to "normal life". To cope with them they use different cognitive emotion regulation strategies. Some of them can be supportive and some can be destructive during cancer therapy. Therefore it is important to recognize these strategies and introduce psychological support for patients in cooperation with oncologist.
Title: Quality of Life of Patients with Gynaecological Tumours
Authors: Paulina Mularczyk-Tomczewska
Affiliation: Department of Public Health, Faculty of Health Science, Medical University of Warsaw, 02-091 Warsaw, Poland
Abstract: Gynecologic cancers are common in women. One of the most important goals in the management of these patients is to improve quality of life, in addition to the traditional outcome of survival. The aim of this study is to assess the quality of life of gynecologic cancer patients in Poland. The cross-sectional study will be conducted on a sample of female patients with gynecological cancers who are patients of the Department of Gynecological Oncology, National Cancer Institute, Warsaw, Poland. The study will be conducted in the months of April-May 2022. Data will be collected through paper-based questionnaires using validated questionnaires and a self-completion questionnaire. After developing gynecologic cancer, women must cope with fundamental changes and challenges to their physical, psychological, and psychosocial well-being. Through this study, it will be possible to determine the quality of life of women with gynecologic cancers and possible areas of intervention.
Title: Managing Strategies with Pain among Patients with Rheumatic Diseases
Authors: Agnieszka Barańska; Magdalena Pazik; Urszula Religioni; Wioleta Kowalska; Anna Kłak; Marian Jędrych; Bartłomiej Drop
Affiliation: Department of Informatics and Medical Statistics, Medical University of Lublin, Poland
Title: Analysis of the Relationship between the Level of Satisfaction with Medical Care and Strategies of Coping with the Disease among Osteoporosis Patients
Authors: Agnieszka Barańska; Urszula Religioni; Joanna Dolar-Szczasny; Ewelina Firlej; Magdalena Bogdan; Anna Kłak; Robert Rejdak
Affiliation: Department of Informatics and Medical Statistics, Medical University of Lublin, Poland