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Int. J. Environ. Res. Public Health 2018, 15(12), 2679; https://doi.org/10.3390/ijerph15122679

Utilization of Formal and Informal Care by Community-Living People with Dementia: A Comparative Study between Sweden and Italy

1
Department of Health Sciences, Faculty of medicine, Lund University, Box 157, SE-221 00 Lund, Sweden
2
Department of Biomedical Sciences, Polytechnic University of Marche, 60030 Ancona, Italy
3
Department of Health Care Planning, Regional Health Agency of Marche Region, 60015 Ancona, Italy
4
Department of Clinical Sciences, Clinical Memory Research Unit, Faculty of Medicine, Lund University, SE-214 28 Malmö, Sweden
*
Author to whom correspondence should be addressed.
Received: 13 October 2018 / Revised: 21 November 2018 / Accepted: 22 November 2018 / Published: 28 November 2018
(This article belongs to the Special Issue IJERPH: 15th Anniversary)
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Abstract

Background: Dementia is a public health priority with a dramatic social and economic impact on people with dementia (PwD), their caregivers and societies. The aim of this study was to contribute to the knowledge on how utilization of formal and informal care varies between Sweden and Italy. Methods: Data were retrieved from two trials: [email protected] (Sweden) and UP-TECH (Italy). The sample consisted of 89 Swedish and 317 Italian dyads (PwD and caregivers). Using bivariate analysis, we compared demographic characteristics and informal resource utilization. Multiple linear regression was performed to analyze factors associated with time spent on care by the informal caregivers. Results: Swedish participants utilized more frequently health care and social services. Informal caregivers in Italy spent more time in caregiving than the Swedish ones (6.3 and 3.7 h per day, respectively). Factors associated with an increased time were country of origin, PwD level of dependency, living situation, use of formal care services and occupation. Conclusions: Care and service utilization significantly varies between Sweden and Italy. The level of formal care support received by the caregivers has a significant impact on time spent on informal care. Knowledge on the factors triggering formal care resources utilization by PwD and their caregivers might further support care services planning and delivery across different countries. View Full-Text
Keywords: dementia; health services; resource utilization; dementia care; informal care; formal care; cognitive disorder dementia; health services; resource utilization; dementia care; informal care; formal care; cognitive disorder
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).
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Chiatti, C.; Rodríguez Gatta, D.; Malmgren Fänge, A.; Scandali, V.M.; Masera, F.; Lethin, C.; On behalf of the UP-TECH and [email protected] research groups. Utilization of Formal and Informal Care by Community-Living People with Dementia: A Comparative Study between Sweden and Italy. Int. J. Environ. Res. Public Health 2018, 15, 2679.

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