Search Results (94)

Dengue and other arboviruses are a rising public health concern, worsened by climate change, globalization, and weak vector control. This study assessed the preparedness of local institutions and general practitioners (GPs)/paediatricians in ASL Roma 5 (Lazio, Italy) for potential arboviral outbreaks. A cross-sectional survey (April–May 2024) conducted 99 interviews: 57 with mayors and 42 with general GPs/paediatricians. A Health Belief Model (HBM)-based questionnaire assessed knowledge, attitudes, and practices regarding arbovirus transmission and management. Data were analyzed using descriptive statistics and chi-square tests. Dengue transmission awareness was low. Most mayors (85.96%) and GPs/paediatricians (88.1%) rated community knowledge as poor; 12.8% of mayors and 4.76% of GPs/paediatricians believed residents recognized local transmission risks. Environmental prevention programs were reported by 57.89% of mayors and 26.19% of GPs/paediatricians. Staff resource adequacy perceptions differed significantly (73.33% GPs/paediatricians vs. 21.82% mayors; p = 0.0005). In emergencies, 84.62% of GPs/paediatricians and 66.07% of mayors felt ready to act within 24 h. Local administrations face organizational and staffing limitations that hinder effective dengue prevention. While GPs/paediatricians showed greater confidence, they stressed the need for further training. Enhancing risk communication, environmental management, and intersectoral collaboration is crucial to improve preparedness for dengue and emerging arboviruses. Full article

This study assesses the capabilities of UAV-based Earth observation for analyzing marginalized communities, using Roma settlements in southeastern Slovakia as a case study. Marginalized populations are often underrepresented in official spatial datasets, resulting in a limited understanding of their living conditions, infrastructure needs, and environmental risks. To address this gap, we propose a multi-scalar, UAV-based observational approach that bridges the limitations of coarse satellite imagery and logistically constrained ground surveys. High-resolution RGB and thermal imagery were acquired across three settlements with varying spatial characteristics and processed using photogrammetric workflows to generate detailed orthophotos and spatial products. The results demonstrate that UAV data with centimeter-level spatial resolution enable precise mapping of settlement morphology, infrastructure, waste distribution, and thermal inequalities. Furthermore, UAV observations enable change detection and environmental risk assessment at scales that are not achievable with conventional remote sensing. However, the study also highlights critical operational and ethical challenges, including regulatory constraints, privacy concerns, and the need for community engagement. By integrating technical evaluation with socially sensitive research practices, this work proposes a methodological framework for responsible UAV deployment in marginalized contexts. The findings underscore the potential of UAV-based observation to improve spatial visibility and support evidence-based planning while emphasizing the importance of ethical implementation. Full article

(1) Background: The characteristics of rare diseases (RDs) vary considerably—not only between different disease types but also between individual patients with the same condition. In the Roma community, we analyzed the most frequent rare genetic disorders related to the founder effect. (2) Methods: This retrospective study, conducted between January 2019 and January 2025 at the Clinical Genetics and Metabolics Outpatient Clinic in Košice, included 61 patients aged from infancy to 25 years diagnosed with hypomyelinating leukodystrophy 14, pontocerebellar hypoplasia type 1B, neuronal ceroid lipofuscinosis 7, or TMEM70 deficiency. (3) Results: This study includes the largest known cohort of patients with hypomyelinating leukodystrophy 14 caused by the UFM1 c.-273_-271delTCA mutation, predominantly affecting males (n = 17). The disorder is severe, with most patients dying before one year of age, and is characterized by inspiratory stridor, axial hypotonia, spastic quadriparesis, pseudobulbar signs, and microcephaly. In a separate group with pontocerebellar hypoplasia type 1B, six Roma patients (three males, three females) shared the same EXOSC3 mutation. Diagnosis occurred at an average age of 8.8 months, and most children did not survive beyond three years. Common features included microcephaly, severe hypotonia, and spastic quadriplegia. Thirteen children from eight families were diagnosed with neuronal ceroid lipofuscinosis 7, all carrying the same MFSD8 mutation. Symptoms typically began with psychomotor regression between ages 3 and 4, along with intellectual disability and seizures, which were more frequent in males. The mean age at diagnosis was 4.5 years, and eight children died before age nine. Finally, 25 patients with TMEM70 deficiency associated with Roma ancestry were identified, predominantly females, with a mean age of 9.95 years and the oldest patient aged 25. Four children died due to severe metabolic crises. Common findings included intellectual disability, global hypotonia, hypertrophic cardiomyopathy, epilepsy, and failure to thrive. (4) Conclusions: Most rare diseases are genetic and carry high morbidity and mortality, with no targeted therapies currently available. Their increased prevalence in the Roma population reflects founder effects and high consanguinity. Prenatal and newborn screening, along with voluntary carrier testing for couples, is essential for proactive health management. Full article

Media-based cultural diversity education is approached here as an analytical synthesis that brings together established research traditions in media and communication studies, including mediatization, representation, and framing. It refers to the process through which media are understood to function as informal educational environments that shape how audiences learn about and interpret cultural differences. In contemporary mediatized societies, media institutions, including television and digital platforms, are understood to shape public understandings of diversity through the selection, framing, and visual representation of minority groups. Television is widely regarded as a particularly influential medium because of its wide reach and its institutional role in producing authoritative narratives about social reality. Through news reporting, documentaries, and other factual programming, television has been shown to circulate meanings about cultural diversity and provide audiences with interpretive frameworks through which minority groups are publicly understood. These communicative practices have been shown to influence how audiences perceive cultural difference, interpret social issues, and negotiate questions of belonging within society. By organizing narratives, frames, and visual repertoires through which cultural groups are portrayed, television has been shown to contribute to the formation of shared social knowledge about diversity and about relationships between majority and minority communities. In this sense, television can be understood not only as a channel of information but also as a cultural institution that shapes symbolic boundaries between social groups and influences perceptions of inclusion and exclusion. As an illustrative context, this entry also refers to representations of Roma communities in Central European media environments, where antigypsyism may be understood as a mediated cultural process embedded in everyday media communication. Full article

Background/Objectives: Social vulnerability is linked to unhealthy eating habits, low physical activity, and, overall, increased health risks and low well-being. This study examined self-perceived barriers and facilitators to engaging in obesity prevention policies for children at risk of poverty and social exclusion in Greece from the perspective of parents, caregivers, and community representatives. Methods: A qualitative study was conducted from November to December 2023 in three geographically diverse Greek regions, namely Attica, Thessaly, and Crete. A qualitative study was conducted between November and December 2023 in three geographically diverse regions of Greece. In total, seventy-two individuals participated in the study through individual interviews and focus groups. Forty-five parents of children with disabilities took part in individual interviews, equally represented in all three regions (fifteen participants per region). Among focus group participants: Twenty-one caregivers from child protection units participated in six focus groups (two per region), with focus group sizes ranging from three to five participants. In addition, six Roma community representatives participated in three focus groups (one per region), with focus group sizes ranging from one to four participants. Inductive and deductive thematic analysis were performed using NVivo 14 software to identify key themes. Results: Most factors that increased engagement were perceived by participants as both barriers and facilitators. These factors were classified at the individual, sociocultural, or structural level, and similar themes emerged across groups. Common barriers to poor engagement included low health literacy, financial difficulties and underfunding, social exclusion, a lack of targeted nutrition interventions, concerns related to training opportunities and support, and the adequacy and safety of built environments. Common facilitators of enhanced engagement included increased awareness and motivation to support vulnerable children, the availability of community- and school-based initiatives, and free school meal provision. Conclusions: Engagement in obesity prevention policies targeting vulnerable children is influenced by multiple interrelated factors. Understanding these barriers and facilitators from the participants’ perspectives can guide policymakers and practitioners in designing more effective obesity-related interventions for socially vulnerable groups of children. Full article

Background: Stereotypes and prejudices about the Roma community are common due to the fact that little information has been documented in a scientific way, as this population is difficult to access and study. Aim: Through this study, we aimed to investigate and disseminate the values by which members of a Roma community in Northeastern Romania live their lives, to be the first to provide written documentation of the values of this ethnic group, and to make this information available to anyone interested. Method: 28 participants of Roma ethnicity, aged between 19–52 years old, took part in the study. The study design is qualitative, and data were collected through three focus groups, based on a semi-structured interview. Results: The values of the Roma community that emerged as representative were family, care and sacrifice for others, respect, unity, responsibility, fidelity and faith in God. Any change in their lifestyles is seen as a betrayal, a departure from family and culture, which makes the integration of new values and customs difficult. Conclusions: These data are an important source of up-to-date information from which state institutions can benefit and adapt their actions in relation to Roma ethnic groups. Full article

This review examines how demographic knowledge is framed and reimagined within a Scottish widening access higher education programme. Drawing on my positionality as a former international student and widening access graduate, alongside over 15 years of community-based work with disadvantaged Roma populations, I reflect on how notions of population “need” are often shaped by national policy priorities and narrow imaginaries of populations—typically white, Scottish, and urban. While these narratives reflect lived realities, they risk overlooking multilingual, racialised, and globally mobile populations increasingly present in both the student body and the communities that graduates will serve. Based on my work since 2021 in placement coordination and teaching, I outline how applied changes to placement partnerships, thematic content, and assessment practice can challenge and reframe these dominant narratives. Drawing on Foucault’s concepts of population, discipline, and control, and Esposito’s theorisation of community, immunity, and exclusion, and coupled with anti-oppressive pedagogies, I argue for a reorientation of demographic literacy toward more plural, critically engaged, and globally attuned understandings of population. In reframing demographic literacy as a site of justice, I move it beyond a technical skill of interpreting population data toward a critical practice of interrogating how populations are constructed, which groups are rendered visible or invisible, and how imaginaries of “need” shape inclusion and exclusion in higher education. Such a shift positions international students not only as beneficiaries of widening access but as active population actors whose experiences and knowledges expand the terms of justice and belonging in higher education. Full article

The purpose of this paper is to provide a comparative policy analysis of successful strategies that have been implemented across European countries to address early school leaving (ESL) and academic underachievement. Employing a transformative and multidimensional approach, the study examines systemic and local interventions that integrate cognitive and socio-emotional dimensions of learning. Using Eurostat data to categorise countries based on their ESL reduction progress, the analysis evaluates legislative frameworks, policy initiatives, and educational practices through the prevention, intervention, and compensation model. The findings identify common themes such as the expansion of early childhood education and care (ECEC), enhancement of guidance and counselling services, targeted support for socio-economically disadvantaged groups, inclusive policies for marginalised populations including Roma communities, and the development of vocational and second-chance education pathways. The paper highlights the critical importance of coherent and scalable policy design to reduce educational inequalities and contribute to achieving European Union ESL reduction targets by 2030. It advances policy discourse by emphasising the essential need for balanced preventive and compensatory measures to improve educational outcomes and to foster social inclusion across varied national contexts. Full article

Background: Women from Roma communities face considerable health inequalities, primarily due to limited access to healthcare systems, alongside broader social and structural disadvantages. Among Roma women these disparities are reflected in poorer perinatal outcomes when compared to non-Roma populations. This systematic review aims at: (a) exploring disparities in neonatal health outcomes between Roma and non-Roma populations in relation to maternal factors such as health status, lifestyle, and education; (b) summarizing key perinatal characteristics in these groups; (c) assessing the influence of prenatal care on neonatal outcomes. Comprehending these disparities is crucial for guiding effective interventions and promoting health equity. Methods: A systematic literature review was conducted in major databases, such as PubMed and Scopus, to identify studies published up to 2025. The eligible studies focused on observational research that compared perinatal outcomes, including preterm birth, low birth weight (LBW), stillbirth, and neonatal mortality, between Roma and non-Roma populations. The potential discrepancies between these populations are thoroughly discussed in the review. Results: A comprehensive search yielded a total of 157 studies. After meticulous screening, 48 relevant studies were identified, reporting substantial health disparities between Roma and non-Roma mothers and their newborns. Roma populations exhibited significantly increased rates of preterm birth, LBW, and neonatal mortality vs. non-Roma populations. Socioeconomic status, access to prenatal care, maternal education, and systemic discrimination were identified as the primary contributing factors to these disparities. Conclusions: The findings highlight the significant and enduring disparities in perinatal health between Roma and non-Roma populations. In order to effectively address these disparities, it is necessary to have a comprehensive and multi-level strategy that prioritizes the social determinants of health, ensures equitable access to high-quality maternal care, and mitigates actively systemic discrimination. Future research should prioritize the development and rigorous evaluation of targeted interventions to reduce these inequities and improve perinatal outcomes among Roma populations. Full article

Helminthiases remain a significant global health concern, affecting both the Global South and increasingly the Global North. In Slovakia, intestinal parasitic infections impact marginalised populations, particularly the population of Roma inhabitants, who often face inadequate housing, poor sanitation, and limited access to clean water. This study examines the prevalence of intestinal parasites in the “Hungry Valleys”, an economically challenged region of eastern Slovakia, with a higher number of Roma inhabitants. A total of 3816 stool samples were analysed using sedimentation methods, revealing an overall positivity rate of 5.06%. The highest prevalence was found among Roma inhabitants, with 23 times higher chance for infection than non-Roma inhabitants, rural residents, and children under 18. The most common parasites were Ascaris lumbricoides and Trichuris trichiura. Statistical analyses revealed strong associations between infection rates and factors such as density of the population of Roma inhabitants and inadequate access to water. Risk maps created in QGIS identified areas of high transmission. These findings highlight the urgent need for targeted public health interventions, especially in vulnerable Roma communities. Integrating spatial analysis with epidemiological data can guide more effective prevention efforts. Addressing structural inequalities is key to reducing the burden of parasitic diseases in marginalised populations. Full article

The most recent scientific literature shows the effects of the COVID-19 pandemic on socially vulnerable groups such as Roma people. Non-profit social initiative organizations were active agents in overcoming the effects of the pandemic. This article shows the role that Third Sector of Social Action organizations played in alleviating the impact of the pandemic in collaboration with the Roma community itself, as part of the R&D&I research project ROM21, which studied the social agency of the Roma population in Spain regarding overcoming inequalities caused by the pandemic in relation to education, social services, and civic organizations. Based on the communicative methodology, discussion groups and interviews were conducted with Roma people and professionals from social services, civic organizations, and the health and education sectors, with 54 Roma women, 24 Roma men, 40 professionals, and 5 social activists participating. The results show the social initiative entities’ social action strategies in collaboration with the Roma community and the public administrations that responded to the needs that arose during the pandemic and in the post-pandemic context. Full article

The article examines the support structures available to Roma women faced with domestic violence, focusing on the role of the church as a sanctuary. The research includes a case study of the Roma community in Međimurje County, Croatia, which is characterized by (Catholic) religious homogenization. Analysis reveals that Roma women who fear the perpetrator prefer confidentiality, anticipate disbelief, or feel they are themselves to blame are more likely to seek support from the church. The findings show that Roma women who report domestic violence to the police are also likely to turn to the church for help. The research further examines the correlation between different types of violence and the likelihood of Roma women contacting the church for support. Full article

Preterm birth is a leading cause of perinatal morbidity and mortality and is particularly prevalent among socially disadvantaged female populations. This quantitative, cross-sectional study aimed to explore the prevalence of preterm birth in three segregated Roma communities in Hungary and to identify health behavior and care factors associated with its occurrence. In our study, preterm birth was defined as delivery before 37 completed weeks of gestation (i.e., <259 days). Data were collected from 231 Roma women living in three municipalities of Szabolcs-Szatmár-Bereg County, one of Hungary’s most disadvantaged regions, using a structured interview questionnaire. The participants were women aged 18–65 years. Of these, 209 had been pregnant at least once in their lifetime. The questionnaire covered socio-demographic characteristics (age, level of education, employment status, housing conditions, marital status), health behaviors (smoking, alcohol consumption, drug use, vitamin supplementation, other substance use), antenatal care attendance, and birth outcomes (preterm birth, gestational age, low birth weight, newborn status). Statistical analyses included descriptive statistics, chi-square tests, and binary logistic regression with significance set at p < 0.05. Preterm birth was significantly more common among women who smoked, consumed alcohol or drugs during pregnancy, or had vaginal infections. Drug use showed the strongest association with a 22-fold increase in risk, followed by alcohol (nearly fivefold), smoking (over threefold), and infections (threefold). Although non-attendance at antenatal care was associated with increased risk, this relationship was not statistically significant. In the multivariate logistic regression model, alcohol consumption (OR = 1.744, p < 0.01), smoking (OR = 2.495, p < 0.01), drug use (OR = 25.500, p < 0.001), and vaginal infections (OR = 4.014, p < 0.01) during pregnancy were independently associated with an increased risk of preterm birth, whereas folic acid supplementation (OR = 0.448, p < 0.05) showed a significant protective effect. These findings highlight that preterm birth is intricately linked to socioeconomic disadvantage and adverse health behaviors. Culture-specific, community-based prevention strategies are essential to reduce perinatal risks in marginalized populations. Full article

Background/Objectives: Policy implementers play a crucial role in the effective delivery of policies aiming at promoting a healthy lifestyle in the most vulnerable populations. This study aimed to explore (a) policy implementers’ knowledge and perceptions of the policy framework promoting physical activity and healthy nutrition among children in need in Greece, and (b) self-perceived barriers and facilitators of the framework implementation. The term children in need refers to children who are at risk of poverty and/or social exclusion. Methods: A qualitative study design was employed consisting of semi-structured interviews with 25 policy implementers, who represented four delivery systems (health, social protection, food, and education sectors) from three geographical regions in Greece. Interviews were completed between November and December 2023. Thematic analysis was conducted using inductive and deductive approaches to identify key themes, following data management in the N-VIVO 14 software. Results: Commonly mentioned policies that study participants were involved in included school- and/or community-level-based behavioral interventions. Participants perceived policy implementation efforts that often relied on individual initiatives as inconsistent. Most participants argued that existing policies were not tailored to the needs of children in need. Major self-perceived barriers included limited personnel training, limited facilities and infrastructure, and lack of incentives or opportunities to encourage active participation. Major self-perceived facilitators included personnel motivation, integration of nutrition and physical education into school curricula, and provision of free school meals, which was associated with regular school attendance of children from the Roma communities. Conclusions: Individual, sociocultural, and structural issues are shown to persist across different delivery systems indicating the complexity of tackling obesogenic environments, especially among children in need. This is the first study in Greece to provide evidence on self-perceived barriers and facilitators and could inform ongoing national and European efforts to address obesogenic environments in children in need. Full article

Background/Objectives: Alport syndrome (AS) predominantly presents with X-linked inheritance worldwide. However, the epidemiological landscape remains poorly characterized, particularly among ethnic minority groups like the Roma minority in Slovakia. Our study aimed to investigate the inheritance patterns of AS in this region and determine whether a distinct pattern predominates. Methods: Selective genetic screening for pathogenic variants previously occurring in Slovakia was performed. Samples from patients with persistent (familial) hematuria ± hearing loss who had not yet undergone biopsy or genetic testing were analyzed by high-resolution melting analysis. The prevalence of AS per million (pm) population was calculated by adding information on patients with previously confirmed AS. Results: Twenty-five new cases of ARAS, one digenic form, and two cases of XLAS were identified by screening. In total, we collected information on 46 patients with genetically or bioptically confirmed AS in the region of eastern Slovakia, corresponding to a prevalence of 29 pm population. The c.1598G>A (p.Gly533Asp) pathogenic variant of the collagen type IV alpha 4 chain, which follows an autosomal recessive inheritance pattern, was the most prevalent variant that was exclusively confirmed in Roma patients (n = 35), suggesting a founder effect. Within the Roma community, the prevalence of ARAS (the most prevalent inheritance pattern) corresponds to 133 pm of the Roma population, based on midpoint population estimates. Conclusions: Our findings demonstrate a unique genetic profile of AS in the Roma population, characterized by a high prevalence of ARAS, with implications for genetic counseling and screening strategies. Full article