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Impact of Chronic Illness on Quality of Life and Mental Health in Patients and Their Families

A special issue of International Journal of Environmental Research and Public Health (ISSN 1660-4601). This special issue belongs to the section "Health Behavior, Chronic Disease and Health Promotion".

Deadline for manuscript submissions: closed (15 April 2023) | Viewed by 9361

Special Issue Editor

Dr. Emily Julia Arden-Close

E-Mail Website
Guest Editor
Department of Psychology, Faculty of Science and Technology, Bournemouth University (Talbot Campus), Poole BH12 5BB, UK
Interests: quality of life in chronic illness; impact of chronic illness on couples; psycho-oncology; asthma

Special Issue Information

Dear Colleagues,

While both life expectancy and healthy life expectancy have greatly increased in recent decades, life expectancy has increased more than healthy life expectancy. Over 95% of the world’s population has a chronic illness (long-term condition), and one in three adults live with multiple chronic conditions (Global Burden of Disease Study, 2019). Three in five deaths are due to four major non-communicable diseases: cardiovascular disease, cancer, chronic lung diseases, and diabetes.  Long-term conditions significantly impact all aspects of health and quality of life and are associated with an increased likelihood of mental health issues, particularly anxiety and depression, which can in turn impact the management of long-term conditions. Furthermore, long-term conditions impact not only individuals, but also their families, including partners, children, and other family members, particularly those who provide informal care.  In some cases, the mental health impact of long-term conditions can be greater for family members than for the individual with the chronic illness. This Special Issue of International Journal of Environmental Research and Public Health focuses on the current state of knowledge regarding the impact of chronic illness on quality of life and mental health in individuals with chronic (long-term) conditions and their families.  New research papers and reviews, both qualitative and quantitative, are welcome in this issue.  We particularly welcome longitudinal studies, dyadic designs, and studies addressing multimorbidity. Methodological papers relating to quality-of-life measurement are also welcome, as are position papers and brief reports. Studies from a range of disciplines, including health psychology, medicine, nursing, and epidemiology, are welcomed.

Dr. Emily Julia Arden-Close
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. International Journal of Environmental Research and Public Health is an international peer-reviewed open access monthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2500 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • quality of life
  • mental health
  • wellbeing
  • chronic illness
  • long-term conditions
  • childhood chronic illness
  • families
  • couples
  • anxiety
  • depression

Published Papers (4 papers)

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Research

11 pages, 336 KiB  
Article
Wellbeing in Addiction Recovery: Does It Differ across Addictions?
by Tessa Corner, Emily Arden-Close and John McAlaney
Int. J. Environ. Res. Public Health 2023, 20(14), 6375; https://doi.org/10.3390/ijerph20146375 - 16 Jul 2023
Viewed by 1647
Abstract
Limited research has been conducted on the experiences of individuals in long-term recovery from addiction, and addictions are usually studied in isolation. However, no theories of addiction differentiate between addictions or assume that individuals will experience only one addiction. This study aimed to [...] Read more.
Limited research has been conducted on the experiences of individuals in long-term recovery from addiction, and addictions are usually studied in isolation. However, no theories of addiction differentiate between addictions or assume that individuals will experience only one addiction. This study aimed to compare affect between individuals with addictions to drugs and alcohol and to explore how QoL changes in long-term recovery from addiction. Individuals in recovery from addiction (n = 115; 52.2% male) were recruited via snowball sampling on social media signposted by an addiction rehabilitation charity. Participants completed questionnaires about QoL (WHOQOL-Bref) and positive and negative affect (PANAS-X). The main primary addictions were drugs (76.5%) and alcohol (21.7%), with 69.7% reporting multiple addictions including food, sex, internet, and gambling. Affect and coping strategies did not differ by addiction. QoL appeared to improve with time in recovery. The high percentage of multiple addictions and greater similarities than differences between individuals with drug and alcohol addictions suggest that addictions should not be studied in isolation when studying psychological health during long-term recovery. Full article
(This article belongs to the Special Issue Impact of Chronic Illness on Quality of Life and Mental Health in Patients and Their Families)
9 pages, 485 KiB  
Article
Factors Influencing Access to Health Services among Chronically Ill Older Adults with Physical Disabilities in the Era of the COVID-19 Outbreak
by Sutham Nanthamongkolchai, Athicha Tojeen, Korravarn Yodmai and Wanich Suksatan
Int. J. Environ. Res. Public Health 2023, 20(1), 398; https://doi.org/10.3390/ijerph20010398 - 27 Dec 2022
Viewed by 2108
Abstract
Chronically ill older adults with physical disabilities frequently face difficulties in their daily lives and require essential health service access, especially in the COVID-19 context. This study aimed to examine the association between social support, perception of benefits due to disability and access [...] Read more.
Chronically ill older adults with physical disabilities frequently face difficulties in their daily lives and require essential health service access, especially in the COVID-19 context. This study aimed to examine the association between social support, perception of benefits due to disability and access to health services among chronically ill older adults with physical disabilities during this crisis in Thailand. A total of 276 chronically ill older adults with physical disabilities were included in this cross-sectional study. Self-reported questionnaires were assessed through multi-stage random sampling. Correlations between the independent variables and health service access were examined using multiple regression analysis. Of the respondents, 159 were female (59.6%). Most participants perceived benefits (58.8%) and access to health services (56.2%) at good levels, while social support was at a moderate level (47.9%). Stepwise multiple regression analysis showed that social support (β = 0.351), perception of benefits (β = 0.257) and age (β = 0.167) were positively correlated with health service access. The findings are relevant for health care providers and multi-professional teams, who should enhance older adults’ social support and perception of benefits to improve their access to health services, particularly among chronically ill older adults with physical disabilities, in the era of COVID-19. Full article
(This article belongs to the Special Issue Impact of Chronic Illness on Quality of Life and Mental Health in Patients and Their Families)
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17 pages, 424 KiB  
Article
The Predictive Role of Cognitive Emotion Regulation of Adolescents with Chronic Disease and Their Parents in Adolescents’ Quality of Life: A Pilot Study
by Melinda Cserép, Brigitta Szabó, Péter Tóth-Heyn, Attila J. Szabo and Irena Szumska
Int. J. Environ. Res. Public Health 2022, 19(23), 16077; https://doi.org/10.3390/ijerph192316077 - 1 Dec 2022
Cited by 1 | Viewed by 1987
Abstract
Background: The purpose of this study was to investigate cognitive emotion regulation in adolescents with chronic illness and their parents. Methods: Eighty-five young people (mean = 15.86 years, standard deviation = ± 1.42, girls 65.88%) with chronic illnesses (inflammatory bowel disease n = [...] Read more.
Background: The purpose of this study was to investigate cognitive emotion regulation in adolescents with chronic illness and their parents. Methods: Eighty-five young people (mean = 15.86 years, standard deviation = ± 1.42, girls 65.88%) with chronic illnesses (inflammatory bowel disease n = 40 or type 1 diabetes n = 45), and their parents (mean = 46.06 years, 87.06% mother) completed the Cognitive Emotion Regulation Questionnaire (CERQ) for themselves and the Inventory of Quality of Life in Children and Adolescents (ILC) questionnaire adolescent and parent version. We conducted two hierarchical linear regression analyses with “enter” method. The CERQ scales and the diagnosis of chronic disease were chosen as independent variables, and the total ILC score in the first analysis and the ILC proxy score in the second analysis were chosen as dependent variables. Results: Among adolescents, cognitive emotion regulation strategies such as self-blame, positive reappraisal, and catastrophizing have been proven to be predictors of their own quality of life; however, parental self-blame was also found to be a predictor of adolescents’ quality of life. Parental rumination and positive refocusing have been shown to be predictors of how parents rate their child’s quality of life. Conclusions: The present study sheds light on cognitive emotion regulation strategies in adolescents with chronic illness and their parents that have a significant impact on the development of young people’s quality of life. Full article
(This article belongs to the Special Issue Impact of Chronic Illness on Quality of Life and Mental Health in Patients and Their Families)
10 pages, 320 KiB  
Article
Worsening Quality of Life in Young Adult, Highly Educated, and Married Female Patients with Vitiligo: A Hospital-Based Case Control Study in Taiwan
by Yuan-Ting Yang, Chung-Hao Hsu, Yu-Fen Wang, Yu-Jun Chang, Hui-Ju Yang, Jiunn-Liang Ko and Kuo-Chia Yang
Int. J. Environ. Res. Public Health 2022, 19(11), 6741; https://doi.org/10.3390/ijerph19116741 - 31 May 2022
Cited by 7 | Viewed by 1944
Abstract
Vitiligo is an acquired chronic depigmentation disorder that can have a negative impact on the quality of life (QoL). This is especially true for patients with non-white skin. Only few studies have investigated the QoL of Asian patients with vitiligo. We aimed to [...] Read more.
Vitiligo is an acquired chronic depigmentation disorder that can have a negative impact on the quality of life (QoL). This is especially true for patients with non-white skin. Only few studies have investigated the QoL of Asian patients with vitiligo. We aimed to investigate the QoL in Taiwanese vitiligo patients and identify the factors that influence their QoL. The cross-sectional study recruited 100 vitiligo patients and 100 controls with general skin diseases in the Department of Dermatology of Changhua Christian Hospital. Data were obtained using a structured questionnaire for demographic information and modified Skindex-21 instruments. The QoL was not significantly different between vitiligo patients and controls. Among the vitiligo patients, adults exhibited deteriorated emotional levels and total QoL as compared with non-adults. Married females reported greater levels of emotional disturbance than the unmarried ones. A higher educational level and shorter history of disease were associated with greater emotional impacts. The patients with a generalized type of vitiligo suffered more in total QoL. After multivariate adjustment, the young adult patients aged 20–39 were associated with poorer total QoL. It is suggested that vitiligo patients who are aged between 20 and 39, are married females, are highly educated, have a shorter disease history, and suffer from the generalized type of this disease demonstrate more deterioration in their life quality compared with other vitiligo patients. Care providers should tailor the psychological counseling and treatment accordingly. Full article
(This article belongs to the Special Issue Impact of Chronic Illness on Quality of Life and Mental Health in Patients and Their Families)
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