Improving Quality of Life in Lupus Patients

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Healthcare Quality and Patient Safety".

Deadline for manuscript submissions: closed (22 March 2022) | Viewed by 5777

Special Issue Editor


E-Mail Website
Guest Editor
College of Medicine, Medical University of South Carolina, Charleston, SC 29425, USA
Interests: health disparities; systemic lupus erythematosus; behavioral interventions; disease self-management; minority health; women’s health

Special Issue Information

Dear Colleagues,

Systemic Lupus Erythematosus (SLE or lupus) is a chronic autoimmune disease with acute periodic flare-ups of symptoms impacting any organ system and resulting in potentially life-threatening complications. In addition to being associated with high health-care costs and significant productivity loss, symptoms, side effects, and complications of SLE can lead to significant functional and emotional challenges. Patients often experience various psychological symptoms, including anxiety, depression, mood disorders, and decreased health-related quality of life (HRQOL). Studies have found that SLE affects all areas that are considered essential for quality of life, including alertness, behavior, recreation/pastime, sleep and rest, home management, social interaction, and emotional balance. Certain groups within the United States, such as women and racial/ethnic minorities, are more severely impacted by lupus, and this negatively affects their quality of life and coping ability and is associated with high-cost service utilization.  

Healthcare invites manuscript submissions related to the improvement of quality of life of lupus patients. All manuscripts should be submitted online using the submission site by 22 March 2022. All submissions will undergo a rigorous peer review. We encourage submissions of original research articles, reviews, and perspectives.

Suggested topic areas include, among others:

  • Disease management and healthcare resource approaches
  • Treatment adherence and quality of life outcomes
  • Strategies to reduce cost burden for patients with severe flares and more major organ involvement
  • Recommendations for racial and ethnic minorities, the poor, and those lacking medical insurance and/or education
  • Interventions to address the impacts of:
    • inpatient hospitalizations
    • long disease duration
    • high disease activity and damage
    • poor physical and mental health
    • low education and employment levels

Visit the Healthcare website to learn more, read past issues, and view author submission guidelines.

Prof. Dr. Edith Williams
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Published Papers (2 papers)

Order results
Result details
Select all
Export citation of selected articles as:

Research

Jump to: Other

8 pages, 240 KiB  
Article
The Effect of Travel Burden on Depression and Anxiety in African American Women Living with Systemic Lupus
by Ashley A. White, Brittany L. Smalls, Aissatou Ba, Trevor D. Faith, Viswanathan Ramakrishnan, Hetlena Johnson, Jillian Rose, Clara L. Dismuke-Greer, Jim C. Oates, Leonard E. Egede and Edith M. Williams
Healthcare 2021, 9(11), 1507; https://doi.org/10.3390/healthcare9111507 - 05 Nov 2021
Cited by 2 | Viewed by 1710
Abstract
The United States has a deficit of rheumatology specialists. This leads to an increased burden in accessing care for patients requiring specialized care. Given that most rheumatologists are located in urban centers at large hospitals, many lupus patients must travel long distances for [...] Read more.
The United States has a deficit of rheumatology specialists. This leads to an increased burden in accessing care for patients requiring specialized care. Given that most rheumatologists are located in urban centers at large hospitals, many lupus patients must travel long distances for routine appointments. The present work aims to determine whether travel burden is associated with increased levels of depression and anxiety among these patients. Data for this study were collected from baseline visits of patients participating in a lupus study at MUSC. A travel/economic burden survey was assessed as well as the 8-item Patient Health Questionnaire (PHQ-8) and the 7-item Generalized Anxiety Disorder (GAD-7) survey as measures of depression and anxiety, respectively. Linear regression models were used to assess the relationship between travel burden and depression and anxiety. Frequency of healthcare visits was significantly associated with increased depression (β = 1.3, p = 0.02). Significant relationships were identified between anxiety and requiring time off from work for healthcare appointments (β = 4, p = 0.02), and anxiety and perceived difficulty in traveling to primary care providers (β = 3.1, p = 0.04). Results from this study provide evidence that travel burden can have an effect on lupus patients’ anxiety and depression levels. Full article
(This article belongs to the Special Issue Improving Quality of Life in Lupus Patients)

Other

Jump to: Research

15 pages, 2503 KiB  
Systematic Review
Effects of Exercise Intervention on Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus: A Systematic Review and Meta-Analysis of Controlled Trials
by Ming-Chi Lu and Malcolm Koo
Healthcare 2021, 9(9), 1215; https://doi.org/10.3390/healthcare9091215 - 15 Sep 2021
Cited by 9 | Viewed by 3354
Abstract
Exercise and physical activity have been deemed as potentially beneficial for patients with systemic lupus erythematosus (SLE). This study aimed to evaluate the effects of exercise interventions on health-related quality of life in patients with SLE using a systematic review and meta-analysis. Randomized [...] Read more.
Exercise and physical activity have been deemed as potentially beneficial for patients with systemic lupus erythematosus (SLE). This study aimed to evaluate the effects of exercise interventions on health-related quality of life in patients with SLE using a systematic review and meta-analysis. Randomized and non-randomized controlled trials published up to July 2021 were examined using the PubMed and Embase databases. Of the 1158 articles retrieved, nine were included for systematic review. Five of them were randomized controlled trials and these were assessed using meta-analysis. Hedges’ g effect size was 0.47; 95% (confidence interval 0.21–0.73; p < 0.001) for the physical health and function aspect of health-related quality of life. None of the other seven domains of the SF-36 showed a significant effect size. However, the latter finding was limited by the small number of available trials. In conclusion, this systematic review and meta-analysis supported that exercise intervention compared to usual care might be able to improve the physical functioning domain of health-related quality of life in patients with SLE. Future high-quality randomized controlled trials that incorporate disease-specific health-related quality of life measures are needed to elucidate the role of exercise on health-related quality of life in patients with SLE. Full article
(This article belongs to the Special Issue Improving Quality of Life in Lupus Patients)
Show Figures

Figure 1

Back to TopTop