Improving Care for People Living with ALS/MND
A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Nursing".
Deadline for manuscript submissions: 30 June 2025 | Viewed by 791
Special Issue Editors
Interests: motor neurone disease; amyotropic lateral sclerosis; decision-making; patient decision support tools; co-design; safety and quality of care
Interests: speech and language disorders; dysarthria; motor neuron disease; amyotrophic lateral sclerosis; speech treatment; outcome measurement; speech biomarkers
Interests: motor neuron disease; amyotrophic lateral sclerosis; communication; dysarthria; psychosocial wellbeing; third-party disability; patient-centred care; speech and language
Special Issue Information
Dear Colleagues,
1) Introduction, including scientific background and highlighting the importance of this research area.
Motor neurone disease (MND), also known as amyotrophic lateral sclerosis (ALS), is a multisystem and fatal neurodegenerative condition that continues to elude a cure or effective disease-delaying treatments. Until these are achieved, the focus remains on improving the quality of care for people living with ALS/MND and supporting their family carers. Evidence-based best practise includes care delivered by specialised multidisciplinary ALS/MND clinics. However, many people living with ALS/MND are unable to access specialised ALS/MND services, and, as a rare disease, many health professionals are unfamiliar with the often-rapid disease trajectory and the urgency of receiving care that meets patients’ needs.
We are pleased to invite you to contribute to this Special Issue on ALS/MND care.
2) Aim of the Special Issue and how the subject relates to the journal scope. Please make sure that your Special Issue is in the scope of the journal. You can check the scope in the Journal menu: Aims and Scope. Additionally, the scope should not be too broad or too narrow.
This Special Issue aims to highlight the recent research on developments in care for people living with ALS/MND, regardless of where they receive their care. Topics may include (but are by no means limited to) symptom management; palliative care; perspectives of people with lived experience of ALS/MND; models of care; service delivery; e-health; service co-design; and equitable access to care. We invite contributors to submit manuscripts that broaden our understanding of ALS/MND care and demonstrate how the delivery of care can be improved.
3) Suggested themes and article types for submissions
In this Special Issue, original research articles and reviews are welcome. Articles may include (but are not limited to) the following:
- Original research;
- Literature reviews, including systematic, scoping, narrative, and rapid reviews;
- Perspectives papers.
We look forward to receiving your contributions.
Dr. Anne Vaughan Hogden
Dr. Brooke-Mai Whelan
Guest Editors
Dr. Salma Charania
Guest Editor Assistant
Manuscript Submission Information
Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.
Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.
Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.
Keywords
- evidence-based practise
- patient-centred care
- patient-centred decision making
- multidisciplinary care
- interprofessional care
- regional and rural ALS/MND care
- e-health
- virtual care
- co-design
- equity of access
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