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Structured Care and Self-Management Education for Persons with Parkinson’s Disease: Why the First Does Not Go without the Second—Systematic Review, Experiences and Implementation Concepts from Sweden and Germany
Article

Parkinson Network Eastern Saxony (PANOS): Reaching Consensus for a Regional Intersectoral Integrated Care Concept for Patients with Parkinson’s Disease in the Region of Eastern Saxony, Germany

1
Department of Neurology, University Hospital Dresden, 01307 Dresden, Germany
2
Clinical Trial Unit, German Center for Neurodegenerative Diseases (DZNE) Dresden, 01307 Dresden, Germany
3
Institute for Applied Health Services Research (inav), Schiffbauerdamm 12, 10117 Berlin, Germany
4
Department of Neurology, Elblandklinikum Meißen, 01662 Meißen, Germany
5
Chair of Business Informatics, esp. Systems Development, Faculty of Business and Economics, Technical University of Dresden, 01062 Dresden, Germany
6
Center for Evidence-based Healthcare, Faculty of Medicine Carl Gustav Carus, Technische Universität Dresden, 01307 Dresden, Germany
7
Vilans, National Centre of Expertise in Long Term Care, 3527 GV Utrecht, The Netherlands
8
Tilburg University/TIAS School for Business and Society, 5037 AB Tilburg, The Netherlands
9
Department of Neurology, University Hospital Marburg, 35043 Marburg, Germany
10
Department of Neurology, Klinik am Tharandter Wald Hetzdorf, Herzogswalder Straße 1, 09633 Halsbrücke, Germany
*
Author to whom correspondence should be addressed.
Authors contributed equally.
J. Clin. Med. 2020, 9(9), 2906; https://doi.org/10.3390/jcm9092906
Received: 31 July 2020 / Revised: 30 August 2020 / Accepted: 31 August 2020 / Published: 8 September 2020
As integrated care is recognized as crucial to meet the challenges of chronic conditions such as Parkinson’s disease (PD), integrated care networks have emerged internationally and throughout Germany. One of these networks is the Parkinson Network Eastern Saxony (PANOS). PANOS aims to deliver timely and equal care to PD patients with a collaborative intersectoral structured care pathway. Additional components encompass personalized case management, an electronic health record, and communicative and educative measures. To reach an intersectoral consensus of the future collaboration in PANOS, a structured consensus process was conducted in three sequential workshops. Community-based physicians, PD specialists, therapists, scientists and representatives of regulatory authorities and statutory health insurances were asked to rate core pathway-elements and supporting technological, personal and communicative measures. For the majority of core elements/planned measures, a consensus was reached, defined as an agreement by >75% of participants. Additionally, six representatives from all partners involved in the network-design independently assessed PANOS based on the Development Model for Integrated Care (DMIC), a validated model addressing the comprehensiveness and maturity of integrated care concepts. The results show that PANOS is currently in an early maturation state but has the potential to comprehensively represent the DMIC if all planned activities are implemented successfully. Despite the favorable high level of consensus regarding the PANOS concept and despite its potential to become a balanced integrated care concept according to the DMIC, its full implementation remains a considerable challenge. View Full-Text
Keywords: Parkinson disease; consensus; clinical pathway; integrated delivery of health care; patient care team; community networks; patient monitoring; telemedicine Parkinson disease; consensus; clinical pathway; integrated delivery of health care; patient care team; community networks; patient monitoring; telemedicine
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MDPI and ACS Style

Loewenbrück, K.F.; Stein, D.B.; Amelung, V.E.; Bitterlich, R.; Brumme, M.; Falkenburger, B.; Fehre, A.; Feige, T.; Frank, A.; Gißke, C.; Helmert, C.; Kerkemeyer, L.; Knapp, A.; Lang, C.; Leuner, A.; Lummer, C.; Minkman, M.M.N.; Müller, G.; van Munster, M.; Schlieter, H.; Themann, P.; Zonneveld, N.; Wolz, M. Parkinson Network Eastern Saxony (PANOS): Reaching Consensus for a Regional Intersectoral Integrated Care Concept for Patients with Parkinson’s Disease in the Region of Eastern Saxony, Germany. J. Clin. Med. 2020, 9, 2906. https://doi.org/10.3390/jcm9092906

AMA Style

Loewenbrück KF, Stein DB, Amelung VE, Bitterlich R, Brumme M, Falkenburger B, Fehre A, Feige T, Frank A, Gißke C, Helmert C, Kerkemeyer L, Knapp A, Lang C, Leuner A, Lummer C, Minkman MMN, Müller G, van Munster M, Schlieter H, Themann P, Zonneveld N, Wolz M. Parkinson Network Eastern Saxony (PANOS): Reaching Consensus for a Regional Intersectoral Integrated Care Concept for Patients with Parkinson’s Disease in the Region of Eastern Saxony, Germany. Journal of Clinical Medicine. 2020; 9(9):2906. https://doi.org/10.3390/jcm9092906

Chicago/Turabian Style

Loewenbrück, Kai F., Doron B. Stein, Volker E. Amelung, Robert Bitterlich, Martin Brumme, Björn Falkenburger, Annekathrin Fehre, Tim Feige, Anika Frank, Carola Gißke, Claudia Helmert, Linda Kerkemeyer, Andreas Knapp, Caroline Lang, Annegret Leuner, Carina Lummer, Mirella M.N. Minkman, Gabriele Müller, Marlena van Munster, Hannes Schlieter, Peter Themann, Nick Zonneveld, and Martin Wolz. 2020. "Parkinson Network Eastern Saxony (PANOS): Reaching Consensus for a Regional Intersectoral Integrated Care Concept for Patients with Parkinson’s Disease in the Region of Eastern Saxony, Germany" Journal of Clinical Medicine 9, no. 9: 2906. https://doi.org/10.3390/jcm9092906

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