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8 November 2021

User Experience Factors for People with Autism Spectrum Disorder

,
and
1
Escuela de Ingeniería Informática, Pontificia Universidad Católica de Valparaíso, Valparaíso 2340000, Chile
2
Instituto Centro de Investigación Operativa, Universidad Miguel Hernández de Elche, Avenida de la Universidad s/n, 03202 Elche, Spain
*
Authors to whom correspondence should be addressed.
This article belongs to the Special Issue Human‑Computer Interaction: Designing for All

Abstract

Autism Spectrum Disorder (ASD) is a condition characterized by difficulties with social interaction and communication. Studies show that people with ASD tend to enjoy using technology, as it provides them with a safe and trustworthy environment. Evaluating User eXperience (UX) in people with disabilities has been a challenge that studies have addressed in recent times. Several studies have evaluated the usability and UX of systems designed for people with ASD using evaluation methods focused on end users without disabilities. In reviewing studies that evaluate systems designed for people with ASD, considering the characteristics of these users, we discovered a lack of particularized UX models. We present a proposal of nine UX factors for people with ASD based on two approaches: (1) the characteristics, affinities, and needs of people with ASD, and (2) design guidelines and/or recommendations provided in studies on technological systems for people with ASD and/or interventions with these users. The nine UX factors for people with ASD provide a theoretical basis from which to adapt and/or create UX evaluation instruments and methods and to generate recommendations and/or design guidelines that are adequate for this context.

1. Introduction

The fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) [1] defines Autism Spectrum Disorder (ASD) as a developmental disorder that affects people’s communication and behavior. Additionally, it is established that ASD is a condition characterized by deficits in two core domains: (1) social communication and social interaction and (2) restricted repetitive patterns of behavior, interests, and activities.
Several studies have developed and evaluated User eXperience (UX) in systems for people with ASD. These studies have focused on evaluating UX using various methods available in the literature such as focus groups, eye tracking, heuristics evaluation, and questionnaires after interactions with the systems, which do not present sufficient details for evaluations. There is a lack of empirical evidence in their research, as described by a previous systematic literature review [2].
In a second literature review [3], we found studies that propose different characteristics to consider when working with people with ASD as well as others that propose guidelines and/or recommendations for designing systems for these users. However, no study presents particular UX factors for people with ASD. We think that it is important to consider a set of specific UX factors that could facilitate UX evaluation and design.
This is why, taking into account the works previously found in the literature [2,3] as well as new studies added for this research, we have designed a proposal of nine UX factors for people with ASD based on two approaches: (1) the characteristics, affinities, and needs of people with ASD, and (2) design guidelines and/or recommendations provided by studies focused on technological systems for people with ASD and/or interventions with these users. The nine proposed UX factors are focused on evaluating systems designed for adults with ASD of severity level 1, “Requiring support”, as defined by the DSM-5 [1].
This document is organized as follows: Section 2 presents a theoretical background; Section 3 describes relevant related work; Section 4 introduces and describes the process used to create a preliminary proposal of UX factors for people with ASD; Section 5 presents the final set of nine UX factors for people with ASD; and Section 6 presents a discussion.

2. Theoretical Background

Below are brief descriptions of ASD, UX, and UX models, which are relevant for this investigation.

2.1. Autism Spectrum Disorder

ASD is defined in the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) [1] as a condition characterized by deficits in two core domains: (1) social communication and social interaction, and (2) restricted repetitive patterns of behavior, interests, and activities. Additionally, people with ASD may or may not present secondary symptoms such as intellectual disability (ID), low tolerance for frustration, no verbal language, motor difficulties, and others. Three severity categories for ASD have been established [1] depending on the degree of support that the person requires and range from level 1 “Requiring support” to level 3 “Requiring very substantial support.”

2.2. User Experience

Standard ISO 9241-210 [4] defines user experience as a “user’s perceptions and responses that result from the use and/or anticipated use of a system, product or service.” Additionally, the standard describes UX as “users’ perceptions and responses include the users’ emotions, beliefs, preferences, perceptions, comfort, behaviors, and accomplishments that occur before, during and after use.” A component of UX is usability, a concept defined by the ISO 9241-11 standard [5] as the “extent to which a system, product or service can be used by specified users to achieve specified goals with effectiveness, efficiency and satisfaction in a specified context of use.”

2.3. UX Models

Multiple authors have defined UX and usability models focused on providing indicators to measure “satisfaction” in the interaction between the user and the system or product. Some examples include (1) Guidance on Usability from The International Standard on Ergonomics of Human System Interaction [5], which defines three aspects to consider: effectiveness, efficiency, and satisfaction; (2) Jacob Nielsen’s model [6], which describes five attributes to consider: learnability, efficiency, memorability, errors, and satisfaction; (3) Llúcia Masip et al.’s model [7], which describes eleven facets to consider: dependability, usability, playability, accessibility, plasticity, communicability, cross-cultural capacity, emotionality, desirability, usefulness, and findability; and (4) Peter Morville’s model [8], which presents seven factors that help users have a meaningful and valuable user experience: useful, usable, desirable, findable, credible, accessible, and valuable.

4. A Two-Step Preliminary Proposal of UX Factors for ASD

Given the need to formalize the user experience evaluation process in systems focused on people with ASD, a methodical process was carried out to make a preliminary proposal of user experience factors for people with ASD that consider their characteristics, difficulties, and/or affinities, as found in the literature. The preliminary proposal of user experience factors was created following two steps, which are detailed below.

4.1. Step 1: Adapting Morville UX Factors Based on ASD Characteristics

As shown in Figure 1, a preliminary proposal of specific UX factors for people with ASD is defined based on (i) a search of the literature of the characteristics, difficulties, and/or affinities of people with ASD, and (ii) the collection and selection of UX factors/attributes.
Figure 1. Process for Defining UX Factors Based on ASD User Characteristics.
To perform this specification, we followed a four-step process to define specific UX factors for people with ASD: (1) the collection and grouping of characteristics, difficulties, and affinities in people with ASD; (2) the collection and selection of UX factors/attributes found in the literature; (3) matching identified characteristics and UX factors; and (4) the proposal of UX factors for people with ASD. Each step is detailed below.

4.1.1. Collection and Grouping of Characteristics/Difficulties/Affinities for People with ASD

In this step, we compiled and grouped the characteristics, difficulties, and affinities of people with ASD found in previous work [2,3] and information provided by the book Diagnostic and Statistical Manual of Mental Disorders [1]. Following this process, we compiled a set of 18 characteristics, difficulties, and affinities, which are shown in Table 1.
Table 1. ASD Characteristics from the Literature.

4.1.2. Collection and Selection of UX Factors

Authors have defined factors/attributes with the end goal of evaluating the usability and user experience of a specific product. Some examples of this include the following:
  • Usability:
    Aspects [5]: effectiveness, efficiency, and satisfaction.
    Attributes [6]: learnability, efficiency, memorability, errors, and satisfaction.
  • User experience:
    Facets [7]: dependability, usability, playability, accessibility, plasticity, communicability, cross-cultural capacity, emotionality, desirableness, usefulness, and findability.
    Factors [8]: useful, usable, desirable, findable, credible, accessible, and valuable.
The selection of such factors/attributes should be dependent on the nature and characteristics of the product and scope of the investigation. Considering the focus of this investigation, we selected the seven UX factors proposed by Morville [8], who states that the Useful, Usable, Desirable, Findable, Accessible, Credible, and Valuable factors contribute to a successful user experience. The definitions for each of these factors are presented in Table 2 below.
Table 2. Morville UX Factors.

4.1.3. Match between Identified Characteristics and UX Factors

After the compilation of the information described above, matching was employed. We matched the characteristics, difficulties, and affinities of people with ASD to the seven factors raised by Morville [8] to use these elements to specifically define what the user experience means for people with ASD.
To carry out the matching procedure, we performed the following steps: (i) for each of the seven UX factors, one or more characteristics, difficulties, and/or affinities of the users were associated, and (ii) a new specified UX factor was drafted to make it more specific to the selected characteristics. Table 3 presents an example of this mapping procedure, where we present characteristics that match the definition for Morville’s “findable” factor, and then we define an adapted UX factor for people with ASD. Appendix A Table A1 presents the matching results for all seven of Morville’s UX factors.
Table 3. Sample of UX Factors Specified for ASD.

4.1.4. Preliminary Proposal of UX Factors for People with ASD Based on Characteristics

After collecting, analyzing, and refining the information described in the above sections, eight specific UX factors for systems used by people with ASD are proposed. Table 4 presents a preliminary definition for each of the factors.
Table 4. Set 1: Preliminary Definitions of UX Factors Based on ASD User Characteristics.

4.2. Step 2: Guidelines from the Literature

In a second step, as shown in Figure 2, after a review of the literature, we identified and compiled design guidelines and/or recommendations defined by authors based on the characteristics of people with ASD in technological and nontechnological contexts.
Figure 2. Process for Defining UX Factors Based on ASD Guidelines and Recommendations.
We followed a three-step process to define UX factors for people with ASD based on ASD guidelines and recommendations: (1) the compilation of articles that propose and/or use design guides and/or recommendations, (2) grouping and categorizing design guidelines and/or recommendations based on their similarities, and (3) the proposal of a second set of UX factors for people with ASD.

4.2.1. Identifying Guidelines in the Literature

After a recent literature review, a total of 16 articles were found to focus on proposing and/or using guidelines to design systems or places frequented by people with ASD. From these articles, 290 design guidelines or recommendations were identified and are presented in Table A2 under the names or identifiers given by the authors. For studies [42,43], only the number of guidelines is shown since the authors do not provide short identifiers for them.
The studies present varying amounts of design guidelines and/or recommendations, which are generally focused on different aspects to consider when designing systems or interventions for people with ASD. These differences between quantities and categories may be attributable to this being a little explored field, and there is no consensus or established definition of aspects to consider when working with people with ASD, which supports the need to specify and agree on these aspects.

4.2.2. Grouping and Categorization

Following the results given in Table A2, the 290 design guidelines or recommendations found were grouped and categorized according to similarities in their definitions. In Table A3, the design guidelines or recommendations are categorized into 10 categories, which are divided into 32 subcategories of aspects to be consider when designing systems for people with ASD. For each of the subcategories, we cite a representative phrase for the group as an example selected from a study that considers this guideline or recommendation. An example of the grouping and categorization of guidelines and recommendations is given in Table 5. The full process employed is documented in Table A3.
Table 5. ASD Guideline and Recommendation Categorization.
As shown in Table A3, multiple studies establish design guidelines and/or recommendations for aspects to consider when designing systems for people with ASD. Aspects such as personalization, customization, and graphics are most frequently considered in design guidelines and/or recommendations proposed in studies given the diverse characteristics and affinities that users may have. In contrast, aspects such as a simple and concise memory load, control, and recovery are the least explored by research.

4.2.3. Preliminary Proposal of UX Factors for People with ASD Based on Design Guidelines

Considering the grouping of similar concepts described in Table A3, a second set of refined preliminary UX factors for people with ASD based on design guidelines and/or recommendations is established. This refined proposal considers a total of eight UX factors, establishing an identifying name and specific definition, as shown in Table 6.
Table 6. Set 2: Preliminary Proposal of UX Factors Based on ASD Guidelines and Recommendations.
As the objective of our research is to establish UX factors that allow us to evaluate software systems designed for people with ASD, we eliminate the category “External Agents” presented in Table A3 because it focuses on aspects external to software.

5. A Set of UX Factors for People with ASD

Given the definitions established in set 1 (Table 4) and set 2 (Table 6), the preliminary UX factors were merged to formulate a proposal of UX factors for people with ASD, as shown in Figure 3. In this proposal, a total of nine UX factors are defined: Engaging, Predictable, Structured, Interactive, Generalizable, Customizable, Sense-aware, Attention retaining, and Frustration Free. Definitions for each of the proposed UX factors are presented in Table 7.
Figure 3. Process of Defining Final UX Factors for Users with ASD.
Table 7. UX Factors for Users with ASD.
In this set of UX factors, concepts such as “Engaging” or “Interactive” are included, which can be applied in contexts where learning is the focus of research. We believe that each of the proposed factors contributes to evaluating systems designed for people with ASD in general contexts and is not limited to learning settings. The nine UX factors established for people with ASD can be used to identify the most important or interesting areas that can be developed or addressed when designing systems for people with ASD. Defining these factors helps elucidate what UX implies and means and what is essential for ASD users. Additionally, we believe that these nine UX factors can contribute to adapting or creating new UX evaluation instruments and/or methods, which could contribute to the improvement of UX for systems designed for people with ASD.

6. Conclusions

Several studies have evaluated the UX and/or usability of systems for people with ASD. However, as evidenced in previous studies [2] and given the present investigation, empirical evidence and sufficient details are not presented to help us evaluate UX in systems for people with ASD. Additionally, it should be noted that no research has discussed UX factors of systems for people with ASD. Given the characteristics, affinities, and needs of people with ASD, we believe that it is pertinent to explore and specify UX factors that help evaluate systems designed for these users.
Given that there is no consensus on how to design specific UX factors regardless of the contexts in question, we used two means of search and information capture to establish guidance on UX factors for people with ASD.
The first approach focused on compiling the characteristics, affinities, and needs of people with ASD found in the literature as well as existing UX models. Since the UX models found do not consider the characteristics of people with ASD, we considered Morville’s honeycomb [8] model, and we tailored it to the characteristics, affinities, and needs of people with ASD. In this way, a first set of UX factors for use in systems designed for people with ASD was established.
The second approach involved compiling design guidelines and/or recommendations from the literature focused on technological systems for people with ASD. The design guidelines and/or recommendations found were grouped and classified to establish a new set of UX factors specific to systems designed for people with ASD.
We believe that these two approaches helped us analyze different perspectives on how the creation of specific UX factors should be carried out. An established UX factor creation methodology would have helped further support our research. We believe that the methods adopted helped us establish a good proposal on specific UX factors for systems designed for people with ASD.
In combining our preliminary UX factor proposals, we define a final set of UX factors for people with ASD that includes nine UX factors: Engaging, Predictable, Structured, Interactive, Generalizable, Customizable, Sense-aware, Attention Retaining, and Frustration Free.
These nine UX factors lead to a new UX model for people with ASD. The UX factors can be used to design appropriate systems for users with ASD. We believe that this set of UX factors will provide a theoretical basis for the possible adaptation or creation of evaluation instruments, methods, and methodologies and for the development of recommendations and design guidelines. These factors will help complete and enable future research that seeks to evaluate systems for people with ASD.
We believe that each of the established UX factors complements the others and that systems designed for people with ASD that comply with these factors will provide added value and will increase the satisfaction of users who interact with this system.
In future work, we intend to propose a methodology for evaluating the UX of people with ASD that uses adapted evaluation instruments and methods for users with ASD based on the new nine-factor UX model.

Author Contributions

Conceptualization, K.V., C.R. and F.B.; methodology, K.V., C.R. and F.B.; validation, K.V. and C.R.; formal analysis, K.V. and C.R.; investigation, K.V., C.R. and F.B.; data curation, K.V.; writing—original draft preparation, K.V.; writing—review and editing, K.V., C.R. and F.B.; visualization, K.V.; supervision, C.R. and F.B.; project administration, K.V. and C.R. All authors have read and agreed to the published version of the manuscript.

Funding

This research received no external funding.

Institutional Review Board Statement

Not applicable.

Data Availability Statement

Not applicable.

Acknowledgments

Katherine Valencia is a beneficiary of ANID-PFCHA/Doctorado Nacional/2019-21191170.

Conflicts of Interest

The authors declare no conflict of interest.

Appendix A

Table A1. UX Factors Specified for ASD.
Table A2. ASD Guidelines and Recommendations Provided in the Literature.
Table A3. ASD Guideline and Recommendation Categorization.

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