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Article

Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program

1
The Ottawa Hospital Cancer Centre, Ottawa, ON K1H 8L6, Canada
2
The Ottawa Hospital Research Institute, Ottawa, ON K1H 8L6, Canada
3
Department of Medicine, University of Ottawa, Ottawa, ON K1N 6N5, Canada
4
BC Children’s Hospital, Vancouver, BC V6H 3N1, Canada
5
Department of Medicine, The Ottawa Hospital, Ottawa, ON K1H 8L6, Canada
*
Author to whom correspondence should be addressed.
Curr. Oncol. 2022, 29(6), 4034-4053; https://doi.org/10.3390/curroncol29060322
Received: 3 May 2022 / Revised: 27 May 2022 / Accepted: 31 May 2022 / Published: 1 June 2022
Adolescent and young adult (AYA, ages 15–39 years) oncology patients are an underserved population with specialized needs. AYA programs are absent from most Canadian centers. We identified a priority list and sequence for new programs to address. Program goals, priorities, and activities were developed through literature review, national consensus documents, and expert opinion. Health care providers (HCPs) involved in AYA cancer care, administrators, and patient and family representatives were engaged to co-develop program goals and activities. A modified Delphi technique was used through two iterations followed by an in-person meeting to prioritize program implementation. Consensus was defined as a mean score of less than 2.0 (not important) or 4.0 or greater (important). Items without consensus (scored between 2.0 and 3.99) were discussed at the in-person meeting. Sixty provincial stakeholders completed the Delphi survey across multiple disciplines. Twenty-seven stakeholders attended the in-person meeting. All goals were deemed important, except development of a research program. Patient implementation tasks ranked highest. Priority sequence of implementation was: patient care first, followed by HCP education; patient and family education; program sustainability plan; evaluation; research; then a model for multidisciplinary tumor board review. These represent key goals for new AYA oncology programs and a priority sequence of implementation. View Full-Text
Keywords: AYA; oncology; program development AYA; oncology; program development
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MDPI and ACS Style

Surujballi, J.; Chan, G.; Strahlendorf, C.; Srikanthan, A. Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program. Curr. Oncol. 2022, 29, 4034-4053. https://doi.org/10.3390/curroncol29060322

AMA Style

Surujballi J, Chan G, Strahlendorf C, Srikanthan A. Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program. Current Oncology. 2022; 29(6):4034-4053. https://doi.org/10.3390/curroncol29060322

Chicago/Turabian Style

Surujballi, Julian, Grace Chan, Caron Strahlendorf, and Amirrtha Srikanthan. 2022. "Setting Priorities for a Provincial Adolescent and Young Adult Oncology Program" Current Oncology 29, no. 6: 4034-4053. https://doi.org/10.3390/curroncol29060322

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