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Nursing Reports
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Patient-Centered Care with Chronic Diseases
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Patient-Centered Care with Chronic Diseases

A special issue of Nursing Reports (ISSN 2039-4403).

Deadline for manuscript submissions: closed (31 October 2024) | Viewed by 17325

Special Issue Editors

Prof. Dr. Armando de Mendoça Raimundo

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Guest Editor
Comprehensive Health Research Centre (CHRC), Department of Sport and Health, School of Health and Human Development, University of Évora, 7000-671 Évora, Portugal
Interests: body composition; physical activity; exercise; health; ageing
Special Issues, Collections and Topics in MDPI journals
Prof. Dr. Maria Zangão

E-Mail Website
Guest Editor
Comprehensive Health Research Centre (CHRC), Department of Nursing, University of Évora, 7000-811 Évora, Portugal
Interests: breast-feeding; women's health; health management; health policies; quality of life
Cláudia Amaro dos Santos

E-Mail Website
Guest Editor Assistant
1. CRI.COM—Integrated Responsibility Centre for Bariatric Surgery and Metabolic Diseases, Hospital Espírito Santo de Évora, EPE, 7000-811 Evora, Portugal
2. CBIOS—Research Center for Biosciences & Health Technologies, Universidade Lusófona, 1749-024 Lisboa, Portugal
3. CIDEFES—Research Center in Sport, Physical Education, Exercise and Health, Universidade Lusófona, 1749-024 Lisboa, Portugal
Interests: nursing; obesity; bariatric surgery; chronic diseases; management diseases; nurse-led

Special Issue Information

Dear Colleagues,

This Nursing Reports Special Issue will focus on patient-centered care with chronic diseases. Systematic/scoping/narrative reviews or protocol of reviews related to these issues are welcome. One of the primary focuses is to identify the stakeholders in a health care model for Patient Centered Care on different chronic diseases. These models promote an improving satisfaction for patients, of the person’s needs, with a notably increased adherence to the treatment with patient-centered communication. In many pathologies, regarding evaluations, the diagnostic evaluation of person-centered data collection instruments, such as focus groups or semi-structured interviews with different care stakeholders, including patients, health professionals, and family members, is intended to understand the concerns and perceptions of patients. A patient-centered care model has been widely applied in several areas of clinical practice, with very positive results in the quality of care and patient satisfaction, emphasizing the individual needs of each one, and directing care in this same direction. 

This issue aimed to demonstrated with our studies, that it's necessary to put the client in the center of care, to increase better results and health related quality of life in general. Topics of interest include, but are not limited to the following: 

  • Investigation based on practice and personalized care approaches in healthcare;
  • Patient-centered care models in many chronic diseases or other condition with long-term care;
  • Studies investigating promotion of care;
  • Nurse-led care;
  • Intervention for the management of diseases;
  • New approaches of patient-centered care;
  • PROMs in chronic diseases.

Prof. Dr. Armando de Mendoça Raimundo
Prof. Dr. Maria Otília Brites Zangão
Guest Editors
Cláudia Amaro dos Santos
Guest Editor Assistant

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Nursing Reports is an international peer-reviewed open access quarterly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 1800 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • patient-centered care
  • chronic diseases
  • long-term
  • PROM's
  • nursing

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Published Papers (9 papers)

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Research

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12 pages, 1488 KiB  
Article
Challenges Faced by Family Caregivers of Individuals Living with Dementia in Japan During the COVID-19 Pandemic
by Toshiko Tsuyuki, Takeshi Asai, Erina Kurosaki, Atsushi Nakamura, Kaori Kishi and Fumi Takeda
Nurs. Rep. 2024, 14(4), 3907-3918; https://doi.org/10.3390/nursrep14040285 - 7 Dec 2024
Viewed by 422
Abstract
Background/Objectives: This study investigates the challenges faced by family caregivers of individuals with dementia in Japan, particularly in the context of the COVID-19 pandemic. Methods: We conducted a cross-sectional survey of 500 family caregivers of patients with dementia. Results: 56.4% of caregivers reported [...] Read more.
Background/Objectives: This study investigates the challenges faced by family caregivers of individuals with dementia in Japan, particularly in the context of the COVID-19 pandemic. Methods: We conducted a cross-sectional survey of 500 family caregivers of patients with dementia. Results: 56.4% of caregivers reported an increased caregiving burden, primarily due to extended caregiving hours, reduced access to public services, and restrictions on social interactions. This study found a strong preference for formal support, with 75.4% of caregivers desiring access to more comprehensive services. However, 19.4% of dementia patients were not utilizing any public services, largely due to a mismatch between available services and caregivers’ actual needs, as well as societal resistance to inviting formal support into the home. Informal support systems, such as dementia family groups and cafes, were well-known, but participation rates remained low (5.4% and 5.8%, respectively), despite the potential benefits for reducing stress and providing emotional support. Key barriers included privacy concerns, reluctance to engage, and logistical challenges such as inconvenient access and time constraints. Conclusions: To mitigate the above challenges, this study recommends expanding telemedicine and remote support services, improving awareness of available resources, and offering flexible, tailored solutions to meet diverse caregiving needs. Additionally, increasing financial support, enhancing public recognition of caregiver roles, and providing psychological counseling and stress management programs are essential to alleviating both the emotional and economic burdens placed on family caregivers during the pandemic. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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13 pages, 297 KiB  
Article
Factors Associated with and Predictive Model for Resilience in Family Caregivers of Care-Dependent Adults
by Belen Gutierrez-Baena, Ester Gilart and Carmen Romero-Grimaldi
Nurs. Rep. 2024, 14(4), 3476-3487; https://doi.org/10.3390/nursrep14040253 - 12 Nov 2024
Viewed by 742
Abstract
Background: Caring for dependent people is an intense task that leads family caregivers to suffer physical or mental pathologies. Resilience is a protective factor that makes an individual more resistant to adverse events. Some characteristics of the caregiver or the care provided predispose [...] Read more.
Background: Caring for dependent people is an intense task that leads family caregivers to suffer physical or mental pathologies. Resilience is a protective factor that makes an individual more resistant to adverse events. Some characteristics of the caregiver or the care provided predispose the caregiver to be less resilient. Knowing these characteristics will allow us to detect vulnerable caregivers. Aim: The aim of this study was to explore the factors associated with caregiver resilience and establish a predictive model, including the relationship between preparedness, burden, resilience, and anxiety. Materials and Methods: The study design was descriptive, observational, and cross-sectional, with purposive sampling. The sample included 172 family caregivers of care-dependent patients in Spain. Questionnaires were administered to assess caregiver resilience, anxiety, burden, and the preparedness of care-dependent patients. Correlation, univariate, and multiple linear regression analyses were performed to identify the factors associated with resilience. Results: We found that there is a correlation between resilience, preparation, and burden. Factors related to resilience include age, the caregiver’s health status, kinship, childcare, and state aid granted. Caregiver preparedness is the factor that most predicts caregiver resilience in our model. Caregivers with high levels of resilience also demonstrated high levels of preparedness and experienced less burden than those with low levels of resilience. Conclusions: These findings emphasize the relevance of improving the preparation of family caregivers to increase their resilience and, at the same time, the quality of care provided. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
13 pages, 251 KiB  
Article
Higher and Middle Management Perspectives on Patient-Centered Care in an Oncology Setting: A Qualitative Study
by Majeda A. AL-Ruzzieh, Yahia M. AL-Helih, Anas Haroun and Omar Ayaad
Nurs. Rep. 2024, 14(4), 3378-3390; https://doi.org/10.3390/nursrep14040244 - 5 Nov 2024
Viewed by 1136
Abstract
Background: Patient center care (PCC) plays a crucial role in achieving the organizational and patient outcomes. Literature suggests that PCC enhance patient’s adherence to treatment, lower the cost of health care organization. This study aimed explore the higher and middle managers’ perceptions of [...] Read more.
Background: Patient center care (PCC) plays a crucial role in achieving the organizational and patient outcomes. Literature suggests that PCC enhance patient’s adherence to treatment, lower the cost of health care organization. This study aimed explore the higher and middle managers’ perceptions of patient-centered care (PCC) in an oncology setting, identify the PCC implementation challenges in the oncology setting, and understand the role of managers in facilitating PCC within the oncology context. Methods: Sampling involved the use of the purposive sampling technique on 17 middle managers and 6 upper managers who had been working in an oncology setting. The six-step thematic analysis method was used for data analysis. Results: The interviews identified six main themes and seventeen subthemes: “comprehensive care, partnership, and informed decision-making”, “infrastructure and support systems”, “leadership influence on patient-centered care”, “cultural and operational barriers”, “perceived outcomes”, and “strategies to enhance PCC in oncology”. The subthemes of comprehensive care included fostering partnerships and enabling informed decisions. The infrastructure and support systems encompassed educational empowerment and service integration. Leadership influence highlighted the role of elevating awareness, providing organizational support, and promoting comprehensive care. The cultural and operational barriers addressed the challenges faced in implementation. The perceived outcomes focused on the results of patient-centered care, while strategies to enhance PCC in oncology provided actionable insights for improvement. This provides a comprehensive understanding of the perceptions of middle and higher managers on patient-centered care (PCC) in oncology settings. It identifies key challenges in PCC implementation, highlights the critical role of managers in facilitating PCC, and offers actionable strategies for enhancing PCC. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
11 pages, 278 KiB  
Article
The Impact of Pain, Threat Perception and Emotional Distress on Suicide Risk in Individuals with Colorectal Cancer
by Alba Espuig, Maria Pons-Vinent, Eva Carbajo and Laura Lacomba-Trejo
Nurs. Rep. 2024, 14(4), 2629-2639; https://doi.org/10.3390/nursrep14040194 - 25 Sep 2024
Viewed by 753
Abstract
Background: Colorectal cancer (CRC) can significantly impact mental health, increasing suicide risk. Variables such as pain and threat perception may be crucial. This study aims to identify predictors of suicide risk in individuals with CRC. Methods: A total of 71 participants (76.06% men) [...] Read more.
Background: Colorectal cancer (CRC) can significantly impact mental health, increasing suicide risk. Variables such as pain and threat perception may be crucial. This study aims to identify predictors of suicide risk in individuals with CRC. Methods: A total of 71 participants (76.06% men) aged 27 to 88 years (M = 65.18, SD = 12.02) were assessed using the SF-36 for pain, the Brief Illness Perception Questionnaire (B-IPQ) for threat perception, the Hospital Anxiety and Depression Scale (HADS) for emotional distress, and the Plutchik suicide risk scale for suicide risk. Descriptive, comparative, and correlational analyses were performed, followed by a linear regression analysis. Results: Nearly 20% of participants exhibited high suicide risk. There was a moderate-to-high association between suicide risk and the perception of threat, pain, and emotional distress. The linear regression model explained 39% of the variance in suicide risk, with threat perception, pain, and emotional distress as significant predictors. Conclusions: These results indicate the need for multidisciplinary care for individuals with CRC, including emotional support from health psychologists, and holistic, human-centered care from nursing and medical professionals. Future research is necessary to further explore these relationships and improve patient care strategies. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
11 pages, 235 KiB  
Article
Language Validation and Cultural Adaptation of the Italian Version of the Family Caregiver Quality of Life Scale
by Simone Debenedetti, Simone Cosmai, Daniela Cattani, Stefano Mancin, Giovanni Cangelosi, Fabio Petrelli and Beatrice Mazzoleni
Nurs. Rep. 2024, 14(3), 2302-2312; https://doi.org/10.3390/nursrep14030171 - 6 Sep 2024
Viewed by 765
Abstract
Background: Heart failure significantly impacts healthcare systems and society, affecting quality of life (QoL) due to its symptoms and continuous care needs. Nurses are crucial in managing heart failure, supporting both patients and caregivers who face physical, emotional, social, and spiritual challenges. The [...] Read more.
Background: Heart failure significantly impacts healthcare systems and society, affecting quality of life (QoL) due to its symptoms and continuous care needs. Nurses are crucial in managing heart failure, supporting both patients and caregivers who face physical, emotional, social, and spiritual challenges. The Family Caregiver Quality of Life (FAMQOL) scale evaluates caregivers’ QoL across all dimensions. This study aims to translate and culturally adapt the FAMQOL from English to Italian, enhancing its utility in nursing research and practice to better identify and support caregiver well-being. Methods: Following EORTC guidelines (2017), the FAMQOL underwent linguistic validation and cultural adaptation. This included independent forward translations from English to Italian, back translations, and reconciliation discussions to produce a testable translation. A pilot test with 15 caregivers assessed the questionnaire’s acceptability and comprehensibility. Results: Linguistic adjustments ensured the questionnaire’s understandability in Italian. Interviews confirmed its acceptability and comprehensibility, with minor modifications enhancing clarity. Conclusions: The translation process successfully adapted the FAMQOL for Italian caregivers. This tool is essential for nursing research and practice, providing a culturally relevant assessment of the burden of care. It allows targeted interventions to support health workers, intercepting the QoL of caregivers early and, consequently, the well-being of patients with heart failure. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
13 pages, 570 KiB  
Article
Methodological Proposal for the Adaptation of the Living with Long-Term Conditions Scale to the Family Caregiver
by Patricia Marín-Maicas, Mari Carmen Portillo, Silvia Corchón and Leire Ambrosio
Nurs. Rep. 2024, 14(1), 532-544; https://doi.org/10.3390/nursrep14010041 - 27 Feb 2024
Cited by 1 | Viewed by 1233
Abstract
(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with [...] Read more.
(1) Background: Living with long-term conditions affects both patients and family caregivers. To obtain a more complete overview of this phenomenon, a measurement instrument is needed that includes both perspectives. The aim is to adapt a scale to family caregivers of individuals with long-term conditions. (2) Methods: A methodological proposal is presented that illustrates the adaptation of the EC-PC scale to the family caregiver. Three phases are proposed: adaptation of the items, panel of experts, and pre-test. (3) Results: In the adaptation phase, the items from the original EC-PC were modified to adapt them to the family caregiver, and new items were added associated with the differences in living with LTC from the perspective of family caregivers. In the panel of experts phase, a universal agreement was reached related to the clarity, relevance, and essentiality of the items included. In the pre-test phase, the content of the scale was verified quantitatively and qualitatively. (4) Conclusions: The content of the items of version 5 of the EC-PC-Family showed a high index of inter-judge agreement. When a phenomenon affects both patients and their environment, such as living with LTC, it is necessary to include both perspectives in the measurement tools. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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Review

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10 pages, 340 KiB  
Review
Strategies Used by Nurses to Maintain Person–Family Communication during the COVID-19 Pandemic: A Scoping Review
by Delfina Teixeira, Sandra Costa, Ana Branco, Ana Silva, Pablo Polo and Maria José Nogueira
Nurs. Rep. 2023, 13(3), 1138-1147; https://doi.org/10.3390/nursrep13030098 - 21 Aug 2023
Viewed by 2412
Abstract
Background: The COVID-19 pandemic made nurse–patient–family communication more difficult, reducing the understanding of the patient’s wishes and current care history. COVID-19 challenged healthcare teams to develop strategies to address these changes and provide more integrated care using the technology at their disposal. [...] Read more.
Background: The COVID-19 pandemic made nurse–patient–family communication more difficult, reducing the understanding of the patient’s wishes and current care history. COVID-19 challenged healthcare teams to develop strategies to address these changes and provide more integrated care using the technology at their disposal. So, this study aims to map the strategies used by nurses to maintain communication between the person hospitalized with COVID-19 and the family to understand which communication technologies were most used to maintain communication between the person and the family. Methods: A Scoping Review, according to the recommendations of the Joanna Briggs Institute [JBI] with the Preferred Reporting Items for Scoping Review extension (PRISMA-ScR), research conducted between September 2022 and January 2023. The search was conducted in the databases: Latin American and Caribbean Literature in Health Sciences (LILACS); Cumulative Index of Nursing and Allied Health Literature (CINAHL); Scientific Electronic Library Online (SciELO); Medical Literature Analysis and Retrieval System Online (Medline), using the descriptors: family, communication, nurses, hospitals and COVID-19, and the Boolean operators “AND”. The inclusion criteria were: original articles, in Portuguese, English, and Spanish, published from 2020 onwards, with access to full and free text. Results: It was found that most of the communication was unstructured with the family. The technologies most used by nurses were the telephone with video calls from the patients themselves and even from health professionals to maintain communication between the patient and the family. Conclusions: Communication between patients and families became essential during the pandemic, as it became a vital lifeline of human connection that supported the mental health of patients and their families. This study was not registered. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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12 pages, 472 KiB  
Review
Health Literacy in Adults with Chronic Diseases in the Context of Community Health Nursing: A Scoping Review
by Annike Morgane Nock, Sabine Metzing, Ivonne-Nadine Jürgensen and Corinna Petersen-Ewert
Nurs. Rep. 2023, 13(2), 823-834; https://doi.org/10.3390/nursrep13020072 - 24 May 2023
Cited by 8 | Viewed by 4724
Abstract
Background: Health literacy was identified as a main determinant in self-care of chronic diseases. This results in responsibilities for health professionals for daily practice. For primary care setting, special requirements arise due to the heterogeneity of communities. The objective of this scoping review [...] Read more.
Background: Health literacy was identified as a main determinant in self-care of chronic diseases. This results in responsibilities for health professionals for daily practice. For primary care setting, special requirements arise due to the heterogeneity of communities. The objective of this scoping review was to explore and map the scope of the research material on strategies led by community health nurses to improve health literacy in (patients with) chronic diseases. This review aimed to identify gaps in the literature and existing approaches on promoting health literacy by community nurse practitioners. Methods: The following criteria were included for the research: Adults with chronic diseases, health literacy, community health nursing and primary healthcare. All types of searches for studies from 1970 to present were carried out in electronic databases and in a Google and a Google Scholar search. The search procedure is presented in a flow chart. Results: From all reviewed studies, nine records were included in the review. Findings with regard to the increase in health literacy in self-management of chronically ill patients were identified. Conclusion: Studies focusing on specific demands with regard to the role of community health nurses need to be carried out in depth. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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Other

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10 pages, 677 KiB  
Systematic Review
Therapeutic Nursing Education in Promoting Self-Management of Adolescents with Type 1 Diabetes Mellitus: Integrative Literature Review
by Cláudia Pereira, Marta Catarino and Ana Clara Nunes
Nurs. Rep. 2023, 13(1), 470-479; https://doi.org/10.3390/nursrep13010043 - 16 Mar 2023
Viewed by 3608
Abstract
Diabetes Mellitus Type I (DM1) is an autoimmune disease, characterized by the total destruction of the beta (β) cells of the islets of Langerhans in the pancreas. This disease can strike people at any age, but it usually develops in children or young [...] Read more.
Diabetes Mellitus Type I (DM1) is an autoimmune disease, characterized by the total destruction of the beta (β) cells of the islets of Langerhans in the pancreas. This disease can strike people at any age, but it usually develops in children or young adults. Because of the high prevalence of DM1 in the young population, as well as all the difficulties in effective self-management in this population, with very specific characteristics, it is essential to develop therapeutic education interventions, with the aim of acquiring self-management skills. Thus, the main objective of this study is to identify the benefits of therapeutic nursing education interventions in promoting self-management of adolescents with DM1. For this, an Integrative Literature Review was carried out, using the EBSCOhost, PubMed, Scopus and Web of Science platforms. Six articles were eligible. In terms of results, benefits were identified in the health of adolescents, with the use of therapeutic education interventions by nurses, including the control of capillary glycemia, better acceptance of the pathology, improvement in body mass index, increased adherence to the therapeutic regime, a reduction in hospitalizations and complications, contribution to bio-psycho-social well-being and improvement quality of life. Full article
(This article belongs to the Special Issue Patient-Centered Care with Chronic Diseases)
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