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Narrative in Health and Social Care: 2nd Edition
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Narrative in Health and Social Care: 2nd Edition

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Community Care".

Deadline for manuscript submissions: closed (30 June 2024) | Viewed by 5300

Special Issue Editor

Dr. Covelli Venusia

E-Mail Website
Guest Editor
STORIOSS Research Center, Faculty of Psychology, e-Campus University, Novedrate, Como, Italy
Interests: narrative research; narrative-based medicine; narrative medicine; disability and health; qualitative research methods; mixed methods
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

This Special Issue focuses on the use of narrative in clinical and research practice, and on its potential to actively involve both patients and health professionals in the improvement of patient healthcare. The focus on narrative will be twofold: On the one hand, the focus is on clinical practice and on how narrative medicine has encouraged the training of health professionals in the use of patient narratives in clinical practice over the past twenty years. On the other hand, the focus is on narrative research that, thanks to the collection and use of the patients and healthcare professionals’ narratives, is similarly placed among the objectives of improving clinical practice.

The present Special Issue intends to share the experience of various international research groups, favoring a methodological reflection between different health professionals that can bring the research procedure closer to daily medical practice, with the aim of encouraging and improving patient care.

We welcome papers (original research papers—qualitative research, quantitative research, and mixed methods research—review articles, and book reviews) addressing some of the core research questions related to narrative strategies and evidence applied to several topics, such as:

  • How patients’ illness experience can be used in clinical practice;
  • The role of narrative (medicine and research) in the doctor–patient relationship;
  • Narratives in Health Education;
  • Formal and informal caregivers’ burden: using their stories to reflect on care;
  • Health professionals’ quality of life;
  • Narrative and disability: the potential of narratives on disability studies;
  • Narrative and identity: creating self in the narrative;
  • Narrative and the impact of living with a chronic or rare disease.

Dr. Covelli Venusia
Guest Editor

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. Healthcare is an international peer-reviewed open access semimonthly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 2700 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • narrative medicine
  • narrative research
  • narrative medicine and narrative research in health and social care
  • narrative tools in health and social care
  • narrative medicine and narrative research in disability studies
  • narrative in the doctor–patient relationship
  • narrative and identity
  • narrative writing and psychotherapy

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  • Greater discoverability: Special Issues support the reach and impact of scientific research. Articles in Special Issues are more discoverable and cited more frequently.
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Further information on MDPI's Special Issue policies can be found here.

Related Special Issue

Published Papers (3 papers)

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Research

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12 pages, 596 KiB  
Article
Impact of Social Needs and Identity Experiences on the Burden of Illness in Patients with Multiple Myeloma: A Mixed-Methods Study
by Natalia Neparidze, Amandeep Godara, Dee Lin, Hoa H. Le, Karen Fixler, Lisa Shea, Stephanie Everson, Christine Brittle and Kimberly D. Brunisholz
Healthcare 2024, 12(16), 1660; https://doi.org/10.3390/healthcare12161660 - 20 Aug 2024
Cited by 2 | Viewed by 1241
Abstract
Multiple myeloma (MM) is a common hematologic malignancy, but due to its incurable nature, patients experience many relapses in their lifetime and hence face unique challenges. This mixed-methods study consisting of an online survey and subsequent focus groups aimed to understand how social [...] Read more.
Multiple myeloma (MM) is a common hematologic malignancy, but due to its incurable nature, patients experience many relapses in their lifetime and hence face unique challenges. This mixed-methods study consisting of an online survey and subsequent focus groups aimed to understand how social and identity experiences affected the diagnostic, treatment, and care journey for patients with MM. Twenty-three adult patients with MM participated in this study. The survey participants identified common determinants negatively impacting their health, including mental health concerns (experienced by 90.5% of respondents), worries about food shortage (42.9%), and transportation concerns (28.6%). Focus group participants described high physical and mental health burdens associated with MM. Frequent monitoring, fear of a relapse, and unpredictable side effects contributed to high anxiety. Participants indicated that MM differed from other types of cancer and chronic health conditions in many ways, particularly how and where the diagnosis was made, disease progression and relapse, treatments and side effects, and financial concerns. Most participants (65.0%) reported ≥1 social need that negatively impacted health outcomes including lack of knowledge about MM, financial instability, and lack of insurance, transportation, and social support. The findings reveal that patients with MM continually experience patient-specific mental and physical health burdens indicating high unmet needs throughout the disease journey. Full article
(This article belongs to the Special Issue Narrative in Health and Social Care: 2nd Edition)
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12 pages, 608 KiB  
Article
Patient Perspectives on Social and Identity Factors Affecting Multiple Myeloma Care: Barriers and Opportunities
by Natalia Neparidze, Amandeep Godara, Dee Lin, Hoa H. Le, Karen Fixler, Lisa Shea, Stephanie Everson, Christine Brittle and Kimberly D. Brunisholz
Healthcare 2024, 12(16), 1587; https://doi.org/10.3390/healthcare12161587 - 9 Aug 2024
Viewed by 1755
Abstract
Patients living with multiple myeloma (MM) have a substantial disease burden and face multiple barriers to care. Building upon our previous research using mixed methods, this focus group research aimed to identify patients’ priorities regarding specific social and identity-related needs, map these prioritized [...] Read more.
Patients living with multiple myeloma (MM) have a substantial disease burden and face multiple barriers to care. Building upon our previous research using mixed methods, this focus group research aimed to identify patients’ priorities regarding specific social and identity-related needs, map these prioritized needs to the disease journey, and describe patient-generated ideas to improve patient support. Participants noted that patients with MM need a range of emotional, social, and financial support throughout the disease journey. They identified initial MM diagnosis and treatment adherence as two critical points in the MM journey where patients need the most support and assistance. The findings of this research suggest that overall, patients with MM need comprehensive support, ideally from a multidisciplinary team consisting of health care providers, patient advocates, social workers, and psychologists to help patients understand their disease and treatment options, make informed treatment decisions, adhere to treatment, and ultimately reduce their disease burden and improve outcomes. This research revealed that patients with MM need varying types and levels of support, with the most common needs including information on disease and treatment, connections to financial resources and support systems, assistance with navigating insurance options, and transportation and logistical support for medical appointments. Full article
(This article belongs to the Special Issue Narrative in Health and Social Care: 2nd Edition)
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Review

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16 pages, 645 KiB  
Review
Alternative Treatments for Emotional Experiencing and Processing in People with Migraine or Tension-Type Headache: A Scoping Review
by Alessandra Marelli, Licia Grazzi, Marina Angela Visco, Pietro Crescenzo, Alessandra Bavagnoli, Cristal Sirotich and Venusia Covelli
Healthcare 2024, 12(13), 1302; https://doi.org/10.3390/healthcare12131302 - 29 Jun 2024
Viewed by 1833
Abstract
This narrative review aims to summarize the use of alternative treatments (e.g., relaxation training, meditation, written intervention) for emotional expression, processing, control, or management in patients with migraine and tension-type headaches, which the previous literature has shown to be related to migraine pain [...] Read more.
This narrative review aims to summarize the use of alternative treatments (e.g., relaxation training, meditation, written intervention) for emotional expression, processing, control, or management in patients with migraine and tension-type headaches, which the previous literature has shown to be related to migraine pain perception and headache symptoms. Online databases including PubMed, Scopus, Web of Science, PsycINFO, and Medline were searched to identify studies published between 2000 and 2023. A descriptive synthesis of the included studies was conducted. We included seven articles after screening 1.173 records. A total of 610 patients with a diagnosis of migraine or tension-type headache, and an average age of 19–45.5 years (68–90.4% females) were recruited in the selected studies. Overall, the results show that alternative approaches to headache treatment contribute to the management, reduction, or control of negative emotions and at the same time have a positive impact on pain perception and headache symptoms. However, in some cases, the effects are more promising than others, depending on the peculiarities or limitations of each approach considered. This review provides useful insights from a methodological point of view for future studies on the management or control of negative emotions in patients with migraine and tension-type headache. Full article
(This article belongs to the Special Issue Narrative in Health and Social Care: 2nd Edition)
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