How Patient Experience Contributes to Improving Healthcare

A special issue of Healthcare (ISSN 2227-9032). This special issue belongs to the section "Healthcare Quality, Patient Safety, and Self-care Management".

Deadline for manuscript submissions: 25 June 2027 | Viewed by 1843

Editor


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Guest Editor
Faculte De Medecine De Marseille, Aix Marseille Universite,13008 Marseille, France
Interests: public health; patient quality; patient experience

Special Issue Information

Dear Colleagues,

Patient experience is now widely recognized as a core dimension of healthcare quality, alongside safety and clinical effectiveness [1–3]. It provides a vital lens on how health systems respond to patients’ needs, values, and preferences. While often conflated with satisfaction, patient experience is conceptually distinct and increasingly positioned as a potential driver of care improvement [2,3].

Evidence supports a positive association between patient experience and clinical outcomes, including reduced adverse events and improved treatment adherence [4,5]. Systematic reviews suggest that experience-informed interventions can enhance quality, especially in hospital settings [6]. However, the nature and strength of these links remain context-dependent and sometimes difficult to isolate from confounding factors [4]. Organizational studies further suggest that cultures fostering patient-centered care are more likely to support meaningful innovation [5], though barriers such as fragmented leadership and resistance to change persist.

Marzban et al. [7] underscore the growing consensus on the value of patient engagement but also highlight gaps in evaluating its long-term impact and return on investment. Thus, while patient experience holds promise for transforming healthcare, its operationalization still demands robust methodologies, clarity of scope, and sustained institutional commitment.

This Special Issue aims to highlight how patient experience can serve as a lever for improving the quality, safety, and equity of healthcare systems. We welcome contributions that explore innovative approaches to integrating patient voice into clinical practice, care organization, and policy-making. In this Special Issue, original research articles, systematic reviews, and meta-analyses are welcome. Research areas may include (but are not limited to) the following:

* Patient-reported experience measures (PREMs);

* Experience-informed quality improvement strategies;

* Organizational culture and patient-centered care;

* Methodologies for analyzing patient experience;

* Policy and governance innovations involving patient voice.

References

    1. Agency for Healthcare Research and Quality. Patient Experience. 2023. Available at: https://www.ahrq.gov/cahps/about-cahps/patient-experience/index.html (accessed on July 2025).
    2. Wolf, J.A.; Niederhauser, V.; Marshburn, D.; LaVela, S. L. Defining patient experience. Patient Experience Journal 2014, 1, 7–19. Available at: https://pxjournal.org/journal/vol1/iss1/3/
    3. Oben, P.; Lee, R.; Thompson, L. Understanding the patient experience: A conceptual framework. Journal of Healthcare Quality 2020, 42, 93–101. https://doi.org/10.1097/JHQ.0000000000000223
    4. Doyle, C.; Lennox, L.; Bell, D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 2013, 3, e001570. https://doi.org/10.1136/bmjopen-2012-001570
    5. Luxford, K.; Safran, D. G.; Delbanco, T. Promoting patient-centered care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience. International Journal for Quality in Health Care 2011, 23, 510–515. https://doi.org/10.1093/intqhc/mzr024
    6. Bastemeijer, C.M.; Boosman, H.; van Ewijk, H.; Verweij, L.M.; Voogt, L.; Hazelzet, J.A. Patient experiences: a systematic review of quality improvement interventions in a hospital setting. Patient Relat Outcome Meas. 2019, 10, 157–169. https://pubmed.ncbi.nlm.nih.gov/31191062/ 397. https://doi.org/10.1186/s12913-019-4245-5
    7. Sima, M.; Marziye, N. Impact of Patient Engagement on Healthcare Quality: A Scoping Review  https://orcid.org/0000-0002-5445-2235 https://doi.org/10.1177/237437352211254

Prof. Dr. Stéphanie G. Gentile
Guest Editor

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Keywords

  • patient experience
  • care quality
  • patient-centered care
  • quality improvement
  • healthcare systems
  • patient-reported measures
  • health equity

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Published Papers (3 papers)

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Research

21 pages, 1312 KB  
Article
Evaluation of the Implementation and Contribution of Patient Partners on a Steering Committee at a University Hospital in the Province of Québec, Canada
by Marie-Pascale Pomey, Seynabou Ka, Monica Iliescu Nelea, Cécile Vialaron, Noé Djawn White, Annabelle Boutin-Wilkins, Marie Chiu-Neveu, Marie-Andrée Côté and Geneviève David
Healthcare 2026, 14(13), 2021; https://doi.org/10.3390/healthcare14132021 - 7 Jul 2026
Viewed by 319
Abstract
Background/Objectives: Over the past decade, an academic hospital in Montréal has progressively integrated patient partnership into quality improvement committees and peer support. In January 2024, this approach was extended by appointing two patient partners to the Steering Committee, a strategic governance body. This [...] Read more.
Background/Objectives: Over the past decade, an academic hospital in Montréal has progressively integrated patient partnership into quality improvement committees and peer support. In January 2024, this approach was extended by appointing two patient partners to the Steering Committee, a strategic governance body. This study aimed to describe their integration, examine perceived effects and limitations from patient partners’ and executives’ perspectives, and formulate recommendations for similar initiatives. Methods: An in-depth qualitative case study was conducted between August 2024 and April 2025. Semi-structured interviews were carried out with Steering Committee members, including the two patient partners, and with the former Chief Executive Officer. Data were analyzed using thematic content analysis to identify themes related to implementation, participation, perceived contributions, and organizational conditions. Results: Integrating patient partners into the Steering Committee was unanimously perceived as relevant and value-adding. Their presence reintroduced the patient perspective, grounded deliberations in lived experience, reinforced the hospital’s mission, supported shared understanding, and encouraged simplification of complex issues. Challenges constrained more active participation, including insufficient clarity regarding roles and objectives; variable access to information due to confidentiality; technical language and acronyms; meeting formats that did not systematically create space for patient partners’ input; and incomplete institutional recognition. Variation across departments also emerged. Conclusions: Integrating patient partners into a Steering Committee is a promising governance innovation, but deliberate organizational adjustments are required. Co-constructed expectations and roles, strengthened onboarding and ongoing support, formalized information-access modalities, improved facilitation and plain-language practices, and stronger symbolic and practical recognition are needed to sustain meaningful participation. Full article
(This article belongs to the Special Issue How Patient Experience Contributes to Improving Healthcare)
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16 pages, 287 KB  
Article
Patient Experience and Caregiver Involvement in COVID-19 Care Pathways: Revealing System Blind Spots Through a Life-Events Calendar Approach
by Romain Lutaud, Juliette Mirouse, Manon Borg, Lucie Cattaneo, Jean Constance, Christian Pradier, Sebastien Cortaredona, Irit Touitou, Patrick Peretti-Watel, Philippe Brouqui, Michel Carles and Stéphanie Gentile
Healthcare 2026, 14(12), 1800; https://doi.org/10.3390/healthcare14121800 - 22 Jun 2026
Viewed by 231
Abstract
Background/Objectives: Patient experience is increasingly recognised as a key dimension of healthcare quality, yet most tools fail to capture its temporal and processual nature, limiting its contribution to system improvement. This study aimed to demonstrate how a biographical approach to patient experience can [...] Read more.
Background/Objectives: Patient experience is increasingly recognised as a key dimension of healthcare quality, yet most tools fail to capture its temporal and processual nature, limiting its contribution to system improvement. This study aimed to demonstrate how a biographical approach to patient experience can generate actionable insights for improving care pathways. Specifically, we sought to: (i) identify and characterise distinct types of prehospital care pathways among patients hospitalised for COVID-19; (ii) identify patient-perceived significant events and safety issues; and (iii) generate structured variables to inform a subsequent quantitative phase. Methods: We conducted semi-structured biographical interviews with 31 patients hospitalised for COVID-19 in two French university hospitals. Data were collected using a life-events calendar (LEC), enabling day-by-day reconstruction of symptoms, healthcare contacts, and decision-making processes. Thematic analysis was performed with multidisciplinary triangulation. The qualitative phase identified three pathway types and the key mechanisms underlying each; these patterns were subsequently confirmed in a separate quantitative follow-up study (n = 312) using state sequence analysis. Results: Three distinct pathway types emerged: short (≤3 days), intermediate (4–9 days), and long (≥10 days). Delayed pathways were associated with repeated false-negative tests, underestimation of severity, and silent hypoxaemia. Across all pathways, patient experience suggested critical system-level failures, including diagnostic delays and inadequate escalation of care. Notably, in many cases, hospitalisation was triggered by a relative rather than a healthcare professional. These findings highlight the role of patient and social context as key components of care pathways. Conclusions: When captured longitudinally, patient experience may provide actionable insights into healthcare system functioning, suggesting structural mismatches between clinical trajectories and care responses. The life-events calendar method offers a replicable framework for transforming patient experience data into clinically and organisationally relevant knowledge. Integrating such approaches into healthcare evaluation could enhance patient safety, improve care coordination, and support more responsive care systems beyond COVID-19. Full article
(This article belongs to the Special Issue How Patient Experience Contributes to Improving Healthcare)
16 pages, 265 KB  
Article
Beyond the Cure: Unveiling the Silent Struggles of Breast Cancer Survivors in Hong Kong
by Alice Yip, Jeff Yip, Chun Sze Angela Chan, Zoe Tsui, Ka Man Rachel Yip and Yuen Han Mo
Healthcare 2026, 14(5), 647; https://doi.org/10.3390/healthcare14050647 - 4 Mar 2026
Viewed by 757
Abstract
Background/Objectives: Internationally, breast cancer incidence and survivorship are increasing. As the number of breast cancer survivors continues to rise, so does the demand for supportive care. This study aimed to explore how treatment experiences of breast cancer survivors in Hong Kong (HK) affect [...] Read more.
Background/Objectives: Internationally, breast cancer incidence and survivorship are increasing. As the number of breast cancer survivors continues to rise, so does the demand for supportive care. This study aimed to explore how treatment experiences of breast cancer survivors in Hong Kong (HK) affect their unmet care needs, with a focus on how Chinese culture influences their journey. Methods: This phenomenological qualitative study engaged a purposive sample of 28 breast cancer survivors in HK through semi-structured interviews. Data were analyzed using Colaizzi’s seven-step method to interpret their lived experiences. Results: Four key themes emerged: (i) carrying the burden in silence: the isolation of self-preservation; (ii) beyond the clinic: making medical advice fit into everyday routine; (iii) bridging two worlds: resilience through the integration of Traditional Chinese Medicine and Western Care; and (iv) reclaiming femininity: women helping women heal. Conclusions: This study provides an understanding of breast cancer survivors’ experiences and offers insights into delivering more realistic services. Basically, it extends survivorship knowledge by demonstrating how integrating cultural values into clinical care bridges the gap between medical treatment and holistic well-being. Full article
(This article belongs to the Special Issue How Patient Experience Contributes to Improving Healthcare)
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