Compassionate Person-Centered and Interprofessional Palliative Care: Challenges and Opportunities

A special issue of Healthcare (ISSN 2227-9032).

Deadline for manuscript submissions: 30 December 2024 | Viewed by 3505

Special Issue Editors


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Guest Editor
1. School of Health Sciences, Polytechnic University of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal
2. Centre for Innovative Care and Health Technology (ciTechCare), Polytechnic University of Leiria, Campus 5, Rua de Santo André-66–68, 2410-541 Leiria, Portugal
Interests: mental health; health psychology; well-being; hope; chronic illness; bereavement; end-of-life
Special Issues, Collections and Topics in MDPI journals

E-Mail Website
Guest Editor
School of Health Sciences of Polytechnic of Leiria, Campus 2, Morro do Lena, Alto do Vieiro, Apartado 4137, 2411-901 Leiria, Portugal
Interests: mental health; palliative care; caregivers; hope; end of life; spirituality; bereavement
Special Issues, Collections and Topics in MDPI journals

Special Issue Information

Dear Colleagues,

There is a rising focus on compassionate person-centred care (CPCC) and interprofessional collaborative practice (IPCP) to deliver high-quality palliative care that achieves patient satisfaction, as well as positive patient outcomes. Reflecting the broad scope of care, IPPC teams are typically composed of multiple professionals, including chaplains, nurses, physicians, psychologists, social workers and other health-related professionals. Interprofessional collaboration presents unique challenges that can become barriers to communication, namely professionals’ differing routines, different knowledge and identities, and professional hierarchies and time constraints. Nevertheless, if CPCC is indeed the goal, then the tenets and contributions of each profession must be valued and respected.

There has been a paucity of research specifically in the area focused on interprofessional education and practice in palliative care, the involvement of the patient, the family and care partners on the team, and the impact on the overall outcomes for the individual receiving care. Specific concepts that underpin successful collaboration include the sharing of responsibilities and decision-making, partnerships established on mutual trust, interdependency among providers to reach common goals and shared power among team members. All of these concepts of collaboration are also part of interprofessional core competencies: teamwork, communication, understanding of roles and responsibilities, and values/ethics. 

This Special Issue of Healthcare welcomes original contributions of relevance to this area of research across any setting, cultural background and academic disciplines with the hope of identifying work that will address challenges, opportunities and barriers to IPCP. Multidisciplinary research projects are especially encouraged. Authors are invited to submit research papers (quantitative, qualitative, case-studies or mixed-methods studies), concept analysis papers, quality improvement papers and review papers. We also encourage submissions from countries or regions in which the knowledge dissemination in this field has been scarse (e.g., Southern, Central and Eastern Europe; West and Central Africa; South and Central America, etc.). The listed keywords suggest some of the many other possibilities.

Dr. Carlos Laranjeira
Dr. Ana Querido
Guest Editors

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Keywords

  • intersectionality issues
  • spiritual wellbeing
  • palliative care
  • interprofessional palliative care
  • person-centred care
  • competence
  • trauma, grief and loss
  • behaviors and risks
  • social determinants
  • compassionate communities
  • caregivers
  • home care
  • hospice care
  • death and dying processes
  • advanced care planning
  • health behavior and health-seeking
  • resilience
  • empowerment
  • self-efficacy
  • lived experience
  • holistic approaches
  • education of health and social care professionals

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Published Papers (2 papers)

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20 pages, 581 KiB  
Article
Family Experiences of Loss and Bereavement in Palliative Care Units during the COVID-19 Pandemic: An Interpretative Phenomenological Study
by Maria João Mateus, Luís Simões, Amira Mohammed Ali and Carlos Laranjeira
Healthcare 2024, 12(17), 1763; https://doi.org/10.3390/healthcare12171763 - 4 Sep 2024
Cited by 1 | Viewed by 878
Abstract
The COVID-19 pandemic significantly interrupted the grieving experiences of bereaved families and drastically changed their ways of dealing with loss. Our study aims to gain an in-depth understanding of the experience of bereaved relatives of patients who died in palliative care units during [...] Read more.
The COVID-19 pandemic significantly interrupted the grieving experiences of bereaved families and drastically changed their ways of dealing with loss. Our study aims to gain an in-depth understanding of the experience of bereaved relatives of patients who died in palliative care units during the COVID-19 pandemic. The phenomenological research design included sixteen family members of hospitalized palliative patients who died from November 2021 to June 2022. The study involved conducting qualitative in-depth semi-structured interviews with family members 12–24 months after the death of their loved ones. The interviews aimed to gather information about the experiences of the families both before and after the death. The COREQ guidelines were applied in the study. Participants were mainly female (n = 13) with a mean age of 47.25 (SD = 12.58). Data were analysed using the Interpretative Phenomenology Analysis (IPA). The following three categories were identified: (1) navigating loved ones’ final weeks and days (troubled deaths); (2) the last farewell was robbed; (3) looking for adjustment after loss. One overall main theme emerged, which was as follows: “Struggling between stolen moments and painful losses to get back into the flow of life”. This study provides novel insights into end-of-life care and bereavement from the perspectives of family. Our findings suggest that developing and promoting family-centred culture can lead to compassionate palliative care focused on a myriad ways of affirming that their loved one matters. Full article
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29 pages, 1464 KiB  
Systematic Review
Situation, Education, Innovation, and Recommendation: A Large-Scale Systematic Review of Advance Care Planning in the Age of COVID-19
by Thomas Mayers, Ayaka Sakamoto, Ryota Inokuchi, Kyoko Hanari, Huijun Z. Ring and Nanako Tamiya
Healthcare 2024, 12(6), 667; https://doi.org/10.3390/healthcare12060667 - 15 Mar 2024
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Abstract
The COVID-19 pandemic highlighted the need for advance care planning (ACP) as a way to help mitigate the various care concerns that accompanied the healthcare crisis. However, unique obstacles to typical ACP practice necessitated the need for guidance and innovation to help facilitate [...] Read more.
The COVID-19 pandemic highlighted the need for advance care planning (ACP) as a way to help mitigate the various care concerns that accompanied the healthcare crisis. However, unique obstacles to typical ACP practice necessitated the need for guidance and innovation to help facilitate these vital conversations. The aim of this systematic review was to identify the various ACP barriers and facilitators that arose during the pandemic and determine how ACP practice was affected across different contexts and among different populations. This systematic review (PROSPERO registration number: CRD42022359092), which adheres to the PRISMA guidelines for reporting systematic reviews, examined studies on ACP in the context of the COVID-19 pandemic. The review involved searches of five databases, including MEDLINE and Embase. Of the 843 identified studies, 115 met the inclusion criteria. The extracted ACP barriers and facilitators were codified and quantified. The most frequently occurring ACP barrier codes were: Social distancing measures and visitation restrictions, Uncertainty surrounding the COVID-19 prognosis, and Technological/Telehealth barriers. The most frequently occurring ACP facilitator codes were the following: Telehealth/virtual ACP platforms, Training for clinicians, and Care team collaboration. Identifying the ACP barriers and facilitators is essential for developing effective, resilient ACP promotion strategies and improving its delivery, accessibility, and acceptability. Full article
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