Search for Articles:
Title / Keyword
Author / Affiliation / Email
Journal
Article Type
 
 
Advanced Search
 
Section
Special Issue
Volume
Issue
Number
Page
 
1.1
Journals
EBJ
Special Issues
Person-Centered and Family-Centered Care Following Burn Injuries
share announcement

Person-Centered and Family-Centered Care Following Burn Injuries

A special issue of European Burn Journal (ISSN 2673-1991).

Deadline for manuscript submissions: 31 December 2024 | Viewed by 6494

Special Issue Editors

Dr. Alette de Jong

E-Mail Website1 Website2
Guest Editor
Burn Center, Rode Kruis Ziekenhuis, 1942 LE Beverwijk, The Netherlands
Interests: person centred pain free wound care; pain; nursing
Dr. Nancy Van Loey

E-Mail Website
Guest Editor
Department of Clinical Psychology, Utrecht University, 3584 CS Utrecht, The Netherlands
Interests: clinical psychology; psychosocial aspects of burns; family centered care

Special Issue Information

Dear Colleagues,

The purpose of this Special Issue is to enhance the knowledge on and practical applications of person-centered and family-centered burn care. This Special Issue aims to draw attention to research and clinical approaches or interventions that contribute to the knowledge and clinical practice associated with person-centered care and family-centered care for patients with burns and their relatives. Studies related to nursing, wound care, pain, psychological wellbeing, and quality of life are encouraged. Research articles, reviews, and commentaries are all welcome.

Dr. Alette de Jong
Dr. Nancy Van Loey
Guest Editors

Manuscript Submission Information

Manuscripts should be submitted online at www.mdpi.com by registering and logging in to this website. Once you are registered, click here to go to the submission form. Manuscripts can be submitted until the deadline. All submissions that pass pre-check are peer-reviewed. Accepted papers will be published continuously in the journal (as soon as accepted) and will be listed together on the special issue website. Research articles, review articles as well as short communications are invited. For planned papers, a title and short abstract (about 100 words) can be sent to the Editorial Office for announcement on this website.

Submitted manuscripts should not have been published previously, nor be under consideration for publication elsewhere (except conference proceedings papers). All manuscripts are thoroughly refereed through a single-blind peer-review process. A guide for authors and other relevant information for submission of manuscripts is available on the Instructions for Authors page. European Burn Journal is an international peer-reviewed open access quarterly journal published by MDPI.

Please visit the Instructions for Authors page before submitting a manuscript. The Article Processing Charge (APC) for publication in this open access journal is 971 CHF (Swiss Francs). Submitted papers should be well formatted and use good English. Authors may use MDPI's English editing service prior to publication or during author revisions.

Keywords

  • person-centered care
  • family-centered care
  • wound care
  • psychosocial
  • psychological
  • coping
  • pain
  • nursing

Benefits of Publishing in a Special Issue

  • Ease of navigation: Grouping papers by topic helps scholars navigate broad scope journals more efficiently.
  • Greater discoverability: Special Issues support the reach and impact of scientific research. Articles in Special Issues are more discoverable and cited more frequently.
  • Expansion of research network: Special Issues facilitate connections among authors, fostering scientific collaborations.
  • External promotion: Articles in Special Issues are often promoted through the journal's social media, increasing their visibility.
  • e-Book format: Special Issues with more than 10 articles can be published as dedicated e-books, ensuring wide and rapid dissemination.

Further information on MDPI's Special Issue polices can be found here.

Published Papers (5 papers)

Download All Papers
Order results
Result details
Show export options expand_more Show export options expand_less
Select all
Export citation of selected articles as:

Editorial

Jump to: Research

3 pages, 167 KiB  
Editorial
Person and Family Centredness—The Need for Clarity of Focus
by Brendan McCormack
Eur. Burn J. 2024, 5(2), 166-168; https://doi.org/10.3390/ebj5020014 - 27 May 2024
Cited by 1 | Viewed by 1020
Abstract
Congratulations to the editorial team of the European Burn Journal for having the vision to host a Special Issue on the theme of “Person-Centred and Family-Centred Care Following Burn Injuries” [...] Full article
(This article belongs to the Special Issue Person-Centered and Family-Centered Care Following Burn Injuries)

Research

Jump to: Editorial

14 pages, 1624 KiB  
Article
Measurement Equivalence and Feasibility of the Electronic and Paper Versions of the POSAS, EQ-5D, and DLQI: A Randomized Crossover Trial
by Jill Meirte, Nick Hellemans, Ulrike Van Daele, Koen Maertens, Lenie Denteneer, Mieke Anthonissen and Peter Moortgat
Eur. Burn J. 2024, 5(4), 321-334; https://doi.org/10.3390/ebj5040030 - 11 Oct 2024
Viewed by 594
Abstract
Patient-reported outcome measures (PROMs) are crucial within person-centered care. The use of electronic PROMs (ePROMs) is increasing and multiple advantages have been described. The Patient and Observer Scar Assessment Scale (POSAS) is a validated paper questionnaire to assess patient-reported scar quality in the [...] Read more.
Patient-reported outcome measures (PROMs) are crucial within person-centered care. The use of electronic PROMs (ePROMs) is increasing and multiple advantages have been described. The Patient and Observer Scar Assessment Scale (POSAS) is a validated paper questionnaire to assess patient-reported scar quality in the burn and scar population. In burn and scar rehabilitation, quality of life questionnaires such as the Euroqol 5 Dimensions 5 level (EQ-5D-5L) and the Dermatology Life Quality Index (DLQI) allow us to measure physical and psychosocial impact. The goal of this research was to compare the equivalence of the electronic versions of the POSAS, the EQ-5D-5L, and the DLQI with their original paper counterparts. To ensure the psychometric properties of the electronic versions, we assessed the equivalence of scores, the differences in completion time, and patients’ preferred mode and ease of use. We used a randomized crossover design using a within-subject comparison of the formats of the questionnaires. Participants aged over 18 with a scar were recruited from an outpatient after-care and research center for burns and scars in Antwerp, Belgium. The equivalence of the electronic questionnaires POSAS, EQ-5D-5L, and DLQI is assumed based on the findings of this study. Completion times were faster for all the electronic versions but only statistically different (p = 0.002) for the electronic version of the EQ-5D-5L. The number of missing answers could be reduced to 0. The electronic assessment was preferred in >75% of the cases and subjects found it easy to use, and a tool that could improve the quality of care. Our findings support the electronic delivery of POSAS, EQ-5D, and DLQI, within the burn and scar population. Full article
(This article belongs to the Special Issue Person-Centered and Family-Centered Care Following Burn Injuries)
►▼ Show Figures

Figure 1

14 pages, 2313 KiB  
Article
Development and Testing of the Aftercare Problem List, a Burn Aftercare Screening Instrument
by Nancy E. E. Van Loey, Elise Boersma-van Dam, Anita Boekelaar, Anneke van de Steenoven, Alette E. E. de Jong and Helma W. C. Hofland
Eur. Burn J. 2024, 5(2), 90-103; https://doi.org/10.3390/ebj5020008 - 29 Mar 2024
Viewed by 959
Abstract
A growing interest in person-centered care from a biopsychosocial perspective has led to increased attention to structural screening. The aim of this study was to develop an easy-to-comprehend screening instrument using single items to identify a broad range of health-related problems in adult [...] Read more.
A growing interest in person-centered care from a biopsychosocial perspective has led to increased attention to structural screening. The aim of this study was to develop an easy-to-comprehend screening instrument using single items to identify a broad range of health-related problems in adult burn survivors. This study builds on earlier work regarding content generation. Focus groups and expert meetings with healthcare providers informed content refinement, resulting in the Aftercare Problem List (APL). The instrument consists of 43 items divided into nine health domains: scars, daily life functioning, scars treatment, body perceptions, stigmatization, intimacy, mental health, relationships, financial concerns, and a positive coping domain. The APL also includes a Distress Thermometer and a question inquiring about preference to discuss the results with a healthcare provider. Subsequently, the APL was completed by 102 outpatients. To test face validity, a linear regression analysis showed that problems in three health domains, i.e., scars, mental health, and body perceptions, were significantly related to higher distress. Qualitative results revealed that a minority found the items difficult which led to further adjustment of the wording and the addition of illustrations. In summation, this study subscribes to the validity of using single items to screen for burn-related problems. Full article
(This article belongs to the Special Issue Person-Centered and Family-Centered Care Following Burn Injuries)
►▼ Show Figures

Figure 1

13 pages, 714 KiB  
Article
Parental Stress and Child Quality of Life after Pediatric Burn
by Dinithi Atapattu, Victoria M. Shoesmith, Fiona M. Wood and Lisa J. Martin
Eur. Burn J. 2024, 5(2), 77-89; https://doi.org/10.3390/ebj5020007 - 27 Mar 2024
Viewed by 1029
Abstract
Parents’ emotions after their child’s burn might be influenced by the injury circumstances or demographic characteristics of the patient and family. Parents’ post-traumatic stress symptoms and their child’s distress may interact and affect emotional states. The psychosocial outcomes of parents were measured using [...] Read more.
Parents’ emotions after their child’s burn might be influenced by the injury circumstances or demographic characteristics of the patient and family. Parents’ post-traumatic stress symptoms and their child’s distress may interact and affect emotional states. The psychosocial outcomes of parents were measured using the Impact of Event Scale-Revised, the CARe Burn Scale, and the Post-traumatic Growth Inventory-Brief. The psychosocial quality of life outcomes of the pediatric burn patients were measured using the Pediatric Quality of Life Inventory (PedsQL). Regression analysis was used to assess the relationship between patient psychosocial quality of life and the related parent scores. A total of 48 patients and parents participated, with 36 giving full data at 12 months. Parental post-traumatic stress symptoms were initially high, settling by six months, although outliers remained. Parents reported higher IESR scores if their child was female, if they felt helpless at the time of the incident, and if a language other than English was spoken in the home. Parents’ scores of their child’s psychosocial function were similar to their child’s self-scores. Parents who perceived poorer emotional functioning in their child reported higher IESR scores. Full article
(This article belongs to the Special Issue Person-Centered and Family-Centered Care Following Burn Injuries)
►▼ Show Figures

Figure 1

12 pages, 953 KiB  
Article
Developing a Burn-Specific Family-Centered Care (BS-FCC) Framework: A Multi-Method Study
by Jonathan Bayuo and Anita Eseenam Agbeko
Eur. Burn J. 2023, 4(3), 280-291; https://doi.org/10.3390/ebj4030025 - 23 Jun 2023
Cited by 3 | Viewed by 1580
Abstract
A burn has been described as a family injury warranting the delivery of family-centered care (FCC) across the continuum of burns management. This assertion notwithstanding, only limited progress has been made to develop and implement FCC interventions in the burn unit. As a [...] Read more.
A burn has been described as a family injury warranting the delivery of family-centered care (FCC) across the continuum of burns management. This assertion notwithstanding, only limited progress has been made to develop and implement FCC interventions in the burn unit. As a starting point, this study sought to formulate a tentative framework to underpin FCC in burn care. A multi-method design comprising an umbrella review and the secondary data analysis of qualitative datasets was employed. Following these, the findings were merged and aligned to the Universal Model of FCC to formulate the burn-specific FCC framework. For the umbrella review, four review articles met the criteria for inclusion. Following a data synthesis of the review findings and their integration with the qualitative dataset, four meta-themes that encapsulate the shared needs/concerns of family members of both pediatric and adult burn survivors emerged: (1) psychosocial concerns, (2) issues relating to role changes, (3) logistical concerns, and (4) requiring information. These issues were mapped to the following components of the Universal Model of FCC: family support, education, collaboration, and communication. All these are underpinned by dedicated policies, procedures, and consideration of the family context. Testing and further empirical work are needed to refine and implement the framework across the continuum of burn management. Full article
(This article belongs to the Special Issue Person-Centered and Family-Centered Care Following Burn Injuries)
►▼ Show Figures

Figure 1

Show export options expand_more Show export options expand_less
Select all
Export citation of selected articles as:
 
Displaying articles 1-5
Back to TopTop