Next Article in Journal
Editorial for Special Issue “Newborn Screening for Sickle Cell Disease and other Haemoglobinopathies”
Next Article in Special Issue
Newborn Screening: Current Status in Alberta, Canada
Previous Article in Journal
Development of National Newborn Screening Quality Indicators in the United States
Previous Article in Special Issue
Wisconsin’s Screening Algorithm for the Identification of Newborns with Congenital Adrenal Hyperplasia
Open AccessArticle

Factors Influencing Parental Awareness about Newborn Screening

1
Department of Pediatrics and Adolescent Medicine, Charles University First Faculty of Medicine and General University Hospital, Ke Karlovu 2, 128 04 Prague 2, Czech Republic
2
Institute for Medical Humanities, First Faculty of Medicine, Charles University, Karlovo náměstí 40, 128 08 Prague 2, Czech Republic
3
Institute of Physiology, First Faculty of Medicine, Charles University, Albertov 5, 128 00 Prague 2, Czech Republic
*
Authors to whom correspondence should be addressed.
Int. J. Neonatal Screen. 2019, 5(3), 35; https://doi.org/10.3390/ijns5030035
Received: 26 August 2019 / Revised: 9 September 2019 / Accepted: 16 September 2019 / Published: 18 September 2019
(This article belongs to the Special Issue Selected Papers from 11th ISNS European Regional Meeting)
Appropriate and timely education about newborn screening (NBS) helps to foster benefits such as prompt follow up, to promote parents’ autonomy via informed consent and minimize the harms such as reducing the impact of NBS false-positive results. The aim of this study was to ascertain how mothers are informed about NBS in the Czech Republic and to identify the variables associated with awareness about NBS. The questionnaires evaluating awareness and its determinants were mailed to a random sample of 3000 mothers 3 months post-delivery. The overall response rate was 42%. We analysed 1100 questionnaires and observed that better awareness about NBS was significantly associated with age, parity, number of information sources, child health status, size of maternity hospital and an obstetrician as the source of prenatally obtained information. Although the majority of mothers (77%) in our study recalled being informed by a physician or nurse in the neonatal ward, results have revealed that over 40% of participants did not have sufficient awareness about the principal aspects of NBS. Several measures including seminars for healthcare providers and the development and distribution of new educational materials were adopted to improve parental education about NBS in the Czech Republic. View Full-Text
Keywords: newborn screening; education; consent; survey; parental awareness newborn screening; education; consent; survey; parental awareness
Show Figures

Figure 1

MDPI and ACS Style

Franková, V.; Dohnalová, A.; Pešková, K.; Hermánková, R.; O’Driscoll, R.; Ješina, P.; Kožich, V. Factors Influencing Parental Awareness about Newborn Screening. Int. J. Neonatal Screen. 2019, 5, 35.

Show more citation formats Show less citations formats
Note that from the first issue of 2016, MDPI journals use article numbers instead of page numbers. See further details here.

Article Access Map by Country/Region

1
Back to TopTop